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  1. Diagnosed two years ago with connective tissue disorder/mild lupus

    It has been a while since I posted anything on here but i look at it often. I have a question...I am 40 years old 5'4" weighing 133. I have been diagnosed with a connective tissue disorder/mild...
  2. I am truly sorry you are feeling this pain. I...

    I am truly sorry you are feeling this pain. I have been diagnosed with lupus and have had some really weird things happen and you just don't know if all symptoms are lupus or if there is something...
  3. Thank you all so much for your replies. My...

    Thank you all so much for your replies. My Rhuemi called back and said she believes it is the Lupus and the inflammation that I have. That the inflammation is affecting a nerve in my shoulder. My...
  4. HELP...Muscle Fatigues Fast and then pain..Is that part of lupus?

    I was finally diagnosed 5 months ago with Lupus and Raynauds and Livido Reticularis. I also have female issures being watched right now and a tricuspid and Mitral valve regurgitation. I have had...
  5. Thread: plaquenil

    by Ronnie
    Replies
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    2,127

    lynday, I just started my plaquenil two days...

    lynday,
    I just started my plaquenil two days ago. My doc told me it takes 3 to 6 months before relief of symtoms. The only thing I have noticed was upset stomach. I took my doses at night. The...
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    Finally Diagnosed.

    Well it has taken 18 months to get the diagnosis. I have seen 3 rheumi's. First two said Connective Tissue disorder. Second one said probably Lupus but doesn't want to say that until blood shows...
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    996

    I just wanted to let you know that I kinda went...

    I just wanted to let you know that I kinda went through what you are going through. I was in an accident 18 months ago and had severe pain from 3 herniated discs. Then I started having blue...
  8. Thread: 'Nerve' pain?

    by Ronnie
    Replies
    19
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    2,053

    Thank you so much Marla. I guess I always...

    Thank you so much Marla. I guess I always thought that is all they are supposed to do as rheumi's. I guess maybe I should find another doc. I just wish I could get a good referral. I hate going...
  9. Thread: 'Nerve' pain?

    by Ronnie
    Replies
    19
    Views
    2,053

    Tgal, I couln't agree more. I am just telling...

    Tgal, I couln't agree more. I am just telling you what she said to me. I felt the same way you responded. I feel like when they don't have an answer they just come up with something. She never...
  10. Thread: 'Nerve' pain?

    by Ronnie
    Replies
    19
    Views
    2,053

    I just spoke to my rheumi last week about the...

    I just spoke to my rheumi last week about the same exact thing. I described it like an electrical shock. So bad it almost made me wreck my car. I had a really bad one that lasted for 4 days under...
  11. Wow. Thank you for replying. My Rheumi told me...

    Wow. Thank you for replying. My Rheumi told me that most other docs would have told me that I have lupus, but she feels strongly about waiting for the blood to show. I had one positive ana and...
  12. Has anyone on here been diagnosed with Lupus without a positive ana blood test?

    Has anyone on here ever been diagnosed with Lupus without a positive ana blood test? If so, how were you diagnosed and what was your symptoms?
  13. Thank you all for your support. It is so...

    Thank you all for your support. It is so comforting. This is just a very confusing disease.
  14. Oh yeah. I forgot to ask if any of you have...

    Oh yeah. I forgot to ask if any of you have heard of fevers with headaches with this disease? I have had reoccuring low grade fevers. Usually it is once a week or more. I can always tell because...
  15. Thank you to all of you for the replies. It is...

    Thank you to all of you for the replies. It is truly appreciated. My Rheumy told me that there isn't anything she can give me that would slow down the progress or make it go away. That the only...
  16. Thanks Debbie. I believe the brain is affected...

    Thanks Debbie. I believe the brain is affected through the central nervous system and that lupus can affect the cns??? I did see another rheumy that my pcp referred and he thought it might be crest...
  17. Thank you Tgal. I appreciate your reply. No he...

    Thank you Tgal. I appreciate your reply. No he doesn't think it is ms but says it could be from the Lupus. Do you know how that is?
  18. Very confused...either i have lupus or i don't....which is it

    I am writing in hopes that someone can make sense of my situation. I am a 41 year old female about 5'4 and weighing 135. Wow that was hard to write...my weight that is:) Anyway, about 16 months ago...
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    I tried savella for a day and only took the 12.5...

    I tried savella for a day and only took the 12.5 and as I was sitting on the couch I had a major dizzy spell. I wasn't on anything before. I also felt very anxious. I didn't like it at all.
  20. Thread: Ovarian Cyst

    by Ronnie
    Replies
    9
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    1,139

    I have only been diagnosed with fibro and...

    I have only been diagnosed with fibro and raynauds. Possible Lupus but tests aren't strong enough. Anyway, I have had ovarian cysts all my life. There was never a time that I had a US and didn't...
  21. Hunniebun, Wow. I feel for you. I have been...

    Hunniebun,
    Wow. I feel for you. I have been having very simular issues as yours since last October. I was diagnosed with Raynauds and Fibro too. They aren't saying it isn't Lupus and one of the...
  22. Dark blue bumps on back of throat.. Anybody have these????

    I keep posting on here everytime I have a new symptom. Well here is another....Purplish Blue colored bumps on back of throat and part of tonsil. Have had them for over a month. No sore throat. ...
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    Thank you so much for your responce. I thought I...

    Thank you so much for your responce. I thought I was just crazy to think there would be some other tests. I just don't understand these doctors. I read online about all these other tests but they...
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    Charley Horses Anyone?????

    Does anyone get charley horses in the back of there legs and feet? I mean in the back of the legs, thighs, calves, shins, on souls of feet and toes? One day I even had my muscle in the back of one...
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    Terry, you are so kind to always take your time...

    Terry, you are so kind to always take your time to help. I don't have much time to find out things because I work full time and have two teenagers that don't drive. Thank you sincerely for always...
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