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  1. Replies
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    Thank you very much for the posts. I need to...

    Thank you very much for the posts. I need to come here more often and chat with people and know that I am not alone.

    Thanks again, Deb
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    Need to express my feelings

    Hello,

    I needed somewhere to express my feelings and not be judged. I found out in June 2008 that I have lupus. My life has turned upside down since then like everyone here can relate to. It...
  3. Thread: Heat vs Sun

    by Tootles
    Replies
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    6,033

    Poll: I too have issues with heat. When I went for...

    I too have issues with heat. When I went for pool therapy, the room and water was too warm and I had to stop going. Also, it has been very humid where I live and I have had such horrible fatigue...
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    Fingers going numb

    Hello!

    I was wondering if anyone has problems with their fingers going numb and if you do, what do you do for it? I know I have small artery problems in my fingers and toes, but the numbness in...
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    I know exactly how you are feeling. My two best...

    I know exactly how you are feeling. My two best friends went through divorces in the past couple of years and I was there for them morning, noon, night and even in the middle of the night. I found...
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    Hello! I too have ITP and lupus. Below is the...

    Hello! I too have ITP and lupus. Below is the my 1st tread. My platelets have been stable since October. The hard part is predisone causes easy bruising so at first I was always scared my...
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    Hello Kathy, Thank you for the suggestion of...

    Hello Kathy,

    Thank you for the suggestion of checking my blood pressure. I do have that checked often and that is the only number that is "normal" for me. I am hoping that they will get to...
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    Hello! I am also on cellcept. I currently take...

    Hello! I am also on cellcept. I currently take 1500 mg. When I went up to 2000 mg I would get an instant migraine. I still get alot of headaches on the 1500 mg. Good luck with your decision!
  9. Thread: Rash?

    by Tootles
    Replies
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    1,177

    Hello! I started with rashes like you are...

    Hello! I started with rashes like you are describing. I am on predisone, plaquenil, cellcept and some creams. I had a biospy done and found out I sub cutaneous lupus (which I was already...
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    Hello! I was on 110 mg of predisone last summer...

    Hello! I was on 110 mg of predisone last summer and I also had leg pain. I had to lay with my legs elevated. Then after they started tapering down I had a lot of problems walking. I felt like...
  11. Thread: swelling

    by Tootles
    Replies
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    2,105

    I am so sorry about your swelling Angel. What...

    I am so sorry about your swelling Angel. What was the med that they gave you?
  12. Thread: swelling

    by Tootles
    Replies
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    2,105

    Thank you!

    Thank you very much for all the information! I am so glad that I found this site. I will give me doctor a call in the morning. Hope you are all having a great night.

    Deb
  13. Thread: swelling

    by Tootles
    Replies
    18
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    2,105

    swelling

    Hello! Does anyone have trouble with swelling of the feet and hands. I have really never had this problem before. I am not one to add salt to food but I know alot of food is high in sodium. ...
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    I am happy because I was able to work 2 full days...

    I am happy because I was able to work 2 full days in a row. That has not happened in months. Maybe I on an upswing!

    Deb
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    Thank you~

    Thank you very much for everyone that replied. I am just having a hard couple of weeks. It is so nice to be able to come to this forum and post because you get so much support and understanding. ...
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    Will you ever feel normal again?

    Hello! It has been 10 months today that I found out I had lupus. Nothing has ever been the same since. Do you ever get your enegry back? It seems like nothing has improved since I was first in...
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    Hello Christy, My name is Deb and I was...

    Hello Christy,

    My name is Deb and I was dignoised in June 2008 with lupus. The only reason I went to the doctor is that I had some red and white spots and unexplained brusing. They did labs on a...
  18. Thread: Overwhelmed

    by Tootles
    Replies
    18
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    2,344

    Thank you

    Thank you very much to each one of you for the uplifting words. I guess I am going thru a grey time right now. It is so wonderful to find this website and to actually be able to communicate with...
  19. Thread: Overwhelmed

    by Tootles
    Replies
    18
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    2,344

    Overwhelmed

    Hello,

    My name is Deb and I am 36 years old and found out I have lupus in June 2008. Tonight I am having a very hard time. I was sitting at my kitchen table with my meds filling my 4 a day one...
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    Hello ssing, My name is Deb and in June I was...

    Hello ssing,

    My name is Deb and in June I was diagnoised with lupus. I am currently taking 1500 mg of cellcept (can not take anymore mg or it causes migraines), 400 mg of plaquinel, 7.5 mg of...
  21. Thread: Hi, Im new

    by Tootles
    Replies
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    Welcome!!!!

    Welcome jseda,

    I am very new to the site but it is awesome. It has so much support and information/suggestions. I do agree with you positive attitude is a wonderful thing to have in this roller...
  22. Thread: new member

    by Tootles
    Replies
    16
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    2,050

    thanks!

    Hello!

    Thank you for the information and suggestions on the rash. I just kept on putting ice packs or cold wash clothes on it and by this evening it is almost gone.

    Yesterday, I was having a...
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    here for you

    Hello Leaf,

    I know how feel about being alone and frustrated with your doctor. You do not have to feel alone anymore, this site has helped me and I have only been here for a few days. After...
  24. Thread: new member

    by Tootles
    Replies
    16
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    2,050

    Thanks and a question

    Hello Everyone!

    Thanks again for the warm welcome. It is so nice to know when I need support, I can just jump on the computer. It really put a smile on my face when I saw the replies.

    I do...
  25. Thread: new member

    by Tootles
    Replies
    16
    Views
    2,050

    Thank you!!

    Thank you very much for the warm welcome. Finally the 1st time in 7 months I do not feel like I am losing it. Before I felt so alone, now I have people that truly understand and care.
    Thank...
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