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Type: Posts; User: Ashleybritton

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    Frustrated

    I have occasionally had proteinuria (2+ once during pregnancy) and varying from none to trace, with it one time being 1+. I have had hematuria 2+ twice. My doctors at Johns Hopkins said I didn't...
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    Low grade fever?

    Last night I felt cold and feverish, but otherwise fine, so I took my temperature and it was 100.5. This morning it was 97.9 so I was feeling good, until this afternoon when I decided to check it...
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    I know. The garlic thing is proving to be a...

    I know. The garlic thing is proving to be a challenge! It's everywhere. I'm willing to make the sacrifice though. I'm just going to make big batches of spaghetti sauce and salsa to freeze ahead...
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    Just got back from Johns Hopkins

    One of my mom's friends gave her the idea that we shouldn't just rely on local physicians, but we should seek out the advice of an expert. After some research that led us to Dr. Petri at Johns...
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    I'm thankful for my family and friends, Johns...

    I'm thankful for my family and friends, Johns Hopkins - specifically Dr. Petri's fellow George, and modern medicine. And even though they're part of my family, (who I already mentioned) I am so...
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    Plaquenil and platelet drop

    I was so happy the week before I started plaquenil because my platelets increased to 119! I've been on plaquenil for about a month and a half (?) and found out that 2 weeks ago my platelets dropped...
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    Oh, also I'm on 300 mg, but I don't really...

    Oh, also I'm on 300 mg, but I don't really consider myself short. I'm 5'7". Maybe that's short enough?
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    Thank you! It was actually my hematologist that...

    Thank you! It was actually my hematologist that led to the lupus diagnosis. During pregnancy I developed thrombocytopenia (low platelets). They thought it was HELLP and delivered my son...
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    Struggling

    I'm really struggling with my diagnosis of SLE. I have low platelets and proteinuria. A slightly positive ANA 1:80. However I have high levels of 6 different antibodies. My rheumy said that the...
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    Plaquenil causing low WBC count?

    I just saw the hematologist and after being on plaquenil for a week and a half my WBC count has dropped to 3.9. Is this a normal side effect? Does my dosage need to be adjusted?

    Thank you!
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    I really appreciate everyone entertaining my...

    I really appreciate everyone entertaining my craziness :-). I'm swimming in research as I've just been diagnosed. I'm sure this is a phase that will pass as the shock wears off. I appreciate...
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    I have been given an official diagnosis of SLE...

    I have been given an official diagnosis of SLE because of my ANA (has Smith and DS DNA antibodies as well as many more), even though I feel fine and have no standard out right symptoms. However,...
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    Stem cell therapy?

    I carry the SCL-70 antibody so I'm very concerned about developing diffuse scleroderma. Prior to seeing the rheumatologist I did some research and it seems as though people on the scleroderma forums...
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    Helmenthics?

    Don't laugh at me, but has anyone tried helmenthics? In my heart I know there isn't going to be a magic cure, but I'm still looking. :-)
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    I just wanted to give an update. I saw the...

    I just wanted to give an update. I saw the rheumy yesterday and was diagnosed with SLE. She said I might develop scleroderma, or I might not. I am going to see a scleroderma specialist in Houston...
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    I'm not sure if it was a C50 or a C100, but my C4...

    I'm not sure if it was a C50 or a C100, but my C4 was normal at 21. I just wish the Scl-70 is a false positive. I'm concerned by how high it is.
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    Does the ANA supersede the compliment tests?...

    Does the ANA supersede the compliment tests? Specifically the Scl-70?
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    Woo hoo! That's great news!

    Woo hoo! That's great news!
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    I forgot these readings as well: C3 serum - 75...

    I forgot these readings as well:
    C3 serum - 75 (low)
    DS-DNA antibody - 234
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    Crappity crap crap crap

    I tried modifying my post "lupus without symptoms", but I can't figure out how to do that so this goes along with that thread.

    ANA 1:80 speckled pattern homogenous pattern
    SSA -131
    Smith...
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    Is it at all possible that I don't have lupus? ...

    Is it at all possible that I don't have lupus? Or that it will never progress to lupus? I feel like I don't have any hope. I'm sorry that I'm such a Debbie downer, but I'm so sad about this.
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    Were you able to deliver at full term? Also, I'm...

    Were you able to deliver at full term? Also, I'm wondering if it would no longer be a wise idea to add to our family. We were hoping to do so soon. Is there any hope that I don't have lupus? It's...
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    Lupus without symptoms?

    I hope you don't mind me coming here for advice. The past 3 months have been a whirlwind for me. I delivered my son prematurely 3 months ago do to what was thought to be atypical HELLP (atypical...
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