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  1. Thread: I'm new

    by jennie
    Replies
    11
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    3,045

    Good luck with your kidney checkup. My mouth...

    Good luck with your kidney checkup.
    My mouth is ok now, its all healed. I've just got the usual aches, they're not bad, just annoying.
    I'm starting a part time traineeship in clerical work this...
  2. Thread: I'm new

    by jennie
    Replies
    11
    Views
    3,045

    Hi Missy I'm back down to my normal dose of...

    Hi Missy

    I'm back down to my normal dose of prednisone. And yes I'm left with a lovely case of acne. Not to mention the weight gain. And I'm now getting a real dose of PMS, and I've just finnished...
  3. I hear you, I'm 36 and when I see healthy 36...

    I hear you,

    I'm 36 and when I see healthy 36 year olds getting on with there lives, I get a little jealous. And I also find it frustrating trying to explain to people why I can't do certain...
  4. I hope you feel better soon. Its such an...

    I hope you feel better soon. Its such an unpredictable disease. I get bad joints too. My last bad flare was at Christmas.
    Have you had to increase your medication this time?

    Take care
    Jennie
  5. Hello, I think I know how you feel. I was...

    Hello,

    I think I know how you feel. I was diagnosed late last year. Before this I spent about 8 months totally bedridden. I had to leave my job as the work was too physical. So everything in my...
  6. Hello Laney, I was diagnosed last year. But I...

    Hello Laney,

    I was diagnosed last year. But I can now reckognise symptons from years back.
    Do you get flare ups often? How do they effect you?

    Cheers
    Jennie
  7. Thread: I'm new

    by jennie
    Replies
    11
    Views
    3,045

    I know what you mean about not sleeping, and I'm...

    I know what you mean about not sleeping, and I'm trying really hard to not be grumpy.
    I'm sorry to hear about your renal trouble. Have you had chemotherepy before? My kidneys were'nt so badly...
  8. Thread: I'm new

    by jennie
    Replies
    11
    Views
    3,045

    I didn't know about checking your heart and lungs...

    I didn't know about checking your heart and lungs while coming off prednisone :shock: I have a great doctor but I guess with this condition you really have to keep yourself informed.
    Thanks for the...
  9. Replies
    35
    Views
    9,953

    sunlight

    I was diagnosed late last year. I live in Australia and staying out out the sun can be annoying. I get sick of covering myself with sunscreen everytime I step out of my front door
  10. Thread: I'm new

    by jennie
    Replies
    11
    Views
    3,045

    Hello, Thanks for the message. I have arthitic...

    Hello,
    Thanks for the message.
    I have arthitic joints (hands feet and knees mostly) I have had some renal involvement, but no damage has been done. And the usual 'Lupus fog' I can be very...
  11. Thread: I'm new

    by jennie
    Replies
    11
    Views
    3,045

    I'm new

    Hi everyone. I'm new to this sight.
    I was diagnosed with sle late last year. I'm not working at the moment so isolation and boredom are my biggest problem right now.
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