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  1. Replies
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    I tried to go off plaquinal a year ago and it...

    I tried to go off plaquinal a year ago and it didn't work for me, so I went back on. But I would for sure try to go off again if I was feeling able. The less meds I'm on I think is the best.
    Good...
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    discoid lesions, any help???

    I have lesions on my face mainly my cheek bones, they keep spreading and I get so frustrated with it. I wear high sunscreen daily protective clothing etc.
    I am on plaquinal (for years) and...
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    Thats great that you got some answers! I hope...

    Thats great that you got some answers!
    I hope the meds help you out.
    PAM
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    saysusie i didn't see where you said the web site...

    saysusie i didn't see where you said the web site is for pics?
    Am interested to see as I have them on my face and they are spreading.
    Pam
  5. I m a active person with a physical job,...

    I m a active person with a physical job, constantly lifting and stiring; Cook. I do get pretty tired out, but I keep on going and live with the pain.
    I also enjoy flower gardening which can run me...
  6. Thread: HI from Stephh

    by pamjw
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    welcome! Dealing with lupus can be hard. But it...

    welcome!
    Dealing with lupus can be hard. But it sure helps to have some support and know what others are going through. You came to a good place!
    PAm

    :yes:
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    Hi welcome My first symptom was a butterfly...

    Hi welcome
    My first symptom was a butterfly rash.
    THEN i STARTED getting body aches and pains, fatigue, sore joints,
    pleurisy. It took a bit of time for a diagnosis but just keep going to the dr....
  8. Thread: painful sex?

    by pamjw
    Replies
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    I think you should go to a gyno Dr or who ever...

    I think you should go to a gyno Dr or who ever you get regular exams from.
    It could be even be a cyst. I've had them before and it can be painful.
    Hope things get bettter for you.
    Pam

    ...
  9. Thread: help!

    by pamjw
    Replies
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    2,339

    First off welcome to this site, it does help to...

    First off welcome to this site, it does help to talk to others and try to work out issues. So sorry about your job loss!
    I think finding some positive things in your life can help. I know at times...
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    HAppy Birthday to You! Hope your day goes great!...

    HAppy Birthday to You!
    Hope your day goes great!
    Love your signature!!

    Pam:happy-birthday2::happy-birthday2:
  11. Thread: New here

    by pamjw
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    Welcome I have a terrible time with meds and...

    Welcome
    I have a terrible time with meds and digestion also.
    It can be very troublesome.
    I am recdently back on steroids which has made me have acid reflux worse than ever.
    Hope things work out...
  12. Thread: Hello everyone!

    by pamjw
    Replies
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    This is a good place to chat. Welcome Pam

    This is a good place to chat.
    Welcome
    Pam
  13. Thread: New meds

    by pamjw
    Replies
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    461

    thanks fo the replies it has helped

    thanks fo the replies it has helped
  14. Thread: New meds

    by pamjw
    Replies
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    New meds

    I have been in a flare for awhile now and finally saw a rheumy. I am tired all the time arthritis bad,face break outs, achey muscels. So my doc put me on 20 mgs of prednisone for 2 weeks then 15 for...
  15. Thread: New Member

    by pamjw
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    You found a good place to learn and share. I am...

    You found a good place to learn and share.
    I am still new here but it helps reading about other people, makes you feel not so alone.
    Welcome
    Pam
  16. Thread: Stress

    by pamjw
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    2,494

    happy easter I also have major stress in my...

    happy easter
    I also have major stress in my life, have had for a long time. Somehow you have to find something that helps you relax and take your mind off your problems for a bit. I like to read,...
  17. Thread: Good thoughts

    by pamjw
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    HAppy Easter to all. Its a great day, the sun is...

    HAppy Easter to all.
    Its a great day, the sun is shining
    and it is beautiful:
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    Happy Birthday I agree, you should let him know...

    Happy Birthday
    I agree, you should let him know that you need to take it slow.
    Maybe he has kept that in mind.
    I hopwe it all works out!
    Pam
  19. Replies
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    I copied this from the Lupus Foundation of...

    I copied this from the Lupus Foundation of America
    There is lots of good info there.

    I have Lupus and so does my sister, she suffers from depression.
    Which is usually caused because she is...
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    I also have IBS and Gerd. I was told by my Dr...

    I also have IBS and Gerd. I was told by my Dr that I need to pay attention to
    what I eat so then I will know what to avoid. Each person is different. Just pay attentiuon to what you eat and what...
  21. Hi Just wondering what kind of Dr you are seing...

    Hi
    Just wondering what kind of Dr you are seing and if you
    like him or her.
    It does help to have a DR you are comfortable with.
    Make sure to keep a diary of your symptoms, then you can bring that...
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    I also am sensitive to smells. I do burn candles...

    I also am sensitive to smells. I do burn candles but if it is a
    irritating smell then it will bother me, give me a cough and a headache.
    Men's cologne is real bad for me.
    MAybe It's just the scent...
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    Ihope you get your answers soon, it is so hard...

    Ihope you get your answers soon, it is so hard waiting
    for a diagnosis, but sounds like you have a good Dr.
    You wouldnt want your doc to rush a diagnosis, then he could change his mind later. That...
  24. Thread: New

    by pamjw
    Replies
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    Welcome and congrats on new coming baby. Rest is...

    Welcome and congrats on new coming baby.
    Rest is what you need, with your young children I know
    its hard. My 5 kids are older now but when they were younger
    it sounds like you and I were going...
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    Seems to be so typical that clinics assume we all...

    Seems to be so typical that clinics assume we all know what
    to do. Just be sure to ask lots of questions until you are satisfied
    and you know what to do next.
    Pam
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