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Type: Posts; User: Bakedtater08

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    First off I'm gonna apologize if this sounds a...

    First off I'm gonna apologize if this sounds a bit jumbled, suffering from a bad respiratory infection atm & my brains foggier than usual lol

    I have stage two ckd, I think as with anything it all...
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    Tell God your plans

    I'm posting this here because I feel it the most appropriate place for it-I feel that without faith & hope this as with any victory I gain, wouldn't be possible without belief in a higher purpose.
    ...
  3. I'm not sure about arthritis affecting both and...

    I'm not sure about arthritis affecting both and not a single limb joint. I have had arthritis in left knee for over a decade due to an old basketball injury & not my right. Same with my ankles & even...
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    What do you drink?

    We all know pop (soda) is bad for us. And me, like most folks, drink way more than I should.

    Having secondary ckd only increases my need to stop drinking it. I know it's bad-ok really bad-for me,...
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    Leahc: thank you for response & I am so sorry...

    Leahc: thank you for response & I am so sorry your son had to go through so much! I'm glad to hear he is doing better!!! I've taken my brother all over the place for so many of the issues going...
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    Just thought I'd update: after seeing the doctor...

    Just thought I'd update: after seeing the doctor & having some tests run looks like i have paracarditis & pneumonia : ( so hopefully this is all flare related issues, time will tell!
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    Lupus in Juveniles

    It's late here, but I'm going to try and ask & explain this as logically as possible...

    I am not familiar with lupus in juveniles (although my symptoms began when I was in my mid teens-but I don't...
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    Thank you for the responses. I know so many are...

    Thank you for the responses. I know so many are affected by photosensitivity-as you mentioned scalp involvement was one of the first symptoms I had years ago & I pretty much live in my hats lol what...
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    Two years later & finally a court date

    I had just mentioned on another post that I've been waiting two years to get my hearing for disability-originally it was suppose to be last December but due to the shutdown everything became backed...
  10. Thread: Crafting?

    by Bakedtater08
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    I just happened across this browsing the forum &...

    I just happened across this browsing the forum & I was actually just asked this question on my blog (craft blog). There are a bunch of stipulations wether you're on disability or not-disability just...
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    The vampire queen

    My question, is sort of a two part question. I'm gonna backstory before I ask so maybe some people can relate to either lol

    First, I have had photosensitivity since my early teens (I'm 27) over...
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    I'm sorry you are going through the struggles of...

    I'm sorry you are going through the struggles of stones :( I myself have suffered through more than I can count (average about 4-5per month) it might be helpful to ask your doctor for bladder spasm...
  13. X-rays are a good start but they also don't show...

    X-rays are a good start but they also don't show everything (I had several recent spinal X-rays that were "normal" but my ortho sent me for an MRI (and a bonescan), low and behold a herniated disc...
  14. This to me sounds like some sort of nerve...

    This to me sounds like some sort of nerve compression taking place in the spine. I don't think I'm allowed to post links, but you can jump on google and search differed pain from the spine (I'd look...
  15. When you're in a low, what lifts your spirits?

    Although I'm doing really well for only being 1.5 weeks post op from my spinal surgery (degenerative disc disease) I'm finding the severe limitations in place are...well frustrating. It's not...
  16. Just thought I'd post an update for anyone who...

    Just thought I'd post an update for anyone who might find it helpful. I had my surgery Thursday March 6. They did have me stop my plaquenil & metho, they also did have me do 5 days of iv antibiotic...
  17. After skimming the info above I will add that I...

    After skimming the info above I will add that I also have antiphospilipid syndrome & raynauds, I'm not sure if this could be correlated to what I said, but I'd thought I'd mention it.
  18. I thought I'd just share my experience-like said...

    I thought I'd just share my experience-like said above I'm not a doctor nor Is everyone the same. However, about a year or two ago I began noticing similar symptoms you describe-the cognitive part,...
  19. Thank you both for the warm welcomes & well...

    Thank you both for the warm welcomes & well wishes! I've actually been here for awhile, just kinda disappeared after a lot of stuff was going on medically-good to be back :)

    Nmac: yes it has, I'm...
  20. Anyone have any experience with back surgery & lupus?

    I am scheduled for an "emergency" micro lamenectomy & disectomy (sp), I had a previous more complex surgery 4 years ago on the same level-but it was a much different procedure & my lupus was not in...
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    Update: had my spinal MRI Monday & followed up...

    Update: had my spinal MRI Monday & followed up with the spine specialist Tuesday (still my today) & had my scan done @ my Kidney dr. The first appointment...there really are no words to express how...
  22. I'm curious since you mentioned ovarian cysts if...

    I'm curious since you mentioned ovarian cysts if anyone has suggested pcos-or has done any further investigations on that route? Or have you ever been to see an endocrinologist?
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    I have a lot of kidney involvement with my sle-I...

    I have a lot of kidney involvement with my sle-I also suffer form stones non stop due to high uric acid. It could be possible you had a stone and passed it before the test was done-for me it's a dead...
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    Thank you to everyone has taken the time to read...

    Thank you to everyone has taken the time to read this. I know some things no one can answer, but having an outlet just to speak about it...well it's a burden lifter. I know I've strayed the last year...
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    Looking for a little help

    I'm posting this via mobile so I apologize for its composition-my mind isn't all here either so I also appogize if don't convey things appropriately. Over two months ago I had fallen on the ice &...
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