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  1. Thread: Itp

    by nvsmom
    Replies
    3
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    529

    I have not been diagnosed with SLE (just saw a...

    I have not been diagnosed with SLE (just saw a rheumy for the first time) but I did develop ITP (and possibly hemolytic anemia based on a positive coombs test) about 20 years ago. I had a pretty...
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    788

    I have Hashi's too. It is possible that you are...

    I have Hashi's too. It is possible that you are not hypothyroid with your Hashi's yet but you should have your hormone levels checked because TSH does not tell the whole picture... or even a good...
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    I have celiac disease, and the symptoms you...

    I have celiac disease, and the symptoms you describe are consistant with some manifestations of celiac (which is often misdiagnosed as IBS or gallbladder disease). Celiac appears more frequently to...
  4. Thread: Hip Giving Way

    by nvsmom
    Replies
    8
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    737

    I have peripheral neuropathy down one leg from my...

    I have peripheral neuropathy down one leg from my bad back (burst disc). The paralysis goes through my (ahem) butt cheek, into my hip, down th outside of my leg, into my shin and ends at my big toe. ...
  5. Thread: Lupie Hair

    by nvsmom
    Replies
    6
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    848

    I've heard BioSil supplements are good for hair,...

    I've heard BioSil supplements are good for hair, skin and nails. It supposedly strengthens hair and encourages regrowth. I've recently started taking it so I can't personnally attest to it's...
  6. Replies
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    Mmmm! Turkey is such a good thing. Thanks. :)

    Mmmm! Turkey is such a good thing. Thanks. :)
  7. Replies
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    742

    :) Congratulations Marla!

    :) Congratulations Marla!
  8. Frost...Brrr. Thanks Mica.

    Frost...Brrr. Thanks Mica.
  9. Thread: Not sure

    by nvsmom
    Replies
    15
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    1,195

    Little red spots all over your arms and legs...

    Little red spots all over your arms and legs could be petechiae (tiny hemorrhage under the skin) from thrombocytopenia. If your platelets are under AI attack you could end up anemic and that would...
  10. :-) Thanks for all the replies everybody. I...

    :-) Thanks for all the replies everybody. I appreciate all of your input.

    Steve- Thanks. I hope I luck out too since I'm not great at advocating for myself. I get all tongue tied. I'm 38, you'd...
  11. Marla, I have a mental picture of your doc with...

    Marla, I have a mental picture of your doc with her nose stuck in her notes and not even looking up as she deadpans, "Raynaud's, Wear warm socks." ;) LOL So it could be Raynaud's (perhaps mild?)...
  12. Manderson - Cold feet and burning toes... The...

    Manderson - Cold feet and burning toes... The only time I get that is when I've been out in the cold and not dressed warm enough (we get into the -20'sC for a few months of the year), and then when I...
  13. Does raynaud's always include a colour change in the affected extremities?

    I am yet undiagnosed with a rheumatic AI but am in the process of being tested (by my GP) after years of dismissing symptoms to "getting older" and unlucky genetics. I'm collecting all my past...
  14. Thanks Rob. I appreciate it. :-) I...

    Thanks Rob. I appreciate it. :-)

    I jokingly call myself a hypochondriac to my husband because over the last few years I seem to get so many flu-like illnesses that never develop into anything,...
  15. Jmail - Thanks for the link. We're not positive...

    Jmail - Thanks for the link. We're not positive my 9 year old has Aspergers but we highly suspect it and his ped also said he could see the signs. Because we homeschool, he doesn't need extra...
  16. Yes!... I was low maintenance! LOL My kids are...

    Yes!... I was low maintenance! LOL My kids are already asking if we have to go to the doctor or labs AGAIN?? You know the whiny tone young kids can use. LOL Thanks for the advice. I will do my...
  17. Thanks Rob. :) I did some reading on Plaquenil...

    Thanks Rob. :) I did some reading on Plaquenil so it's not quite as scary as I first thought. I hope I have guessed wrong that I have Lupus, but I have done the ANA, ENA, ESR, C3,C4, and Rf tests...
  18. Mari - I appreciate you pointing out that thread...

    Mari - I appreciate you pointing out that thread to me. I did not want to imply that i wanted a snakoil salesman type of cure, but I can see now that my post did come across that way. I'm sorry...
  19. Can Lupus be slowed or can we just manage symptoms?

    I'm new to this board and the world of Lupus. I'm in the process of pursuing a diagnosis for my symptoms so I am not yet sure if I have a rheumatic AI, although I have met 4 of the 11 diagnostic...
  20. jmail - "Course, I'm naturally unbalanced..." ...

    jmail - "Course, I'm naturally unbalanced..." LOL :) I wonder if my recent problems are Hashi related. I hope so. But I don't want to take 3 years to be balanced now that I know how to fix a...
  21. LOL You used the "eh" correctly! You can be an...

    LOL You used the "eh" correctly! You can be an honourary Canadian. ;)

    Yep, I'm definitely celiac. Ttg IgA and EMA blood tests are very specific to celiac, which is an AI and not an allergy......
  22. I'm Canadian, and that stereo type is partially...

    I'm Canadian, and that stereo type is partially true, we smile and nod to everybody. LOL
  23. Hi, I'm Nicole - recently diagnosed with AIs

    Hi. My name is Nicole. I'm 38 years old and have recently been diagnosed AI's. I has had various things wrong with me for years but I stopped asking doctors about them over a decade ago because they...
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    Celiac diease is often misdiagnosed as IBS....

    Celiac diease is often misdiagnosed as IBS. Celiacs often joke that IBS is a doctor's way of saying "I Be Stumped". ;) Anyway, those with celiac disease end up with portions of their upper small...
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    I have Hashimoto's and it was undiagnosed for...

    I have Hashimoto's and it was undiagnosed for years. During that 15 year time span my TSH varied wildly from 6.60 to 4.87 two weeks later, to 2.75 seven years later, to 14.85 a few months ago. ...
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