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    Thanks for the info!

    Wow! Thanks for all the great info! I see a new rheumatologist on April 21st--wish me luck!

    Rhonda
  2. Thread: help! help!

    by dresbaby
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    For anyone with more medical knowledge than me: ...

    For anyone with more medical knowledge than me: Betsy mentions a high protein diet, but I have lupus nehritis with high protein levels in my urine--doesn't that I mean I shouldn't add protein to my...
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    Know exactly what you mean about the...

    Know exactly what you mean about the prednisone--it's a barrel of fun, ain't it? Weight gain, makes food taste funny, jittery, irritable--I've had a hysterectomy but being on steroids makes me feel...
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    Speaking of Actonel, my mom went on that for...

    Speaking of Actonel, my mom went on that for osteoporosis and it gave her erosive esophagitis and tore her stomach up! :(
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    Carly :D I am NO pro, I promise you. My...

    Carly :D I am NO pro, I promise you. My website needs MAJOR work. My pics are way too big and I need to resize them and then put them on the site.

    Anyway, if there is ever anything I can do,...
  6. Thread: Hi all

    by dresbaby
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    Yeah, Val, my fingers are hurting today so I...

    Yeah, Val, my fingers are hurting today so I can't do much typing, but I did take a look at your site and would like to join.

    Take care,
    Rhonda
  7. Thread: Newbie alert

    by dresbaby
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    Bless your heart. I know it would tear me apart...

    Bless your heart. I know it would tear me apart to lose my precious daughter. She is the spitting image of me except she got her daddy's height (he's 6'5") and she's 5' 10" at age 14. BUT she...
  8. Thread: Newbie alert

    by dresbaby
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    Thanks, Saysusie and I understand from reading...

    Thanks, Saysusie and I understand from reading your posts that you lost a daughter to lupus, but do you also suffer from the disease yourself?

    Am looking forward to meeting everyone in the coming...
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    Anyone else with "sticky blood"?

    One of my main problems with lupus is it has caused abnormal clotting in my blood. One dr. said I have "too much" blood and a good way to help it was to go donate blood and just tell them to "dump...
  10. Thread: Hello

    by dresbaby
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    Awww, azgirl! I hate to hear someone so young in...

    Awww, azgirl! I hate to hear someone so young in such despair. I, too waited 10 years to know for sure what was wrong, and I get tired of all the meds every morning and afternoon and evening.
    ...
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    Melody, nice to meet you. You are so lucky, I...

    Melody, nice to meet you. You are so lucky, I don't think I've ever experienced a remission!

    I hope to get to know you better. It's nice to have a place for us, isn't it?
  12. Thread: help! help!

    by dresbaby
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    2,765

    Hang in there, sela. We've all been in that...

    Hang in there, sela. We've all been in that diagnosis hell before, and hopefully you will soon have a definitive diagnosis.

    If you ever want someone to talk to, just message me.
  13. Thread: Hi all

    by dresbaby
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    Hi Val! I'm new to this site, too. I'm...

    Hi Val! I'm new to this site, too.

    I'm interested in your post about your "sticky blood". Since you are a nurse, could you tell me more about it. I have it, too, but of course, they gave it...
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    Geez Louise, girlfriend! You got it all, didn't...

    Geez Louise, girlfriend! You got it all, didn't you? Let me guess? You're one of those people that if you're gonna do something--you're gonna do it all the way :lol:

    Seriously, I was lost in dx...
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    Hi Carly: I'm new too, but am not new to lupus...

    Hi Carly: I'm new too, but am not new to lupus and chronic pain and illness

    If you ever need someone to talk to or a shoulder to cry on, I'm here for you.

    Just take it one day at a time!
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    What about back pain being caused by lupus...

    What about back pain being caused by lupus nephritis She said she had protein in urine--that was my first clue to having lupus at all.

    Good luck and let us know what happens.
  17. Thread: Newbie alert

    by dresbaby
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    Newbie alert

    Hi all! My name is Rhonda and I have SLE, lupus nephritis, lupus vasculitis, bipolar disorder, COPD, and CHF and have had 2 heart attacks due to clotting caused by lupus.

    I am divorced with 2...
  18. Thread: soar mouth

    by dresbaby
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    My rheumy gave a medicine to rinse my mouth out...

    My rheumy gave a medicine to rinse my mouth out that is really good for the sore mouth. I also have the rawness you described, but sometimes I just have little sores, and sometimes I have cracks in...
  19. Thread: Kidney Pain

    by dresbaby
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    Weird message in post

    Why is there a little phrase *I think your mom's calling time to go home now* in the middle of my post? Was it too long? I tried to edit it out, but it wasn't there when I went to edit???
  20. Thread: Kidney Pain

    by dresbaby
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    I am confused as to how Missy's dr told her she...

    I am confused as to how Missy's dr told her she had lupus nephritis without doing a biopsy or did she have one and not mention it?

    Protein in my urine after my hysterectomy was how I FINALLY got a...
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    Introducing myself...

    Hi all! My name is Rhonda and I have SLE, lupus nephritis, lupus vasculitis, bipolar disorder, COPD, and CHF and have had 2 heart attacks due to clotting caused by lupus.

    I am divorced with 2...
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