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  1. Thread: Cytoxan?

    by tropically
    Replies
    3
    Views
    1,129

    My wife was on it. She didn't loose hair but...

    My wife was on it. She didn't loose hair but again it depends on the dosage and the person. It varies hugely.
    It did not work for her, we eventually switched to rituxan, which is suppose to be...
  2. Replies
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    736

    Kidney transplant or wait

    Hi
    My wife has renal failure, but her kidneys are not yet that bad enough that she has to go on a transplant. However I'm noticing she is having increasing problems, like anemia, calcium build up...
  3. Thread: Pregnancy

    by tropically
    Replies
    15
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    2,551

    Hi all, My wife has lupus with stage 5 kidney...

    Hi all,
    My wife has lupus with stage 5 kidney disease. We were cotemplating having kids now or waiting till she got a transplant.
    We went through a surrogacy program earlier this year (even with...
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    2,444

    Kidney problems

    Hi everyone. I wanted to share our experiences. My wife is at stage 5 and her kidneys are almost gone.
    We underwent Chemotherapy last year and that did not work for her.However as a last resort the...
  5. Thread: CELLCEPT

    by tropically
    Replies
    20
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    5,054

    thats odd, cause my wife takes it with food. The...

    thats odd, cause my wife takes it with food. The rhuemy said to take it after the meal. Must ask again.
  6. Thread: CELLCEPT

    by tropically
    Replies
    20
    Views
    5,054

    My wife is on cellcept. She is taking 2000mg a...

    My wife is on cellcept. She is taking 2000mg a day. However her prednisone went down from 20 mg to 1mg every alternate day.
    We are waiting to get off the prednisone in a couple of weeks.\
    And yes...
  7. Replies
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    trhanks susie. just one thing I would like to...

    trhanks susie. just one thing I would like to particpate more on the board and want to encourage others to particpate more. Let me know if you have any suggestions.
  8. Thread: CELLCEPT

    by tropically
    Replies
    20
    Views
    5,054

    CELLCEPT

    Anyone on cellcept and has anyone experienced any problems such as not working.

    please help[/u]
  9. Replies
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    2,736

    Saysusie I undestand that less stress will help...

    Saysusie
    I undestand that less stress will help reduce lupus. My wife seems not to understand the fact. She works as a computer quality engineer. and it seems that stress is part of her job. I...
  10. Thread: Remedies?

    by tropically
    Replies
    5
    Views
    1,873

    I have heard that Aloe Vera juice is also a good...

    I have heard that Aloe Vera juice is also a good source for boosting immune system. Give it a try.

    thanks
    tropically.
  11. Thread: Cellcept

    by tropically
    Replies
    0
    Views
    1,097

    Cellcept

    Hi
    Is nayone taking cellcept for lupus nephritis. One of my Rhuematolgist told me that this may be an option against cytoxan. Anyone have any experiences to share.

    thanks
    tropically
  12. Thread: ALoe Vera

    by tropically
    Replies
    1
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    1,153

    ALoe Vera

    Any one used Aloe vera or hae tried it . Anyone noticed any difference. Would appreciate the feedback

    thanks
    tropically
  13. Replies
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    1,851

    how does the Aloe vera juice work for you. Any...

    how does the Aloe vera juice work for you. Any help in remission
  14. Thread: Mirac

    by tropically
    Replies
    1
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    1,040

    Mirac

    Hi
    I have a friend whose wife is in Unv.of Nevada( Bio chemist). She had asked one of her professors about lupus and he quoted a site
    http://www.**********.com/ to go to and about the product...
  15. Replies
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    Hi I just posted thesame question for lupus...

    Hi
    I just posted thesame question for lupus nephrtis. My wife has been diagnosed and has had her biopsy done. We are waiting for the results on that.
    As for words of wisdom. I would not worry too...
  16. Replies
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    1,195

    lupus nephritis

    My iwfe is diagnaosed with lupus nephritis.We under went a biopsy today to confirm the fact. Anyone undergone the same situation and can provide some guidance.

    thanks so much
    tropically
  17. Replies
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    Hi I myself am not a patient however my wife...

    Hi
    I myself am not a patient however my wife is. We live in Massachusetts USA. She was diagnosed a 1.5 years ago. All I can do is help support your husband if needed. It's usually the spouse who...
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    New to site. Wanted to intro. myself

    Hi
    My wife was daignosed with lupus about 1.5 years ago. she recently has been diagnosed tih lupus nephhritis. :cry: We are in a stake of shock with the diagnosis even though we knew that it could...
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