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Type: Posts; User: jolynnhughes

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    Maybe dermagraphia? Do you get raised whelps...

    Maybe dermagraphia? Do you get raised whelps where you scratch. These go away quickly once the itching subsides.I have this, and it can be miserable.
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    Welcome, Erin! There are many here to help you...

    Welcome, Erin! There are many here to help you through the battles. I'm fairly new, and I don't have a diagnosis yet, so I probably can't help except to offer encouragement. Others have a wealth of...
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    Hi Kim! Welcome. I live in Texas also, the Dallas...

    Hi Kim! Welcome. I live in Texas also, the Dallas area. Sorry you have SLE but glad you are getting help and had a quick diagnosis. Do you take an anti-inflammatory? I take Celebrex, and since I...
  4. More tests, new doc, or wait and see?

    In my ongoing quest for help, I find myself with new manifestations of...what? My latests symptoms are some kind of asthma, closing up of the throat, or something. I don't even know how to describe...
  5. A valium or xanax will make a huge difference. ...

    A valium or xanax will make a huge difference. If you are moving to Dallas, go to Lakepointe Imaging in either Forney or Rockwall. They are great, and they have all the latests equipment. I had a...
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    I get cold, but my skin feels hot like a sunburn,...

    I get cold, but my skin feels hot like a sunburn, and my hands and feet hurt. Mine is caused from neuropathy, or so the doc says. IDK. My only diagnosis as of now is Hashimoto's. I have a whole...
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    Nikki, your story is very similar to mine, only...

    Nikki, your story is very similar to mine, only your bloodwork has "helped" you out a little more than mine. I've been in limbo for 4 years now. I have the numbness, seizures, tinnitus, severe...
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    Neuropathy. I have it too. It feels like the...

    Neuropathy. I have it too. It feels like the bottoms of my feet and the palms of my hands have been slapped really hard -- like a hot pain. And my skin feels sunburned at times. It also causes...
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    Welcome, Florence! Glad to have you as another...

    Welcome, Florence! Glad to have you as another resource as I search for a diagnosis.
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    Sticky: You might have brain fog if...You are a certified...

    You might have brain fog if...You are a certified English teacher who can no longer spell or think of the right word to express a thought.
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    Strange but fleeting new symptom

    Friday, I had a very strange thing happen. Out if the blue, my fingers turned very red and broke out in white hives. They stung and itched, but about fifteen minutes later, it disappeared as...
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    Welcome, Tammy! I have found great support and...

    Welcome, Tammy! I have found great support and answers here as I search for a diagnosis. Glad you found yours, and I hope the group's support makes having one a little easier.

    Jo
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    Sticky: I live in the Dallas, Texas area. I see two...

    I live in the Dallas, Texas area. I see two rheumies, but I'm not just real crazy about either one. Dr. Stephanie Hennigan in Rockwall is very thorough with notes and questions. She gives me a...
  14. I take Lodine and it works very well. I took...

    I take Lodine and it works very well. I took Mobic first, and it barely took the edge off. I'm on 500 mg. of Lodine twice a day. I still feel a little soreness on the bad days, but I manage well...
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    Amanda, joint pain is my most painful symptom,...

    Amanda, joint pain is my most painful symptom, and mine sounds like it mimics yours. I can be moving fine and functioning relatively pain-free when I leave work. By the time I sit in the car for...
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    I went very slowly but I was on a much higher...

    I went very slowly but I was on a much higher dose. I can't remember how high. I reduced a bit every two weeks. The frst week I alternated full dose one day and reduced the next. The second week I...
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    Derrie, I'm so sorry to hear about your hard...

    Derrie, I'm so sorry to hear about your hard times. I know what it feels like to always have tests come back negative -- story of my life for the last four years. I wish I could go to your doctor. ...
  18. Welcome! I love your philosophy of changing how...

    Welcome! I love your philosophy of changing how you look at things -- something I try to practice every day.
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    Thanks for the replies folks! I haven't had that...

    Thanks for the replies folks! I haven't had that sensations since my last post, so I'm pretending it never happened. :wacko:
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    http://www.nuvigil.com/OnDemandCenter/Prescription...

    http://www.nuvigil.com/OnDemandCenter/PrescriptionAssistance.aspx
    This is the company website. They offer financial assistance.
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    Hi Gina! Welcome, and I hope you get as much...

    Hi Gina! Welcome, and I hope you get as much help from this group as I have.
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    Leg feels wet...but not

    Another day, another weird symptom for this yet to be diagnosed old gal. I know I've read about others feeling this, but I didn't pay much attention, and now I can't find any posts referring to it. ...
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    Maybe related to the fluid retention that seafood...

    Maybe related to the fluid retention that seafood can cause?
  24. Be careful with that Pristiq! Whatever you do,...

    Be careful with that Pristiq! Whatever you do, don't stop taking it abruptly!!!
  25. Thread: Newbie

    by jolynnhughes
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    Hi Shelley! Welcome! I have seizures too, but...

    Hi Shelley! Welcome! I have seizures too, but unlike you, I have yet to get a firm diagnosis. I have Hashimoto's, but that's the only autoimmune disease that shows in my bloodwork. For now, until...
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