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Type: Posts; User: puzzled

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  1. Replies
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    I would say i have lost over 40 pounds in the...

    I would say i have lost over 40 pounds in the past year prior to being diagnosed without trying. I was increasing my food intake and still losing weight. Now that i have been diagnosed and commenced...
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    That's wonderful news, I'm very happy for your...

    That's wonderful news, I'm very happy for your dad, yourself and the rest of your family. You must be all so relieved. Hugs
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    Sounds like a great option. Thanks for the...

    Sounds like a great option. Thanks for the feedback.
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    Hope the tests results are ok Rob. Thinking of...

    Hope the tests results are ok Rob. Thinking of you and your dad.
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    It is hard to know what the future holds when...

    It is hard to know what the future holds when given a diagnosis such as lupus. I have had symptoms since i was 25 but it took 6.5 years to be diagnosed. This meant i often had periods where i didn't...
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    I like the sound of this option. I thought an IUD...

    I like the sound of this option. I thought an IUD was out of the question since my diagnosis but i will look into this now. May i ask what your Rheumy thought of this option? I was actually...
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    Hiya Amanda, I remember those awful dark...

    Hiya Amanda,

    I remember those awful dark painful days when doctors couldn't get their acts together. Here's hoping you find a Rheumy real soon that will give you the care you deserve. Keep...
  8. ARGHHH i hate ANA levels! No matter what the...

    ARGHHH i hate ANA levels! No matter what the result doctors will always have an excuse. But the fact is you can have lupus without a positive ANA and you can have a positive ANA and not have Lupus....
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    Happy Birthday Rob! Hope it's a great day for you

    Happy Birthday Rob! Hope it's a great day for you
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    I have experienced these feelings when commencing...

    I have experienced these feelings when commencing sertraline (zoloft) another type of SSRI. I had the cold rush, nausea, palpitations, feelings of panic. I commenced the drug when doctors thought...
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    I have just commenced Plaquenil and i'm finding...

    I have just commenced Plaquenil and i'm finding it fine. Like yourself i can't wait to get off the prednisone, but have to wait for the plaquenil to kick in. I'm hopeful that plaquenil will control...
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    Wow Saysusie what an amazing response! ...

    Wow Saysusie what an amazing response!

    Unspeakable joy i can relate to alot of your symptoms. Although i have not been given a formal diagnosis of lupus, my Rheum has recognized that my symptoms...
  13. Thread: Please help!

    by puzzled
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    Thanks for responding Marla. I'm glad you find...

    Thanks for responding Marla. I'm glad you find plaquenil and MTX is working. I really hope plaquenil works for me. In the meantime Pred is helping. I'm hoping i won't need any other types of drugs. I...
  14. Thread: Please help!

    by puzzled
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    OOPS maybe i should have explained myself better....

    OOPS maybe i should have explained myself better. UCTD is a diagnosis of Undifferentiated Connective Tissue Disease. It is a diagnosis that is given when a patient doesn't fit the full criteria for a...
  15. Thread: Please help!

    by puzzled
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    2,969

    Finally have a diagnosis - UCTD. I have commenced...

    Finally have a diagnosis - UCTD. I have commenced plaquenil. I feel like i have been running a marathon all these years and finally someone has tapped me on the shoulder to tell me i have crossed the...
  16. Thread: Please help!

    by puzzled
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    2,969

    Kathy Thanks for giving me more information about...

    Kathy Thanks for giving me more information about Sjogrens. I knew a little about the condition but i was not familiar with the fact that Sjogrens can cause fatigue, muscle/joint pain and lung...
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    Congratulations Marla that's lovely news. Enjoy...

    Congratulations Marla that's lovely news. Enjoy your time with Ryan.
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    Jim, i agree totally. The doctors are definitely...

    Jim, i agree totally. The doctors are definitely another story. As for other people I don't talk much about being unwell so most people don't comment on it. Although alot of people are questioning...
  19. Thread: Please help!

    by puzzled
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    Thank you all so much for your responses. It felt...

    Thank you all so much for your responses. It felt great to vent to people who understand what i am going through. Friends and family just don't get. Not because they don't want to but because on the...
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    Happy New Year to you Marla. Have a great trip...

    Happy New Year to you Marla. Have a great trip and enjoy your new grandson x
  21. Thread: Giving up

    by puzzled
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    Hi Tabatha sorry you are having a hard time...

    Hi Tabatha sorry you are having a hard time getting solid answers from your doctors. It's rather frustrating dealing with the medical profession sometimes. I guess so many people including husbands...
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    Hi Kara, i know exactly what you are going...

    Hi Kara, i know exactly what you are going through. I to am undiagnosed with the possibility of lupus. Like you i have horrible symptoms that interfere with my ability to raise my two young children...
  23. Thread: Please help!

    by puzzled
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    Thank you Marla and Amanda for your replies. I'm...

    Thank you Marla and Amanda for your replies. I'm sorry that anyone should have familiar symptoms to what i am experiencing as i feel terrible. So far my doctor refuses to medicate me until i have a...
  24. Thread: Please help!

    by puzzled
    Replies
    18
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    2,969

    Please help!

    I'm yet to have a diagnosis but have had several possibilities thrown at me. One being lupus, the others being mctd, fibromyalgia and chronic pain syndrome. It's proving frustrating. I am 32 and I...
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