Search:

Type: Posts; User: Shanna

Page 1 of 4 1 2 3 4

Search: Search took 0.01 seconds.

  1. Replies
    1
    Views
    60

    Not saying this applies to you but I have a...

    Not saying this applies to you but I have a client who was dx w/ lupus and thought she had it for several years. Turns out she ended up being later dx
    w/Lyme disease.After treating it,all symptoms...
  2. Thread: extreme fatigue

    by Shanna
    Replies
    7
    Views
    207

    I have too, been dealing with the dreaded lead...

    I have too, been dealing with the dreaded lead blanket! This last week has been bad,very hard to get out of bed. I haven't been eating much cause I am to tired to get up and make something. I know...
  3. Replies
    4
    Views
    132

    Everybody has different opinions on this. I...

    Everybody has different opinions on this. I believe that you should be upfront about your health,that way you are giving him the choice to continue the relationship with all the facts. Plus, that...
  4. Replies
    5
    Views
    192

    Just a reminder of how lucky you are. My dr....

    Just a reminder of how lucky you are. My dr. never picked up on my kidney disease until stage 4, I had to do chemotherapy and lots of steroids :( I gained 40 lbs! So pay attention to your body and be...
  5. Replies
    10
    Views
    646

    I think a change in elevation might flare things...

    I think a change in elevation might flare things up,I've lived here a long time ,but when I travel to other places I notice it. Is the doctor you found in the valley? I know where Qualwood is, I live...
  6. Replies
    10
    Views
    646

    Early on in my diagnosis,it was my hands that...

    Early on in my diagnosis,it was my hands that eventually lead me to the ER. They hurt so bad,I would cry and think that I should just cut them off. I would go thru ice packs like crazy because my...
  7. Replies
    3
    Views
    292

    I did Benlysta for about a year, I didn't work...

    I did Benlysta for about a year, I didn't work out for me but my biggest side effects were weight gain and I would be very sleepy for the next couple of days. Hope you do well on it.
  8. Replies
    5
    Views
    365

    Hi Julie, Just wanted to say I agree with Steve....

    Hi Julie, Just wanted to say I agree with Steve. You might be able to avoid some of the real bad side effects of Lupus by taking the meds this early in your diagnosis.I can't stress this enough.My...
  9. Replies
    3
    Views
    450

    Good luck with the hearing,I never had to go thru...

    Good luck with the hearing,I never had to go thru that so no advice here.
  10. Replies
    4
    Views
    148

    I get those too. Are you on Cellcept?

    I get those too. Are you on Cellcept?
  11. Replies
    12
    Views
    886

    Just curious, have you ever been diagnosed with...

    Just curious, have you ever been diagnosed with Raynauds?
  12. Thread: hot flashes...

    by Shanna
    Replies
    5
    Views
    300

    I get these really bad as well, I thought it was...

    I get these really bad as well, I thought it was the steroids (or coming off of them). Is this a normal symptom? I get them so bad my hair will be drenched and the sweat will be dropping g off of me!
  13. Hello..... I just finished with the cytoxan...

    Hello..... I just finished with the cytoxan treatment. I too have stage 4 nephritis. Honestly the steroids bothered me more than the chemo did. I did not lose any hair and it did not make me sick....
  14. Replies
    10
    Views
    930

    For just dry skin, which I have badly ...lol....I...

    For just dry skin, which I have badly ...lol....I have been using pure emu oil, a little goes a long way with that stuff. It's a little pricey but it's also beneficial in many other ways, just make...
  15. Replies
    8
    Views
    413

    Sorry for not replying sooner, I've been very...

    Sorry for not replying sooner, I've been very sick. Anyways, when I first started Cellcept it made me throw up and I just felt queasy a lot but after a few months I felt better, I don't know that I...
  16. Replies
    3
    Views
    231

    Benlysta Failure

    Just wanted to give you all some info on my experience with Benlysta. I had been getting the infusions for the last year almost, and my doctor and I thought I was doing better and my labs even...
  17. Replies
    3
    Views
    277

    Stage 4 Kidney Nephritis...

    Here's what I have been going through.
    I went to my local hospital after having pain in my chest and hard trouble breathing. They said I had fluid around the heart (pericardial effusion). Was...
  18. Replies
    8
    Views
    413

    I had that problem with plaquenal too,along with...

    I had that problem with plaquenal too,along with some others. My doc ended up putting me on Cellcept at that time. Good luck with that, hopefully you can figure it out and stay on it.
  19. I just had my first treatment yesterday, so I'll...

    I just had my first treatment yesterday, so I'll be interested in following your posts as well. I'll also be posting soon about my whole experience with this kidney nephritis dx. Looking forward to...
  20. I'm still in the hospital and it is scheduled to...

    I'm still in the hospital and it is scheduled to be done tomorrow afternoon. Up until today the cardiologist seemed certain it needed to be done and he made me feel confident. Today he almost seemed...
  21. hello my lupie friends, I have a question for you......

    Can anyone give personal advice on having pericardial effusion? I finally came and got admitted to hospital Thursday night because my bp was 181/101 and I just couldn't breathe, I thought I had some...
  22. Replies
    3
    Views
    174

    I have reduced my Cellcept and I don't think I...

    I have reduced my Cellcept and I don't think I had any problems, but for me it's so hard to tell what is what anymore LOL! I can never tell if the symptoms I'm having are from Lupus or from meds....
  23. Replies
    4
    Views
    235

    Your story sounds familiar to mine, I too lead a...

    Your story sounds familiar to mine, I too lead a healthy lifestyle,I also taught spin classes at the gym. Anyways, about the lesions.... I got those too real bad and I was freaking out...went to my...
  24. Replies
    6
    Views
    299

    I couldn't keep up, I had to cut way back. I...

    I couldn't keep up, I had to cut way back. I don't have an answer for you but I wanted to encourage you and let you know that I understand how hard it gets and that I think you must be a very strong...
  25. Replies
    4
    Views
    340

    Are you on prednisone? That always does it for me?

    Are you on prednisone? That always does it for me?
Results 1 to 25 of 89
Page 1 of 4 1 2 3 4