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  1. Wow Red246...It has been a Loooooooong time!!! ...

    Wow Red246...It has been a Loooooooong time!!! I'm sorry that you are back under these circumstances, but glad that you came to us!
    Doctors are notorious for dismissing any lab work that still...
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    Hi There; Yes, I was diagnosed after my first...

    Hi There;
    Yes, I was diagnosed after my first pregnancy (It took an entire year of tests ect. before I finally got a diagnosis). My meds now include Nsaids, Imuran and occasionally a Prednisone...
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    Hi bmartino; I think that I first noticed...

    Hi bmartino;
    I think that I first noticed symptoms when I was about 15yrs old. I had terrible joint pains, especially in my writst. I would bind them up tight, thinking that it was due to being...
  4. Thread: Good morning

    by Saysusie
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    Hi Sharon and welcome to our family. How is your...

    Hi Sharon and welcome to our family. How is your internet search going for good doctors in your area? If you've had no luck, please let me know and I will also do a search for you. Also, let us...
  5. Thread: Cellulite

    by Saysusie
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    740

    Somehow, developing cellulite with this disease...

    Somehow, developing cellulite with this disease does not surprise me at all :-(. I'm not sure what, if anything, can be done to prevent it or reverse it. I hope that you find an answer!

    Peace...
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    I usually get the butterfly after I've been ill,...

    I usually get the butterfly after I've been ill, when I'm stressed, or when I've had too much sun exposure. I've never done microderm treatment for fear that it might be too stressful on my face due...
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    It is unfortunate that having an auto immune...

    It is unfortunate that having an auto immune disease leaves us open to developing other auto immune disorders,such as psoriasis. The fatigue is one of the most misunderstood symptoms of lupus and...
  8. Thread: A Bit Nervous

    by Saysusie
    Replies
    2
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    72

    Hello and welcome to our family. Steve has given...

    Hello and welcome to our family. Steve has given you great information, especially about not allowing stress to overcome you. If you do, indeed, have an auto immune disorder, there are treatment...
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    Like many of us, we relized that we hav been...

    Like many of us, we relized that we hav been suffering from symptoms for may, many years. Please do keep us informed on how you are doing and how your doctors are responding to you. I wish you the...
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    Hi bmartino; Steve has given you excellent...

    Hi bmartino;
    Steve has given you excellent information about the ANA and about conducting our own research. If you are researching Lupus, I would suggest that you spend most of your time on the...
  11. Thread: SLE Lupus

    by Saysusie
    Replies
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    551

    It never ceases to amaze me how ignorant,...

    It never ceases to amaze me how ignorant, uncaring, and cavalier some doctors can be. I agree, let's throw rocks at his windows, let's egg his house, let's key his car!! Well, since we can't do any...
  12. No problem at all. Please keep us posted on how...

    No problem at all. Please keep us posted on how it goes :-)

    Peace and Blessings
    Namaste
    Saysusie
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    Hi Bekp: St. James, Marycain, and Vernb2 are...

    Hi Bekp:
    St. James, Marycain, and Vernb2 are no longer active members of this forum and, as such, will probably not respond to your question! Sorry

    Peace and Blessings
    Namaste
    Saysusie
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    Hello Richard and welcome to our forum. I look...

    Hello Richard and welcome to our forum. I look forward to getting to know you. Please feel free to start any discussion and/or participating in any discussion. I'm glad that you found us.
    ...
  15. Hi Bekp; I answered your questions in your...

    Hi Bekp;
    I answered your questions in your previous post. Please let me know if you need anything further.

    Peace and Blessings
    Namaste
    Saysusie
  16. Hi Bekp; Welcome to our family. I'm glad that...

    Hi Bekp;
    Welcome to our family. I'm glad that you found us and that you decided to join us. I will try to answer your questions as best as I can and hopefully, someone else will come along with...
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    To My WHL Family

    Your presence is a present to the world
    You are unique and one of a kind
    Your life can be what you want it to be
    Take the days just one at a time

    Do not doubt your ability to be as well as you...
  18. Thread: Hope

    by Saysusie
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    Hi Nonna; I'm so sorry to hear that you are in...

    Hi Nonna;
    I'm so sorry to hear that you are in a bad place now, especially after a whole year in remission. I am praying for you and with you and I, too, hope that you can get back to some form...
  19. Thread: SLE Lupus

    by Saysusie
    Replies
    8
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    551

    Oh my gosh, you have been through so much and in...

    Oh my gosh, you have been through so much and in such a short period of time. I'd like to find that doctor in January 2014 who said that there was nothing wrong with you...I'd like to pummel him...
  20. Thanks Steve; They've been suggesting for a...

    Thanks Steve;
    They've been suggesting for a while that infections and viruses can trigger flare-ups, but never understood the mechanism by which this occurred. I hope that this study can discover...
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    Hello Helena; Welcome to WHL. Please tell us...

    Hello Helena;
    Welcome to WHL. Please tell us a bit about yourself so that we can get to know you. I hope that you find some answers, support, and information here that helps you!

    Peace and...
  22. Thread: Sle

    by Saysusie
    Replies
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    Hi Rachelfaye; Welcome to our family. Like...

    Hi Rachelfaye;
    Welcome to our family. Like many of us, it was a relief to finally have a name for the many things that ailed us for years. While we hate having this disease, we are happy to know...
  23. I took the survey. I hope that it helped her,...

    I took the survey. I hope that it helped her, even though many questions did not really fit me as my diagnosis was more than 20yrs ago (lol) Peace and Blessings Namaste Saysusie
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    Hi Professor825; Thank you for sharing your...

    Hi Professor825;
    Thank you for sharing your story. I learned something!!! Thanks again

    Peace and Blessings
    Namaste
    Saysusie
  25. Thread: Seizures

    by Saysusie
    Replies
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    293

    I can hear the fear and frustration in your words...

    I can hear the fear and frustration in your words and your feelings are well founded. No one wants to accept the prospect that this will be their life. I cannot tell you that it will all be OK or...
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