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  1. Replies
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    I would suggest going to see a rheumatologist...

    I would suggest going to see a rheumatologist ....
    they are the specialist that deals with our type of problems.

    I would also talk to a chemist about folic acid supplements.
    please do not take...
  2. if you are looking for reliable "fodmap" details....

    if you are looking for reliable "fodmap" details.
    go to the website for monash university in Australia ......
    they are credited as discovering fodmap.
    and have quality information.

    I use them :)
  3. I have found natural sugars to be harder to stop...

    I have found natural sugars to be harder to stop taking.
    the quality of sugar they supply is quite strong, so please be careful how much you take.

    a dietician can help if you need advice.
  4. I can only presume she has no knowledge of lupus...

    I can only presume she has no knowledge of lupus ....
    so she will not treat what she has no understanding of.

    if it was me .....
    I would seriously be looking for another doctor.
    I use my gp as...
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    hi allie, and welcome. there are a few of us...

    hi allie, and welcome.

    there are a few of us "aussies" on here.

    please remember you are not alone with this.
  6. Thread: test results

    by steve.b
    Replies
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    119

    unfortunately it is impossible to tell if someone...

    unfortunately it is impossible to tell if someone has lupus ...
    just from a blood test.

    that is why we need to go and see specialists like a rheumatologist.
  7. hi, and welcome ... it is good to see that...

    hi,
    and welcome ...

    it is good to see that your medical team are keeping active to help you.
    many of the members here find it hard to find such an active medical team, you are lucky with them.
    ...
  8. Replies
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    hugs ..... it is hard to understand why. ...

    hugs .....

    it is hard to understand why.

    but life is still worth living

    hope you find some peace.
  9. Replies
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    1,038

    oluwa, thinking of you, and hoping you can...

    oluwa,
    thinking of you,
    and hoping you can find answers.
  10. Replies
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    I have a female friend that has RA. she has good...

    I have a female friend that has RA.
    she has good periods and bad periods.
    she also has had to change medication a few times, due to side effects.
    every time she changes medication, the ra flares,...
  11. a good thing to use on tightened muscles .... an...

    a good thing to use on tightened muscles ....
    an ultrasound machine.

    they sell small handheld ones, (designed for facials), fairly cheaply.
    there is 3 settings ...
    light for skin,
    strong for...
  12. Replies
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    thank you for your openness. admitting you...

    thank you for your openness.

    admitting you need help is not easy.
    openly telling people you need help is harder.

    I too have had to seek help for my emotions.
    lupus has a lot to answer for.
    ...
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    hi brad, and welcome. it is always good to...

    hi brad,
    and welcome.

    it is always good to hear someone who is actively supporting there partner.
    all to often this is not the case.
    so, thank you for caring enough to find answers.

    I always...
  14. Replies
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    hi, and welcome. stress can cause most of us...

    hi,
    and welcome.

    stress can cause most of us extra problems.
    please use the search feature on here, to find possible solutions to reduce your stress levels.

    a 6 week wait to see a...
  15. hi, and welcome. plaquenil is on of the more...

    hi,
    and welcome.

    plaquenil is on of the more common medications for auto immune problems.
    using it short term usually does not cause problems.
    and if the dermatologist is correct ........
  16. Thread: New Here

    by steve.b
    Replies
    2
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    345

    hi and welcome. there are many of us who have...

    hi and welcome.
    there are many of us who have had lupus for many years ....
    please tell us a little more about yourself,
    and some of the issues you are facing .....
    we hopefully can share some of...
  17. Replies
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    980

    ( ( ( h u g s ) ) )

    ( ( ( h u g s ) ) )
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    tinnitus is a listed secondary condition from...

    tinnitus is a listed secondary condition from lupus.....
    so yes it is highly possible.


    I have tinnitus that does not respond well to normal treatments ....
    so I am presuming inflammation is a...
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    hi Carolyn. I just wanted to stop bye and say hi.

    hi Carolyn.
    I just wanted to stop bye and say hi.
  20. Replies
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    hi sandy, and welcome. unfortunately it is...

    hi sandy,
    and welcome.

    unfortunately it is not uncommon for lupus to effect our brains.
    one of our moderators (tgal) also has bad issues with cns involvement.
    I have mild involvement.

    please...
  21. Replies
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    lupus claim a grand lady

    http://www.wwltv.com/story/entertainment/events/mardi-gras/2014/12/05/mardi-gras-lois-lynn-watkins/19958327/

    for many of us ..... modern medicine means our lupus does not shorten our lives.

    but...
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    congratulations .... and well done

    congratulations .... and well done
  23. Replies
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    hi Justine, and welcome. it is always...

    hi Justine,
    and welcome.

    it is always difficult when we are in a flare,
    I hope when things calm down within you,
    you will find it easier to find work.

    please take the time to read a few of...
  24. Replies
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    great to hear the progress. glad it is working...

    great to hear the progress.

    glad it is working out so well.

    how are things financially,
    are you working?
  25. Replies
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    hi cat, sorry I have no information for you...

    hi cat,
    sorry I have no information for you ......
    but I did want to say hi

    HI
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