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Type: Posts; User: kkgadro

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    Great advise!

    Thank you. This was very easy to understand and very helpful. I definitely learned something new. I wish I could find info like this online myself and not bother any one but then I would not have met...
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    Whooo Hooooooo! Luv puppy bowl

    We loved the puppy bowl!!!!!!!
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    I guessed wrong on my ana test 1:1280

    Hi! Everyone I thought my ANA test came back at 1:12 but It is 1:1280 which I am guessing is alot higher than my previous test result of 1:640. I know the 1:640 was positive. Now I am really...
  4. Thread: help please

    by kkgadro
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    Hi!

    I know lupus is a hard thing to diagnose. Just because the tests are negative now doesnt mean that you dont have lupus. My Mom was tested several times before she got a positive result. There are...
  5. Thank you

    I have been very curious about that for a long time. I did not know that paprika was included. My family is hungarian. Paprika, potatoes, tomatos, and alot of beef. When I do not eat these I am ok. I...
  6. potatos and red meat is very bad for people with lupus

    Alot of literature and my DR says that white potatoes are very bad for lupus or arthritis. I feel much better when I do not eat these. I just thought I would mention this and maybe someone could...
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    MY ANA TEST WENT DOWN TO 1128

    WOOOHOOOOOO!!!!!!!! My ANA is 1128. Thats a first in 6 years. The rheumatoid factor is high. I am amazed. I have not worked since early September, I do not know if that has something to do with it. I...
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    Just a thought

    I have learned that some meds work on some people but not others. My DR prescribed ultracet for pain. It does not take all the pain away but it really helps me to be able to walk and move a little....
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    Yup! Prednisone

    Yup! Prednisone. Don't ya love it? I get the nite sweats from it. I also sweat more than usual in the summer. I never really sweat before even though I live in the south. Soon as I started taking...
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    mitro valve and lupus

    My Mom has the gene for Lupus pasted down from my great grandmother to my grandmother to my mom to me. WOW that is a mouth full. Any way, my Mom contributes her mitro valve problem to lupus. Her...
  11. Thread: Shingles?

    by kkgadro
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    I get chicken pox and shingles

    I have had chicken pox about 4 times now.It wasn't even when my lupus was acting up. I have numerous bouts of shingles. Whenever I get sun burn it will turn into shingles. One time I got shingles...
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    Lupus runs in my family

    My Great-GrandMother died in her 30's from what we think was lupus/sjogrens. My GrandMother died at 56 from sjogrens/lupus. My Mother has tested positive but has not really had any problems. I am 42...
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    Hey!

    My flair has lasted 4 years....no kidding! I have had no relief as yet. It is the strangest thing. Just getting worse. Weird?
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    It will be OK!

    Hang in there! It will be OK. Believe me I understand, except my Mom wont come help. I have a 20yr, 17yr, 18yr, and 8yr. I have raised them thru the pain. WOW, do I know where you are at. I have had...
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    200mg of predn....is this bad?

    I was taking 10mg of predn for four years. The DR stopped prescription in June because my bones and such were getting bad. Now that I have become so sick he put me on 200mg per day. What does this...
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    Congrats!!!!

    I have 3 children. 20, 17, and 8 years old. My first pregnancy was great I was 21. My second was great I was 24. After the second child the arthritis flared a little (very minor). My third child ( a...
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    thank you

    Thank you so much!!!!!!!! I love you all!!!
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    Don't worry

    They bleeding stopped last night. Well as far as throwing up. I have a little in the stool. Not bad. Our hospital ER is only to make sure you are not dieing and they refer you to your Dr. I have put...
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    thankyou

    I wish my family was more supportive. I work for my Mother. Working from home is not an option. Taking days off means less pay and at $250ish a week a cut back would be devastating. Lupus runs in my...
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    when is it time to give up?

    Hi! Everyone! When is time to to say I have had enough? I am so tired now. I cant rest because I have 4 kids and divorced. I have to stop. I cant do it any more. I have had lupus for over 17yrs. The...
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    Hi! I have SVT. My heart skips a beat and it...

    Hi! I have SVT. My heart skips a beat and it makes me cough. When I cough it starts back to normal rythm. After a few years it started by skipping a beat then sped up to ( I think) 248 per minutes....
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    aaaaaahhhhhhhh!!!!!

    Thank you so much!!!! I bought a toilet seat last nite. I can go POTTY!!!! What a difference. WOW!!!! It is 5 inches higher with handles.
    Also I did not know about spices. I know not to eat red...
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    cant get on or off toilet!!!!!

    Hi! Everyone! What happens next? I cant lower myself on to toilet or sofa or chair at work. I have trouble walking. Where do I go from here. I go to the local medical free clinic. They will get me in...
  24. I lost about 22 lbs

    I stopped taking predn in June...I have lost 22lbs and did not diet. I am still loosing the 50lbs that predn put on me. I ate everything in sight and it tasted great!!! LOL Watch your in take, it may...
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    Morpheus...do not worry. I have had lupus since I...

    Morpheus...do not worry. I have had lupus since I was about 10. Diagnosed at 24yrs. It took a long time before I felt sick. I am 41 now and I started having problems 4 years ago. I did not take care...
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