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    Not doing Much

    I lost my mom in oct. After that I've havn't been doing much at all. I've been Isolating myself. Been very sick also. Mostly play fb games to get my mind off things. My cat has been very sick also....
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    Thanks everyone this is Sunday night. Tomorrow's...

    Thanks everyone this is Sunday night. Tomorrow's the big day. So doing what I need to get ready. Nothing to eat after ten. Hope my sister will go take care of my Mom's arm tomorrow. But really don't...
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    Surgery Monday

    Got everything done for my surgery. My knee and my whole body aches. I'm pre-registered. Had labs. Had my echo-cardiogram. Waiting for results. I've been in bed all day cause I'm worn out. Had to...
  4. I had to stop my Plaquenil. I have never been so...

    I had to stop my Plaquenil. I have never been so sick. I want to go back on it. I was on it for years with very good results.
  5. Here is the poster for this movie. ...

    Here is the poster for this movie.

    http://www.bing.com/th?id=Ax9mk1LANt9kbgg200x300&bn=SANGAM&pid=13.1
  6. Sorry Hunniebun. I thought Hulu.com was...

    Sorry Hunniebun. I thought Hulu.com was everywhere.
  7. "Simple Love" The Movie where the female has Lupus

    Watch now on HuLu free. I just watched it. Been wanting to see it, but couldn't find it till now. Not sure how long it will be there.

    http://www.hulu.com/watch/347632/love-simple
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    I'm around but things are so crazy. Dealing with...

    I'm around but things are so crazy. Dealing with my Mom's memory loss is running me down. Also trying to work. My lupus has been going unchecked. I can't do my
    appointments and my Mom's. Play fb...
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    Neck and shoulder pain is part of the symptoms I...

    Neck and shoulder pain is part of the symptoms I was having before they found my lupus. They thought I had meningitis . They where going to stick a needle in my spine to test me for meningitis. So...
  10. This is the link to the study I'll be on. If I do...

    This is the link to the study I'll be on. If I do This It will last 2 years.

    http://www.illuminatestudies.com/about_the_illuminate_program.aspx
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    Happy Birthday Manderson !!!!

    Happy Birthday Manderson !!!!
  12. I went for my screening appointment today. They...

    I went for my screening appointment today. They gave me a complete physical. Lot of labs, tb test, ekg, and I go somewhere else for a chest xray. I go back in two weeks and if they accept me I start...
  13. Gizmo, I have not been told what the drug is. The...

    Gizmo, I have not been told what the drug is. The first part they will not tell me. The only thing I know right now is Eli Lilly is the drug company. I go for the first appointment the 13th. I...
  14. Terry and Rob, Not sure when I would start the...

    Terry and Rob, Not sure when I would start the meds. I have to be screened first and have my records sent there. If I have certain heath problems they can't use me. One good thing about it is I can...
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    I had to go the my doctor today. I had My...

    I had to go the my doctor today. I had My appointment on Monday. They called to change it till today. I never get anywhere with my doctors either. It's a total waste of time.
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    I do know some people with lupus go on dialysis...

    I do know some people with lupus go on dialysis if the protein gets to bad. That's what worries me.
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    I love the flylady. Sink Reflections is so...

    I love the flylady. Sink Reflections is so helpful when you have lupus. I just do a little at a time. The flylady lives in my state.
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    I've been spilling the protein on and off for...

    I've been spilling the protein on and off for along time now. I get very worried about it but my doctors just keep doing labs and never treat the problem.
  19. I had to quit working a long time ago. I was too...

    I had to quit working a long time ago. I was too lupie to work. I didn't know I had lupus then. I just could not keep going. I have not been able to get disability even though I can barely walk and...
  20. Going To Meet With A Place About A Clinical Trial.

    I have a appointment to be screened about a study. If I do it I'll be trying some new meds. It will be injections or IV. Not sure if I want to do it or not. But I may do it to help find a cure for...
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    Sticky: You know you have brain fog when your car keys...

    You know you have brain fog when your car keys have been missing over two months and you keep using your spare key because you can't remember to looked for them.
  22. So sorry you are being treated this way. I think...

    So sorry you are being treated this way. I think you need a new rheumy. Sandy is right you need a letter to take with you. I know how frustrating it is. They never listen.
  23. Thread: Oluwa;

    by wrightrs
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    I am so sorry. My thoughts are with you Oluwa.

    I am so sorry. My thoughts are with you Oluwa.
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    My vit D has been low for a long time now. Take...

    My vit D has been low for a long time now. Take the 50,000 IU per week at times. When I'm not on that they have me take 2000 IU over the counter. I take muscle relaxers for the Fibro.
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    Sending prayers and hugs to Oluwa.

    Sending prayers and hugs to Oluwa.
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