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  1. anndee has other priorities in her life, and is...

    anndee has other priorities in her life,
    and is no longer an active member in this forum.
    she probably will not read this post.
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    it is good when dogs start to take control like...

    it is good when dogs start to take control like that .....
    they are certainly clever animals.
    they have a sixth sense that we still do not understand.
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    unfortunately yes this is common. it would...

    unfortunately yes this is common.
    it would appear that our natural thermostat gets stuck on auto.
    if we start to get cool ... we continue to cool down, until we change our environment.

    likewise...
  4. Thread: Hello

    by steve.b
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    hi glenys, one thing to remember is that there...

    hi glenys,
    one thing to remember is that there is lots of different auto immune disorders.
    and many of the symptoms do overlap.
    it is very hard for anyone to work out the differences between them,...
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    hi Jessica and welcome. yes it is a shame we...

    hi Jessica and welcome.
    yes it is a shame we have to live with this for our entire lives ....
    but the good thing is that now our lives last as long as normal lives.
    with modern medicines ..... if...
  6. hi grace .... whilst i am not a doctor .......

    hi grace ....
    whilst i am not a doctor ....
    normally the term pre lupus or borderline lupus, would infer that the symptoms are not yet showing.

    and that is good. !!!!!!
    treating them now...
  7. hi becky and welcome ... i cannot help you with...

    hi becky and welcome ...
    i cannot help you with the results.
    i know someone else will help with that later.
    but i did want to stop and say hi ......
    HI
  8. hi kc, unfortunately many males do not know how...

    hi kc,
    unfortunately many males do not know how to deal with a something that they cannot fix.
    it is hard for them to see something broken and they are unable to do anything about it.

    I am not...
  9. Thread: SLE Lupus

    by steve.b
    Replies
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    136

    I have been looking into something called...

    I have been looking into something called systemic inflammatory response syndrome SIRS, it is a side effect from having major surgery.
    one of the best at researching it at present is queen mary...
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    hi paul m, there is a few active male members on...

    hi paul m,
    there is a few active male members on here.
    some still work, and therefore are not on here that often.
    others have retired , like myself.

    sorry you have had to join us ..... but glad...
  11. hi perlina, and welcome. it is hard when our...

    hi perlina,
    and welcome.

    it is hard when our body decides to fall apart before we have finished with it.

    I am only 53 and have been battling degenerative problems for a while also.
    I am like...
  12. Thread: my apologies

    by steve.b
    Replies
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    my hugs to you. it is never easy when we...

    my hugs to you.

    it is never easy when we cannot say good bye to family.
    i lost my sister in bad circumstances a few years ago.

    please remember that the rest of the family was there, so she was...
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    hi danyel, I am a 53 yo male with lupus. I...

    hi danyel, I am a 53 yo male with lupus.

    I have not had weight loss as a side effect or know anyone who has it.
    so please look further into the reason for this .

    if your husband would like to...
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    a flare by definition .... is any time that your...

    a flare by definition ....
    is any time that your lupus is not in check ....
    so yes you will still have them.

    methotrexate works by forming a chemical reaction with your folic acid in your body...
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    fecal incontinence is a big problem with me too....

    fecal incontinence is a big problem with me too.
    it makes a lot of sense .... but doctors will not recognise it]
    we have inflammation in our muscles
    (what is our bowels made of?)
    when that muscle...
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    yes the only way I have found so far is the diet....

    yes the only way I have found so far is the diet.
    by reducing the bad things we eat ....
    the stomach has time to reduce the inflammation.
    and we are then able to tolerate a little bit of the bad...
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    hi bee, and welcome. I am also a male with...

    hi bee,
    and welcome.

    I am also a male with lupus.
    and I also have inflamed stomach.

    I get severe ibs
    this is caused by inflammation only.
    for me .... a diet called low fodmap works well.
  18. this is great research .... being done by a great...

    this is great research .... being done by a great country .. mine :)

    hopefully it will be taken to the next step ... and someone will help unlock the required medication.

    it is good to see that...
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    hi Joshua , and welcome. sorry you are having...

    hi Joshua ,
    and welcome.

    sorry you are having all these difficulties ....
    but glad you have found us.

    pleaser look around, add your comments where you feel happy ....
    and ask questions as...
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    hi paula, and welcome. unfortunately no-one...

    hi paula,
    and welcome.

    unfortunately no-one on this site is a doctor ....
    but we can help you to understand some of your notes.
    we are unable to diagnose, and our opinion is only that,... an...
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    chris, many of us have described the way...

    chris,
    many of us have described the way plaquenil works ....
    we all seem to agree that you do not notice it is working ...
    but one day you suddenly realise that you don't hurt like you used to....
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    hi redwolf, there are a few other Australians...

    hi redwolf,

    there are a few other Australians on here.
    there is also some from Qld.

    unfortunately there is no shortcut to diagnosing.
    the more tests that are done ....
    the more that they can...
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    hi chikititalinda, many of us do at some time...

    hi chikititalinda,

    many of us do at some time find out that our mental state has been effected by lupus.
    and the worry is only natural ...
    we fear it will degenerate.

    I have been to many...
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    hi and welcome, unfortunately it is common for...

    hi and welcome,

    unfortunately it is common for people with lupus to also have other ailments as well.
    fibromyalgia is probably one of the most common.

    many people with lupus have also...
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    hi chris, and welcome. I am ex Australian...

    hi chris,
    and welcome.

    I am ex Australian airforce.

    many of us are lucky to get a good balance in our medication.
    when this happens .... life can go on almost as normal.

    we have problems...
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