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  1. Replies
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    hi and welcome. unfortunately yes many of us...

    hi and welcome.
    unfortunately yes
    many of us appear to complain of headaches
    it is listed as a known side effect.

    to me, and my limited understanding .....
    lupus effects our muscles.
    one of...
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    great to hear karma is progressing well I am...

    great to hear karma is progressing well

    I am surprised that red cross lets you donate blood .....
    in Australia, anyone with an auto immune disorder cannot donate,
    because the cause of there...
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    hi Jessica, welcome. sorry I do not remember of...

    hi Jessica,
    welcome. sorry I do not remember of any group.... but I am 1/2 a world away in Australia ....
    hopefully someone else will be along soon who is closer, and they will help.

    but I did...
  4. hi laurie, I am not sure on a lot about...

    hi laurie,
    I am not sure on a lot about benlysta.
    but one of the things I do know ....
    all of this type of medication take time to make any real difference to you.
    they need to build up in your...
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    hi trisha, and welcome. unfortunately, you have...

    hi trisha,
    and welcome.
    unfortunately, you have a common mix of auto immune disorders.
    and I would presume the dryness of texas is not doing your symptoms any favours.

    we have a few other...
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    hi lisa, it is good when the lurkers come in ...

    hi lisa,
    it is good when the lurkers come in .....
    one thing to remember is that there is no positive test for many of the auto immune disorders.
    so doctors have a hard time diagnosing these...
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    firstly let me say fibro is not a made up disease...

    firstly let me say fibro is not a made up disease .....
    many of us on here also have it !!!!!

    also it is an auto immune disorder.
    it is common that if you do not have enough of one particular...
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    i wanted to say hi, i do not know enough about...

    i wanted to say hi,

    i do not know enough about drug induced lupus. so i cannot comment.
    but i did wan tto say hi ......

    HI

    hopefully someone will be able to help you.
    I would presume you...
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    hi Brenda, there is a few other lupus members on...

    hi Brenda,
    there is a few other lupus members on here from Australia.
    some are more active than others.
    I am from western Australia ....
    but I am on here about 5 days a week.
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    hi, and welcome. yes it very reassuring to be...

    hi,
    and welcome.

    yes it very reassuring to be told that you have a title for your problem.
    I am glad you have that reassurance.

    please take the time to read a few of the older posts that re...
  11. hi kels, and welcome. that question is one of...

    hi kels,
    and welcome.
    that question is one of the most common ones that we are asked.

    so the best advice I ca really give you is to read ......
    use our search function,
    and read some of the...
  12. Replies
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    cyber hugs

    cyber hugs
  13. Thread: Kombucha

    by steve.b
    Replies
    13
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    1,859

    Belle, this thread is 4 years old. the people...

    Belle,
    this thread is 4 years old.
    the people who were discussing this have since moved on to other places.
    so sorry I cannot help with a summary of how there tea went.

    I was here in those...
  14. Thread: New girl

    by steve.b
    Replies
    2
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    121

    hi belle666, welcome. there is a few other...

    hi belle666,

    welcome.

    there is a few other members from your home island :)
    they are not always on here, as they are still very active.

    I am glad to hear that you are able to keep positive....
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    hi sairz, I am also from wa. I live in...

    hi sairz,
    I am also from wa.
    I live in Pinjarra.

    there is quite a few other Australians who use this site.
    although not all of them use it consistently.

    please feel free to ask questions...
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    hi sam, and welcome. sorry avatars are not...

    hi sam,
    and welcome.

    sorry avatars are not working at the moment.
    our computer guru has a problem with the program.
    and it is beyond us laymen to fix.

    I live 1/2 a world away, and our health...
  17. Thread: new to this

    by steve.b
    Replies
    2
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    340

    hi and welcome .... I presume the medication you...

    hi and welcome ....
    I presume the medication you are using is in the form of plaquenil.
    it is a very common medication for rheumatoid arthritis and lupus.
    it is also reasonably common for many...
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    hi vj ... I am 54, going 55 so I do understand ...

    hi vj ...
    I am 54, going 55 so I do understand

    "what is happening to my body"

    you have already been diagnosed with a few different auto immune disorders .....
    it is hard to sort out the...
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    MOTHERS DAY in australia

    as it is mothers day today, sunday.
    I thought it only appropriate to say happy mothers day to the sites mother

    HAPPY MOTHERS DAY SAYSUSIE

    thank you for all you have done for us through this...
  20. Replies
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    was it cost prohibitive ? I find many of these...

    was it cost prohibitive ?
    I find many of these things , when added to my overall weekly shopping become rather expensive to maintain.
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    hi Jackie, and welcome. firstly it is good to...

    hi Jackie,
    and welcome.
    firstly it is good to see that you have a pro-active doctor.
    many of us take a long time to get a diagnosis.
    you have had a diagnosis and basic medication very quickly...
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    hi lizzie, and welcome. it is unfortunately...

    hi lizzie,
    and welcome.
    it is unfortunately common to get multiple diagnosis's like this.

    the reason actually makes sense, if we stop to think about it.
    they are all auto immune disorders.
    we...
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    sorry not sure, but offering cyber hugs

    sorry not sure,
    but offering cyber hugs
  24. Thread: Supplements

    by steve.b
    Replies
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    2,768

    an interesting understanding. it was insightful....

    an interesting understanding.
    it was insightful.

    thank you
  25. Replies
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    hi garren and welcome. please ask as you feel...

    hi garren and welcome.
    please ask as you feel the need.
    sorry but your questions do not appear straight away.
    to start with all posts need to be vetted by one of the members.
    this is because we...
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