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  1. Thread: new to group

    by Creekbank
    Replies
    4
    Views
    298

    My heart goes out to you. I have only been...

    My heart goes out to you. I have only been experiencing Lupus for 15 months and it has taken it's toll on me both physically and emotionally. I am so sorry your husband does not understand. We all...
  2. Thread: Grrr!

    by Creekbank
    Replies
    6
    Views
    368

    The run around from doctors can be very...

    The run around from doctors can be very frustrating for us. I have been getting this as well from doctors. Please stay persistent in finding the answers you deserve. I hope you find the answer soon....
  3. Replies
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    180

    Happy Birthday!! Hope you have a wonderful day!...

    Happy Birthday!! Hope you have a wonderful day!
    Creekbank
  4. Replies
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    648

    Jaynie, I also have the brown spots and scars...

    Jaynie,

    I also have the brown spots and scars from lesions on my face. I was always told I didn't look my age. I am 33 now and I absolutely hate mirrors. I have deep purple/black rings under my...
  5. Replies
    5
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    144

    ruziska, I learned some valuable information...

    ruziska,

    I learned some valuable information from them on starting the process of applying, but she said that was all they could do. I appreciate the link to them. I was completely lost before I...
  6. Replies
    5
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    144

    I contacted my local center. They were nice and...

    I contacted my local center. They were nice and advised me to start my disability claim. They did tell me they couldn't help me any further than that. I kind of thought they would help guide me along...
  7. Replies
    11
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    419

    Miss DIY, Welcome to LWL. We are all here to...

    Miss DIY,

    Welcome to LWL. We are all here to support and listen to you always.

    I am 33 years old with a husband and 2 kids. I am one who has not been formally diagnosed, but all signs point to...
  8. Replies
    4
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    275

    Hi Anna, I also had that happen to me. In June...

    Hi Anna,

    I also had that happen to me. In June I was doing good. I was starting to feel better. I did a few things over July 4th and that was it. Back into this nasty flare. I have had fevers...
  9. Replies
    7
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    368

    PearlGirl, I am like you, have kids in the...

    PearlGirl,

    I am like you, have kids in the home all day. My husband works and I can't afford to be on some medication that's going to make me groggy. The doctor's say "how do you treat your pain...
  10. Replies
    10
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    842

    oluwa, You are so kind to send all this...

    oluwa,

    You are so kind to send all this information. I found them to be very helpful to me. I feel I meet most of their qualifications for auto-immunity disorders. I have all my med files for the...
  11. Replies
    10
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    842

    ruzisha, I called my local center for...

    ruzisha,

    I called my local center for independent living. They were helpful with some filing information. Thank you for sending the link.
    Creekbank
  12. Replies
    10
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    842

    heather 123, I am sorry to hear you suffer...

    heather 123,

    I am sorry to hear you suffer these things also. It is a struggle for us everyday. I hope you stay strong through this. Have you found anything that helps you with these symptoms?
    ...
  13. Replies
    10
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    842

    Oluwa, Thank you for the valuable...

    Oluwa,

    Thank you for the valuable information. I am starting my claim for disability and I know it will be a long road ahead. Do you think I should get a lawyer right way or wait until denied the...
  14. Replies
    6
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    191

    I was under the impression they mailed you a...

    I was under the impression they mailed you a copy, but it is a downloadable journal you print out.
  15. Replies
    6
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    191

    Thank you for sharing this. I have been keeping a...

    Thank you for sharing this. I have been keeping a journal, but I like this form with the calendar. I am always forgetting things.
  16. Replies
    15
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    432

    ruziska, I am so sorry you have to deal with...

    ruziska,

    I am so sorry you have to deal with this at your workplace! They should be ashamed of themselves for acting this way. They are supposed to be advocates for you, not discriminating against...
  17. Replies
    16
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    1,308

    Lucky7, I can relate to the driving ordeal. I...

    Lucky7,
    I can relate to the driving ordeal. I haven't been comfortable with driving for about a year. Brain fog and pain are the main reasons for me. Some days I am ok, but others are not. My pain...
  18. Replies
    2
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    876

    I am facing the same thing with doctors I am...

    I am facing the same thing with doctors I am seeing. I have been to my family doc, 2 Rheumatologist, orthopedic, and Nerve Specialist. I am on the way to a third Rheumatologist! I feel like I am not...
  19. Replies
    16
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    1,308

    You are so right with this one! I learned about 3...

    You are so right with this one! I learned about 3 weeks ago, how quickly things can go downhill. I was battling general inflammation in the body,. It built up so quickly my heart and lungs built...
  20. Replies
    6
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    2,145

    Mel7, You are always welcome. I have found much...

    Mel7,
    You are always welcome. I have found much support from this site. I also have to watch people do things and think "That used to be me doing that." I live on a farm and love to garden. I...
  21. Replies
    10
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    842

    Thank you Steve. I appreciate the response and...

    Thank you Steve. I appreciate the response and the suggestion.
  22. Replies
    10
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    842

    Need some advise on Disability

    I have been dealing with Lupus related symptoms for a year now. Looking back, I started having symptoms in my early years, but in the last year, I have declined in health. I have limited mobility,...
  23. Replies
    16
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    1,308

    Oluwa, Thank you for sharing that because I...

    Oluwa,

    Thank you for sharing that because I feel the same way about feeling ditzy in conversation. That happens to me all the time now. I almost want to tell people before hand, "I am not drunk or...
  24. Replies
    16
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    1,308

    Thank you for posting this article. For a while...

    Thank you for posting this article. For a while you think your losing your mind. I can't remember some things from one day to the next. I did go out and buy a lot of paper to keep notes for myself....
  25. Replies
    5
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    204

    I believe emotional stress can take a drastic...

    I believe emotional stress can take a drastic toll on your body. I will keep you and your family in my prayers.
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