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    Vitamin D and Pain!!!

    I am really peeved that in the 6 years I've had lupus my "expert" of a doctor never thought to check my vitamin D levels. My GP suggested it b/c Lupus patients avoid the sun and therefore are likely...
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    Took Cymbalta

    Wanted to try out the Cymbalta...took 60mg for about 3 months...some pain relief but I had really miserable side effects...sweating (lots), felt really sleepy and ill for first few days, stopped...
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    More stuff @ Cedars

    Thanks for the info...I recently heard about Cedar's Rehab program for fibromyalgia and chronic pain sufferers. It's 6 weeks of coping strategies, diet, exercise, group and individaul therapy,...
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    here's what happened...

    I hated the Cymbalta, every time I increased the dose I was either so exhausted or agitated and so "drunk" I couldn't do anything. I suppose it helped the pain a bit but I stopped sleeping and...
  5. Thread: plaquenil

    by bonnie
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    If you can afford to take the name brand...

    If you can afford to take the name brand plaquenil instead of generic, many people have told me it causes less tummy problems. I switched and it really seemed to help me! The tummy issues are...
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    happened to me...

    For all intents and purposes plaquenil is and immunosuppresant so it can make you more succeptible to minor infections. I have been having the same problem...it seemed every time I got lazy about...
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    I so empathize with what you are going through. ...

    I so empathize with what you are going through.

    I don't know what pain meds will work best for you and I very much understand that you have to do what you can to get some relief from the pain so...
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    I'm so surprised no one has tried it. I'm...

    I'm so surprised no one has tried it.
    I'm starting it today...my doctor is v. excitd about it and seems to think that the effects can be longer lasting.

    I do want to say those studies were...
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    Anyone tried Cymbalta?

    I've heard a lot of good things about it...and it's on it's way to being approved for fibromyalgia. I do suffer from low grade depression and fibromyalgia and my docs think it's a good idea...
    ...
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    My Doctor is both. He has a PhD in family...

    My Doctor is both. He has a PhD in family medicine but he's also a naturopath, etc.
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    Thanks for the responses, Marycain is right...

    Thanks for the responses, Marycain is right quinton should only be taken if your doctor is on board with it.

    I appreciate the food suggestions, my MIL runs food services for CU Bolder and she...
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    some new things that are helping me

    So I have been seeing these new intergrative medicine doctors on top of my regular rheumy to see if I can get any better. They focus on effective therapies from all avenues, western and otherwise,...
  13. Thread: Hi, I'm Bonnie

    by bonnie
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    Update

    So I've had a few visits with this new intergrative medical team that I posted about earlier. I was concerned that it would be new age voodoo, in reality it turned out to be the complete opposite. ...
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    I had very similar symptoms to what your talking...

    I had very similar symptoms to what your talking about. My throat hurt so badly I had stopped speaking all together and the pain seemed to radiate from my throat to my ears to the rest of my body. ...
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    I reasearched DLPA after reading the post and...

    I reasearched DLPA after reading the post and it's so interesting and promissing! Lots of doctors talking about it. I can't take it because I'm trying to get pregnant but I will keep it in my mind...
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    I know how hard that is. I have been trying to...

    I know how hard that is. I have been trying to talk to my doctor like that for ages! You will be my inspiration at my next visit.
  17. Thread: Hi, I'm Bonnie

    by bonnie
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    I agree, I thought the whole G. Paltrow thing was...

    I agree, I thought the whole G. Paltrow thing was enough to put me off the whole deal. The looking at the whole picture thing medically really interests me too though. I loved my biopsychosocial...
  18. Thread: Hi, I'm Bonnie

    by bonnie
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    Thanks everyone for making me feel so welcome! ...

    Thanks everyone for making me feel so welcome! Saysusie, we live in LA (hollywood hills) and Santa Barbara. My husband works on and off in LA (actor) but SB is really where we feel at home so we...
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    What would you call lupus + sjorgrens +...

    What would you call lupus + sjorgrens + fibromyalgia, it seems to bug people when I say I have lupus only later to explain that I have the other two. I do all right with it all but it makes me sound...
  20. Hi veryhappy. I was diagnosed with SLE 5 years...

    Hi veryhappy. I was diagnosed with SLE 5 years ago and have just started trying to get pregnant, I'm really excited someone else here is in the same spot! I completely understand that it's...
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    When your body is not producing enough saliva, as...

    When your body is not producing enough saliva, as it does with sjogrens, it can cause all sorts of problems bacause your digestive system is missing a critical element to it's process. Acid in the...
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    I was peeing what seemed like every hour during...

    I was peeing what seemed like every hour during the day and 3 or 4 times a night! I worried too that it was my kidneys but it turned out to be caused by Sjogrens syndrome, which people with lupus...
  23. Thread: TMJ?

    by bonnie
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    I understand, I used to have terrible TMJ from...

    I understand, I used to have terrible TMJ from grinding my teeth in my sleep, I also have sjogrens which made the grinding much more damaging. I would wake up with new chips in my teeth all the...
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    The Costochodritis pain is no joke, I thought it...

    The Costochodritis pain is no joke, I thought it was so much more painful than pleurisy. It made my entire ribcage hurt, reminded me of when I broke my ribs horseback riding as a kid. In fact my...
  25. Thread: Hi, I'm Bonnie

    by bonnie
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    Hi, I'm Bonnie

    My name is Bonnie, I'm 26 and was diagnosed with Lupus 5 years ago, shortly after I married my sweet husband. He's the one who found this site for me! We live in southern california with our 3 dogs...
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