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  1. Replies
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    A timeless article then and still very relevant...

    A timeless article then and still very relevant now! Thanks again Steve :-)

    Peace and Blessings
    Namaste
    Saysusie
  2. Also, once the Plaquenil does start working and...

    Also, once the Plaquenil does start working and you begin to see and feel its effects, most say that it works very well for them on a number of symptoms. If you find that it does not do the same for...
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    Hello RIDETHEBEST; Welcome to our family! I...

    Hello RIDETHEBEST;
    Welcome to our family! I am so sorry for your losses which, I am sure, are nearly unbearable. I lost my daughter (the inspiration for this site) to Lupus, so I understand - in...
  4. Thread: Hi All

    by Saysusie
    Replies
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    Hello and Welcome to our family; I am sorry to...

    Hello and Welcome to our family;
    I am sorry to hear that you are dealing with so much. But it sounds as if you have a good plan for managing what you can manage. Many of us have had to...
  5. Thread: Hi everyone!

    by Saysusie
    Replies
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    151

    Hello and Welcome MsGivingTree: It is...

    Hello and Welcome MsGivingTree:
    It is wonderful that, amidst all of the autoimmune issues that you have, you have found an activity that brings you joy while, at the same time, saves the lives of...
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    Remember, this chemo medication is at a dose...

    Remember, this chemo medication is at a dose much, much lower than that used for cancer patients or for organ transplant patients. So, while you may experience some side effects, they will not be...
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    Hip Hip Hoooray!!!! I am so happy for you and,...

    Hip Hip Hoooray!!!! I am so happy for you and, yes, your ex-boss deserves this kick in the teeth!! YIPPPEEE

    Peace and Blessings
    Namaste
    Saysusie
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    Hello Megan; Welcome to our family. I am...

    Hello Megan;
    Welcome to our family. I am sorry to hear that you have this disease, but so glad to hear that you have a doctor who is primarily concerned with treating your symptoms and helping...
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    Lupies and Summer Precautions!

    Hello Family;
    Every summer, I post a thread about how we must protect ourselves during the summer months. Well, it is that time again and I must reiterate that we must be VERY CAREFUL during...
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    I agree with both Steve and Shanna, Lupus is not...

    I agree with both Steve and Shanna, Lupus is not an easy disease to diagnose. Once you've gotten the diagnosis, you can be assured that your doctors have already ruled out a plethora of other...
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    I, too, live in a hot, dry area where the...

    I, too, live in a hot, dry area where the temperature is in the triple digits all summer. Then we have a cold a frigid winter (sometimes snow). Not much in between I'm sad to say. Like Moonbeam, I...
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    Hello, I'm sorry that you are suffering with this...

    Hello, I'm sorry that you are suffering with this issue. It does sound like on of the many skin issues that are seen with Lupus. Often, a corticosteroid (such as Prednisone) along with Plaquenil...
  13. Thread: A First Hello

    by Saysusie
    Replies
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    I just wanted to make sure that I, too, welcomed...

    I just wanted to make sure that I, too, welcomed you to our family. We are, indeed, a global family and you will find that there is always someone here when you are in need.
    I've often suggested,...
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    Yes, sweating (especially night sweats) and hot...

    Yes, sweating (especially night sweats) and hot flashes are pretty common side-effects of corticosteroids such as Prednisone. They are really bothersome. My friend carries a battery operated little...
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    Hello and welcome to our family! As lupus...

    Hello and welcome to our family!
    As lupus affects each of us differently, for some the fever does indicate a flare up. For others, the fever is a constant symptom. Usually, treatment for the...
  16. Thank You Steve - I was about to point out the...

    Thank You Steve - I was about to point out the same thing! Thank you for always being on the spot when needed!!

    Peace and Blessings
    Namaste
    Saysusie
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    Ditto!! All graduations are milestones which are...

    Ditto!! All graduations are milestones which are to be commended! Congratulations to you all.

    Peace and Blessings
    Namaste
    Saysusie
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    Hi Linda75; Yes, this group is filled with...

    Hi Linda75;
    Yes, this group is filled with supportive people. There is a wealth of information here and this is a safe place to discuss all of your issues with this disease. You will find that...
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    Kim; It sounds as if you also need to distance...

    Kim;
    It sounds as if you also need to distance yourself from your mother. You are not responsible for the choices that your children make and should not feel guilty about it. It is not your job...
  20. Thread: Dating Lupus

    by Saysusie
    Replies
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    117

    Hello and welcome: I can't tell you how much it...

    Hello and welcome: I can't tell you how much it means to me to have you here in support of your girlfriend. I always say that one on the most important factors in our being able to manage our...
  21. Hello and Welcome to our family; I do not have...

    Hello and Welcome to our family;
    I do not have Lupus Nephritis either. I do know that some members here have been diagnosed with the condition. Hopefully they will respond to you and provide you...
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    Intestinal nerve damage affects the functioning...

    Intestinal nerve damage affects the functioning abilities of the intestine. Food moves slowly or stops moving through the digestive tract. One such disorder is gastroparesis, or delayed gastric...
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    You medication regimen looks like mine..yikes. I...

    You medication regimen looks like mine..yikes. I take 16-18 medications/day!!

    Oluwa has given you excellent advice about your Father, exercising, seeing your doctor, and your medication regimen. ...
  24. Thread: Weird Flares

    by Saysusie
    Replies
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    152

    There are symptoms called "Lupus Headaches". ...

    There are symptoms called "Lupus Headaches". These are similar to migraines, except that they do not respond to headache medication. Usually when the underlying condition (the Lupus) is treated,...
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    I'm glad that your birthday was a nice one! Warm...

    I'm glad that your birthday was a nice one! Warm Hugs

    Peace and Blessings
    Namaste
    Saysusie
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