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  1. Replies
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    Common cold gone bad?

    Hello everyone....
    I am lucky enough to get a head cold of some sorts. In my case, when I do, it starts on one side of my head, then goes to the other side. Itchy sore glands to start, then...
  2. Thread: Hair loss

    by kimb
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    JennyFoo I am sooo with you, on the hair...

    JennyFoo
    I am sooo with you, on the hair falling out, all over everywhere!
    My hair used to be very thick, and long. I have lost 3/4 of it. I loose gobs and gobs when I wash it or brush it. I...
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    Thanks Jody, I am feeling better today. I am...

    Thanks Jody,
    I am feeling better today. I am not as sore, I think I got all my boulders raked the other night. What is weird....I feel like its almost consistant with my time of the month...? I...
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    Do I have Fibromy.?

    What do you think?
    Every night I take a 1/2 ambien to get to sleep/stay asleep.(partly due to overactive mind, not sleepy and pain) Every morning, sometimes hours before waking, my upper body feels...
  5. Thread: Crazy??

    by kimb
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    1,937

    Karen, Warm wishes from hot, dry Calif. 8) ...

    Karen,
    Warm wishes from hot, dry Calif. 8)
    Keeping a journal is one of the best things I have done since my diag. 3 years ago. I date it, keep track of all meds, including over the counter....
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    have you thought of an IUD? :roll: I just got...

    have you thought of an IUD? :roll: I just got my niece to get one, its the best thing she ever did! Some have no hormones. and they can be taken out at any time, or left in for up to 8 years....
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    Moxi- Sounds like you are doing good, hang in...

    Moxi-
    Sounds like you are doing good, hang in there! :lol: I have been on Metho 15mg for over a year now. Which I guess is a pretty low dose. At that time I was also taking Prednisone 40-60mg,...
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    Teroids- I had Rituxan! in 2005 I was very...

    Teroids-
    I had Rituxan! in 2005 I was very very ill and was hospitalized (UCDavis-great place)I had multiple serious problems. Pleuresy, pericarditis, pulmonary embolism, severe hemolytic...
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    Jana- Have you heard of Costochondritis? You...

    Jana-
    Have you heard of Costochondritis? You can find info on it on the web.
    I have had lots of chest pains over the last few years. Pericarditis was one lovely thing I got. I also have, not...
  10. Thread: PLEURISY??

    by kimb
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    s- What exactly are your gfs symptoms? It would...

    s-
    What exactly are your gfs symptoms? It would be good to find a doc that is very familiar with lupus. I actually also see a cardiologist and an internal doc, (only when my chest pain starts in)...
  11. Thread: PLEURISY??

    by kimb
    Replies
    8
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    1,876

    :cry: So sorry your girlfriend is not feeling...

    :cry: So sorry your girlfriend is not feeling well at all. I know, I have had many unpleasant symptoms myself. Is she sure it is pleurisy? Has she been to the doc? ***She should not assume it is...
  12. Thread: Can NOT sleep

    by kimb
    Replies
    14
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    2,132

    Is it worth the feeling of endless tiredness? ...

    Is it worth the feeling of endless tiredness? Sore, from perhaps the feeling of sleeping on rocks, and squirrels running circles in you head?
    I was so against sleeping aids, but, after endless...
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    :wink: Yup, I take Folic everyday. Metho 20mg...

    :wink: Yup, I take Folic everyday. Metho 20mg weekly, colchicine 2 x daily, prednisone 9.5 daily(Yahh!! havent been this low in about a year!!!) and Protonix 40mg daily, Boniva monthly, and suppose...
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    oliuk- Same story here, recurrent...

    oliuk-
    Same story here, recurrent pericarditis....mine over a 2 year period. Seem to be when I lowered my prednisone each time. Then, heard about colchicine, a drug used for gout, was helpful...
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    KCsMom- I have been on pred for a long time (2...

    KCsMom-
    I have been on pred for a long time (2 1/2 years this time)I started out at 100mg When I got to 20mg, then by 5s until I got to 10mg. Then, only by 1 mg a month.....Heres my deal......I...
  16. Thread: Can NOT sleep

    by kimb
    Replies
    14
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    2,132

    Dear Sleepy- :cry: You are not alone! I have...

    Dear Sleepy- :cry:
    You are not alone! I have had horrible sleepless nights. Takes hours to fall asleep, then I wake on the hour, lay there for hours, and finally when I fall to sleep, the alarm...
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    Anyone take Cherry Extract for Inflammation?

    Has anyone taken cherry juice or capsules for inflammation? :?:
    My husband had gout once, I gave him cherry juice from the natural food store, it cured his gout.
    I am wondering if a daily dose...
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    Missy- Dont worry your sister about the...

    Missy-
    Dont worry your sister about the Fosamax. The first time I took it, a few years ago, I had NO problem! at all! :D
    So true about 'practicing medicine'! Its always, try this, then we'll try...
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    Thanks for the replies. Since I posted this,...

    Thanks for the replies. Since I posted this, here is what I have come up with:
    Dr.(rheum)says best to take on empty stomach.
    Dr.#2 says take on full stomach.
    Now I will consult with the pharm...
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    Hello, I just want to say I read your first...

    Hello,
    I just want to say I read your first and last few posts on this, have'nt read in between posts. I must say, I am so glad you are doing much better now. Getting things done, ect. I too...
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    Bonevia and Calcium.....

    I have taken Fosamax in the past. Each time I start I get severe stomach pains that last for about 4 days. :cry: Dr. says I should try Bonevia. Has anyone tried it, and what are your side...
  22. Thread: rituxan

    by kimb
    Replies
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    4,437

    Terri- :D I would have to say that the...

    Terri- :D
    I would have to say that the Rituxan has helped. I have had no joint pain, rashes, fatigue, or anemia. My dr. says all my labs say my lupus is not active now. But.....I have had...
  23. Thread: rituxan

    by kimb
    Replies
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    4,437

    TERIOD- Fair Oaks was my old stomin'...

    TERIOD-
    Fair Oaks was my old stomin' grounds....Im in Jackson area now....
    Anyway- I had 4 Rituxan treatments 2 years ago.....With all the pre-meds they gave me, I had only 1 symptom during my...
  24. Thread: Breaking teeth

    by kimb
    Replies
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    2,618

    I have broken a few teeth also! I believe that...

    I have broken a few teeth also! I believe that prednisone can contribute to brittle bones-and teeth? I have been on pred for about 4 years now.
    ***everyone be sure to discontinue your osteoporosis...
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    Hippy Chic- How are you now? How is your...

    Hippy Chic-
    How are you now? How is your natural treatment going? Curious about how you are feeling.....
    Kimb
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