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Type: Posts; User: Brandie128

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    Even though I am totally grateful that I have...

    Even though I am totally grateful that I have them to fall back on I'm still having issues. Mainly, it's me trying to assert autonomy and be an adult and them babying me. I feel like I'm back in high...
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    Great question!

    This is exactly what I have been dealing with myself. I have been sick most of my life, even before diagnosis, due to an extremely rare genetic condition. So normal has never been normal for me. But...
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    Feeling Discouraged....

    Hey Guys! I'm feeling a little down here lately after an unsettling 2 year struggle. I've posted on here a few times about my trials and tribulations and I want to thank everyone for there help and...
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    Ok guys I need some help!

    Its been a while since I posted on here and I hope that everyone is doing well! Happy Easter!

    I am now 25. My hematologist called yesterday with the results of my labs and my antithyroid...
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    Thanks! Actually I live in Huntsville myself and...

    Thanks! Actually I live in Huntsville myself and have had a terrible experience with a Rheumatologist here. Before I was finally diagnosed with Lupus by another doctor the Rheumy in Huntsville said...
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    Problems w/ my doctor

    Thanks everyone for your help! Unfortunately I called my doc this morning and his nurse informed me that "it was a specialty clinic and they don't accept walk-ins or work-ins". But still she worked...
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    Thank you so much! I'm going to talk to my...

    Thank you so much! I'm going to talk to my immunologist about all of this. He has actually started me on at home treatments of IVIG (called Vivaglobin) I give myself once a week. I just started this...
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    I guess you can tell I'm still new to figuring...

    I guess you can tell I'm still new to figuring all this lupus stuff out. It never even crossed my mine that the D-dimer could be coming from my Antiphospholipid being positive. My docs get so caught...
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    I have never actually had blood clots or been...

    I have never actually had blood clots or been diagnosed with RA or liver disease. They have checked my heart, my nitric oxide levels and anything that could normally cause it to be elevated. No one...
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    Help! I'm scared and have questions!

    Hi all! I'm scared to go to my Immunologist and talk to him about some things that have happened here in the last few weeks. I have had a few flat purplish-red lesions pop up on my abdomen. One of...
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    I'm sick of this stupid flare!!

    HI everyone! Basically I'm 24 and I feel like I'm 80. I'm on Prednisone and Plaquenil but I have been in a terrible flare since I had knee surgery a month ago. Now my kidney function's back down to...
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    Hi hurricane, I know exactly how you feel. I...

    Hi hurricane,
    I know exactly how you feel. I am 24 and was just diagnosed last week after many years of struggle. I was happy to finally put a name to everything that has been happening to me and...
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    Hi Saysusie, Actually I have been treated for...

    Hi Saysusie,
    Actually I have been treated for my LPI for the last 12 years and it is under control. There are about 7 of us in the US and a handful in Italy and Japan but there are about 200 in...
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    Hi! Newly diagnosed and needing support!

    Hi everyone! I was just diagnosed with SLE last week after a long struggle. I already have a chronic illness called Lysinuric Protein Intolerance (LPI) of which there are only 7 of us in the US. Now...
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