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  1. Thread: Skipping meds

    by steve.b
    Replies
    2
    Views
    39

    I suggest talking to your chemist. they can tell...

    I suggest talking to your chemist.
    they can tell you which ones are critical to not skip.
    also they may be able to assist with emergency supplies.

    some do / some don't.
  2. Replies
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    larz ..... my lupus is supposedly the best it...

    larz .....
    my lupus is supposedly the best it has been in over 8 years of treatment.
    but my overall health is at its lowest.

    not everything is lupus.
    but in saying that ... it is a catch 22...
  3. hi larz, some of us are still around. others...

    hi larz,
    some of us are still around.
    others have decided that they have other priorities is life.
    the idea of a support network is that people are free to come and go, as they feel the need.
    ...
  4. sorry I am not sure, but I did want to say ........

    sorry I am not sure,
    but I did want to say .....

    WELCOME HOME !!!!!!
  5. Thread: Good morning

    by steve.b
    Replies
    10
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    156

    morning Sharon, I live 1/2 a world away .... so...

    morning Sharon,
    I live 1/2 a world away ....
    so I have no idea about doctors.
    but I did want to say hi ...

    HI.
  6. Thread: Cellulite

    by steve.b
    Replies
    6
    Views
    746

    hi pyrite, and welcome. many of us are...

    hi pyrite,
    and welcome.

    many of us are "cuddly"

    our medications do often have the side effect of weight gain.
    and fatigue is a common symptom for most of us.

    so this combination does...
  7. Thread: A Bit Nervous

    by steve.b
    Replies
    2
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    74

    hi, and welcome. one of the problems we all...

    hi,
    and welcome.
    one of the problems we all fall into is that we become 1/2 educated.
    and then learn enough to scare ourselves ..... but not enough to educate ourselves yet.

    the test you have...
  8. Replies
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    375

    one of the big problems with doing our own...

    one of the big problems with doing our own research is that there is so many different possible outcomes.
    there is over 60 auto immune disorders.
    some books have over 100 disorders listed. others...
  9. Replies
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    I have commented on your other post. it is often...

    I have commented on your other post.
    it is often confusing to us if you start two threads about the same subject .
    we usually read all threads no matter where they are located.
    so people will...
  10. new research all women should hope takes off

    http://lupusresearchinstitute.org/lupus-news/2015/07/13/lupus-research-institute-funded-researcher-pinpoints-role-biofilms-lupus

    this lady is researching infections that are caused by thin films...
  11. Replies
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    138

    hi Helena, welcome. please tell us a little...

    hi Helena,
    welcome.
    please tell us a little about yourself.
    sorry you have had to come here ....
    but I am glad you have found us.
  12. Replies
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    2,904

    Hi secoplin, this thread is very old. and the...

    Hi secoplin, this thread is very old. and the members are unfortunately no longer active on here.
    we leave the threads for us to read, as the information they contain is still very important and...
  13. Replies
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    a positive ana test is an indicator that your...

    a positive ana test is an indicator that your body is fighting some form of inflammation.

    if the rash is not annoying you ... it is your call.
    do you spend your money to find out now, or wait...
  14. Replies
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    185

    hi, sorry I am not up on results, so I cannot...

    hi,
    sorry I am not up on results,
    so I cannot answer ....
    but I did want to say hi.

    one of the things you have to remember is your immune system is a good computerised system.
    it is designed...
  15. Replies
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    hi, and welcome. you are welcome here .... even...

    hi,
    and welcome.
    you are welcome here .... even if you do not have lupus.
    there is lots of other auto immune disorders that have very similar symptoms.

    and doctors cannot run a test to check...
  16. Replies
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    Talencia, there is a section called "lauri's...

    Talencia,
    there is a section called "lauri's lounge" ... it is for all of our general chats.
    anything that does not fit into a specific section automatically fits into this section.

    and it also...
  17. anndee has other priorities in her life, and is...

    anndee has other priorities in her life,
    and is no longer an active member in this forum.
    she probably will not read this post.
  18. Replies
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    224

    it is good when dogs start to take control like...

    it is good when dogs start to take control like that .....
    they are certainly clever animals.
    they have a sixth sense that we still do not understand.
  19. Replies
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    unfortunately yes this is common. it would...

    unfortunately yes this is common.
    it would appear that our natural thermostat gets stuck on auto.
    if we start to get cool ... we continue to cool down, until we change our environment.

    likewise...
  20. Thread: Hello

    by steve.b
    Replies
    4
    Views
    248

    hi glenys, one thing to remember is that there...

    hi glenys,
    one thing to remember is that there is lots of different auto immune disorders.
    and many of the symptoms do overlap.
    it is very hard for anyone to work out the differences between them,...
  21. Replies
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    hi Jessica and welcome. yes it is a shame we...

    hi Jessica and welcome.
    yes it is a shame we have to live with this for our entire lives ....
    but the good thing is that now our lives last as long as normal lives.
    with modern medicines ..... if...
  22. hi grace .... whilst i am not a doctor .......

    hi grace ....
    whilst i am not a doctor ....
    normally the term pre lupus or borderline lupus, would infer that the symptoms are not yet showing.

    and that is good. !!!!!!
    treating them now...
  23. hi becky and welcome ... i cannot help you with...

    hi becky and welcome ...
    i cannot help you with the results.
    i know someone else will help with that later.
    but i did want to stop and say hi ......
    HI
  24. hi kc, unfortunately many males do not know how...

    hi kc,
    unfortunately many males do not know how to deal with a something that they cannot fix.
    it is hard for them to see something broken and they are unable to do anything about it.

    I am not...
  25. Thread: SLE Lupus

    by steve.b
    Replies
    8
    Views
    554

    I have been looking into something called...

    I have been looking into something called systemic inflammatory response syndrome SIRS, it is a side effect from having major surgery.
    one of the best at researching it at present is queen mary...
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