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  1. Replies
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    Hi there, I thought I would add that I was...

    Hi there,

    I thought I would add that I was having major itchiness problems a few months back and couldn't for the life of me figure out where it was coming from. It was driving me crazy and...
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    Hi Saysusie, Thank you for the info. I tested...

    Hi Saysusie,

    Thank you for the info. I tested positive for Anti-cardiolipin Antibodies, but was never treated for it. I remember the doctor saying that it was the only thing that showed up in my...
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    Hi all, I have a follow up question of about...

    Hi all,

    I have a follow up question of about antiphospholipid antibodies. I tested positive for them back in 2005 when I was feeling very ill and the doctor was running a bunch of tests to try to...
  4. Thread: Hair Loss?

    by mackie
    Replies
    15
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    2,344

    Hmmmm...very strange. I still have the hair on my...

    Hmmmm...very strange. I still have the hair on my head, all my "girl" hair down there, and all my leg hair that I always had. Just the hair under my arms has disappeared. Zip, nada, nothing. I don't...
  5. Thread: Hair Loss?

    by mackie
    Replies
    15
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    2,344

    Hi all, I have a similar question...but a...

    Hi all,

    I have a similar question...but a little different. I haven't lost hair on my head but have lost it under my arms. I'm not complaining...I don't have to shave there anymore but just just...
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    Thank you luvwine, I will try that! I think...

    Thank you luvwine, I will try that! I think you're probably right about us being more aware of it during the night. :)
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    Thanks for all of your suggestions! I thought...

    Thanks for all of your suggestions! I thought about the allergy issue because I have always had sensitive skin and have to be careful about what I put on it. But the thing is, I haven't changed any...
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    Good morning Numpty, Thank you so much for...

    Good morning Numpty,

    Thank you so much for your kind words. The itchies struck again last night. It's so weird. I'm visiting my doctor this morning so I will ask her. I'm wondering if it's a drug...
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    the itchy scratchies

    Hi everyone,

    For the past month or so I've had this nasty burning creepy crawly itch that wakes me up at night and keeps me from being able to fall back asleep again. It's mostly on my chest,...
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    Hi Oluwa, Sounds like you are being whacked...

    Hi Oluwa,

    Sounds like you are being whacked about by the big L today. It's probably time to go pay your doc a visit.

    Me, I'm trying to stay calm, stay calm. I had a brain MRI yesterday and have...
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    Hi Oluwa, I thought it was just me. My normal...

    Hi Oluwa,

    I thought it was just me. My normal body temp is about 97 degrees. So when I have a fever of 99.5, I am 2.5 degrees above normal for me. Added on top of all the other symptoms, a lupus...
  12. Thread: CNS lupus?

    by mackie
    Replies
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    1,111

    Thank you Susan, for your kind words and...

    Thank you Susan, for your kind words and encouragement. I went to see my internist yesterday and he was alarmed by the loss of vision that the optometrist found earlier this week. He is suspecting...
  13. Thread: CNS lupus?

    by mackie
    Replies
    5
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    1,111

    Is there anyone out there who can share their...

    Is there anyone out there who can share their experience or knowledge about CNS lupus?

    I'm trying not to freak out here, but yesterday my opthalmologist told me that I have no vision in the lower...
  14. Replies
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    Morning Moxie, Sounds like you're starting on...

    Morning Moxie,

    Sounds like you're starting on a pretty low dose...Hopefully that will be all you'll ever need to take and you'll start seeing some improvement in your symptoms.

    Wishing you the...
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    Hi Moxie, I have been on methotrexate for over...

    Hi Moxie,

    I have been on methotrexate for over a year now. My doc chose it because I had severe joint pain and daily fevers that were very stubborn. It took a year of steadily increasing the dose...
  16. Thread: CNS lupus?

    by mackie
    Replies
    5
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    1,111

    CNS lupus?

    I have been having some new symptoms: dizziness, headaches, memory problems, fogginess. My doc wants me to get an MRI of my brain and a neuropsych test done, but I'm not really sure what that...
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    Hi Browneyedgirl, First, I am so sorry to hear...

    Hi Browneyedgirl,

    First, I am so sorry to hear that you are in such a scary situation! I know there are many of us who are struggling with the issue of how to work while being ill and how to...
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    blood clot or mondo bruise?

    Here's a weird one: Today I was putting lotion on my leg and when I got to the back of my calf I yelped in pain. I went to the mirror and found a huge bruise, and I can't remember having bumped...
  19. Thread: Mouth Ulcers

    by mackie
    Replies
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    3,493

    My doc recommended Chloraseptic mouth pain spray....

    My doc recommended Chloraseptic mouth pain spray. It definitely helped, but during the time when the ulcers are really painful you need to keep the bottle handy so you can spray as the numbness wears...
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    Hi saysusie, Thanks for the info on Humira....

    Hi saysusie,

    Thanks for the info on Humira. That's about what we have learned so far and we're on the fence about whether we should add it to what I'm already taking. It sounds pretty scary,...
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    humira and rumitrex

    Hi everyone,

    Does anyone have experience with humira or rumitrex? I am on 20mg or methotrexate per week and 10mg of prednisone per day and it's still not enough to take care of my joint pain and...
  22. Thread: sed rate

    by mackie
    Replies
    1
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    733

    sed rate

    I'm in search of some info on sed rate...

    I've read that people with lupus often have a high sed rate, but mine is actually low, even as low as 0 at times.

    Does anyone know what the...
  23. Replies
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    does anyone know if the potassium (vitamin k)...

    does anyone know if the potassium (vitamin k) deficiency could be the result of methotrexate or steroids? I eat a very healthy diet and take multivitamin every day so I should be getting plenty.
  24. Replies
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    Vitamin K deficiency

    Okay, so I was diagnosed a year ago and I'm still pretty new at this...but I haven't found much of anything about my question anywhere.

    My lab results keep showing a Vitamin K deficiency. Is this...
  25. New to this site and adjusting to life with lupus

    Hi there, I'm new to this site....I was diagnosed almost exactly one year ago and have come a long way through the grieving process (on most days, ha). But there are still plenty of days where it's a...
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