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  1. Replies
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    kidney/renal biopsy

    Hello all,

    I had a kidney biopsy performed on Monday. I stayed over night for monitoring and when I awoke on Tuesday morning my doctor told me that I had to stay an additional day because my...
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    Someone else with pernio! I haven't felt so...

    Someone else with pernio! I haven't felt so normal in a while! :)

    Pernio is actually how I was diagnosed with Lupus. The sore was actually cut off of my toe for a biopsy. So I'm not really...
  3. Thread: Memory Loss

    by theLword
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    My office is also COVERED in post-it notes....

    My office is also COVERED in post-it notes. Without them I would be completely lost. I'm wondering if anyone has issues with long-term memory as well? I have always had issues with my long-term...
  4. Thread: Lupus Loop!

    by theLword
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    230

    Lupus Loop!

    Hello All!

    I started a new position at my job so I apologize for being MIA recently, but I've still been thinking of you all!

    I wanted to share some great news with everyone. We often only turn...
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    Welcome Sallie! :)

    Welcome Sallie! :)
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    Sticky: Hi DeeMarie, I read your post asking about...

    Hi DeeMarie,

    I read your post asking about rashes from the sun. I can only speak from personal experience, so I'm not sure what the medical response to your question would be. But, I have fair...
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    Welcome C! This forum was very supportive of...

    Welcome C!

    This forum was very supportive of me when I was going through the diagnosis process and I hope it's the same for you! My advice is just to continue what you've been doing. Educate...
  8. Thread: hello there!

    by theLword
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    Welcome GingerGirl, I'm happy you're finally...

    Welcome GingerGirl,

    I'm happy you're finally getting some answers! I hope you find the love and support that I have found here.
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    I completely agree with ritzbit, why did they...

    I completely agree with ritzbit, why did they make you do this? My raynaud's is always the worst while at the doctor's office since it's always freezing! Well, on a positive note if it is raynaud's...
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    Hi Marj, I'm actually having the same exact...

    Hi Marj,

    I'm actually having the same exact issue. Well, same execpt I only had trace protein in my urine once. But I've had 3 Urine Analysis within the past month and all are positive for blood....
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    Hi Wendy, I'm sorry to hear about all of...

    Hi Wendy,

    I'm sorry to hear about all of this. I've suffered from Raynaud's for most of my life and I would definitely talk to your doctor about the possibility of having it. The aching may or...
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    I'm sorry to hear about this Hunniebun. Hopefully...

    I'm sorry to hear about this Hunniebun. Hopefully it's just IBS. I've gone back and forth with thinking that I have Celiac's, but the census so far has just been IBS for me (not that either is very...
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    I definitely just started to read my orinigal...

    I definitely just started to read my orinigal post and thought to myself.. wow we have a lot in common.. and then I realized it's because I wrote the post! haaaa Lupus moment much? :)

    Tracy- I...
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    Hi Julian and all! I was recently diagnosed...

    Hi Julian and all!

    I was recently diagnosed with Lupus and I can completely relate to a couple of things that you addressed back in your first post (sorry I'm just jumping into this I didn't get...
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    Hi Maegan, The results look good! I know...

    Hi Maegan,

    The results look good! I know that's frustrating when you're trying to figure things out though. You sound seriously just like me. Every time I look at my results I'm always thinking.....
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    Hi Ritzbit, I'm happy to hear that you've been...

    Hi Ritzbit,

    I'm happy to hear that you've been feeling a lot better! I actually just got test results back last week and I have protein and blood in my urine. I've had kidney stones, so I think...
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    Hi Maegan, I guess it's possible that your...

    Hi Maegan,

    I guess it's possible that your ANA could be positive because of the bed bugs. I was supposed to have my 3 month follow-up blood work a couple of weeks ago and my doctor put it off...
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    Thanks for Sharing Debbie! That had to be a...

    Thanks for Sharing Debbie!

    That had to be a really scary experience. When I'm dizzy I usually became pretty disoriented, so I can't even imagine waking up in the middle of the night and feeling...
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    Hello all, I was actually reading about...

    Hello all,

    I was actually reading about Plaquenil side effects yesterday. Although I haven't personally experienced it, hair loss and bleaching are both listed as side effects. Although I'm not a...
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    Welcome Starryeyes! I studied aboard in London...

    Welcome Starryeyes!

    I studied aboard in London during college. So, England holds a very happy place in my heart! Happy you can find support from all of the world! :)
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    Hi Jmail, I've had both of the types of...

    Hi Jmail,

    I've had both of the types of vertigo you described. I get the manageable kind more often though. It usually lasts a couple of days and it's on and off. I might be severely dizzy for a...
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    If I hear that I must have bad allergies one more...

    If I hear that I must have bad allergies one more time it'll drive me insane. If I have such horrible allergies how come I have vertigo all year round and wouldn't allergy tests come back positive if...
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    Thanks for the response! I've been getting really...

    Thanks for the response! I've been getting really bad vertigo (similar to the dizziness that you're describing) on and off. I was diagnosed around March, so I'm coming up 4 months on Plaquenil. I...
  24. Thread: Hello!

    by theLword
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    Welcome! It seriously makes my day when I read...

    Welcome! It seriously makes my day when I read posts like this. Your wife is very lucky to have you. Your support in itself will definitely have a positive effect on her health.
  25. Thread: New member

    by theLword
    Replies
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    Welcome Mari! I'm so sorry to hear about your...

    Welcome Mari!

    I'm so sorry to hear about your loss and I hope that you find conditional support from this site.
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