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    Cracked tongue??? (long....sorry)

    I am back again!!! I found this site about a year ago when my neuro sent me to a rhuemy. My Sed rate and RH was high and she felt I needed to go. I have MANY of the signs and symptoms of...
  2. Thread: Tendonitis???

    by Deana
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    Thanks Ariel. It seems to me that Fibro and...

    Thanks Ariel. It seems to me that Fibro and Lupus have A LOT of symptoms that are the same, except that Lupus is much more serious of course, but the symptoms seem to be real similar. Maybe that is...
  3. Thread: Tendonitis???

    by Deana
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    Tendonitis???

    I have been to a rheumy, my GP and my neuro trying to come up with a diagnosis. I felt like I might have Lupus. I have most of the symptoms, but was not positive in my blood work. My bloodwork...
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    Bella

    Bella,

    Thank you for replying to my post...although I almost wish you had written it as a new thread...since I know so many others would have replied. I am afraid it will be "lost" down in this...
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    Really bummed!!! (long...sorry)

    Hi guys,
    Today I got the good news bad news thing. I went back to see my rheumy for my follow up appointment. He looked at me and told me that all my lab work was normal. My RF although positive...
  6. I know this is proabaly a really stupid...

    I know this is proabaly a really stupid question....I would think that this would be the first thing a Dr. would try, but since it wasn't mentioned.....have they tried pyridium? I know there are a...
  7. Thread: Lupus migraine

    by Deana
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    Awi, I found your post very interesting. I have...

    Awi,
    I found your post very interesting. I have had kind of mixed results with Toradol. It seems that I have a very high tolerance for prescription drugs. It usually takes a lot of anything to...
  8. Thread: pheochromocytoma

    by Deana
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    Pheochromocytoma

    Saysusie,
    Thank you SO much for your post. It WAS very informative. I am still waiting for my test results. I have an appointment in a couple of weeks to go over all of them. They have not...
  9. Thread: Lupus migraine

    by Deana
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    Migraine Meds

    I have had migraines for 7 years. It has been my experience that everyone is different in what meds will work for them. Mine are mostly hormonal, although I will get one if I get too little sleep. ...
  10. Thread: pheochromocytoma

    by Deana
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    pheochromocytoma

    I have just started "my journey" with the rheumy. He was very hesitant to mention the word "lupus"....especially since my ANA was negative. My resting heart rate was 115 while I was in his office and...
  11. Thread: ANA

    by Deana
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    reply to quickmelt

    If you don't mind would you please let me know what the results of your ANA are? I have managed to get into the rheumy, but he is really hesitant to say much about Lupus since my ANA was negative,...
  12. Thread: Got into rheumy!

    by Deana
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    Got into rheumy!

    Hi guys!
    My rheumy called yesterday and said they had an opening in the afternoon, so I went ahead and went in to see him instead of waiting til the 18th. As usual, I was kind of dissapointed. I...
  13. Thread: HEADACHE!!!

    by Deana
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    HEADACHE!!!

    Mitch,
    I am sorry about your headache today. I have had migraines for 7 years and TN for 2 and I know what they feel like. My TN is always to the right side of my nose and above my eyebrow. It is...
  14. Thread: HEADACHE!!!

    by Deana
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    Thanks, Hippimom! Can you tell me why your Dr....

    Thanks, Hippimom!
    Can you tell me why your Dr. won't write the DX as lupus for insurance reasons? That kind of confuses me? I just always thought if you had it, it was automatically listed. What...
  15. Thread: ANA

    by Deana
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    ANA

    I was wondering...is it possible to have a normal ANA at one lab draw and then abnormal at the next? I know the first one they drew was normal, but she drew it again and that is when they found that...
  16. Thread: Awaiting results

    by Deana
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    Cheri, I too am waiting for a DX. SO...I don't...

    Cheri,
    I too am waiting for a DX. SO...I don't know if I have Lupus either, but your symptoms sure sound familiar! My feet too are so swollen now...the right more than the left, and it really...
  17. Thread: HEADACHE!!!

    by Deana
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    4,399

    Headache!!!

    Thank you for your welcome!!! I have not been officially DX'd with Lupus and as I said...my Dr. (If I ever get in to see him) may have another DX all together, but it sure would explain a lot of...
  18. Thread: HEADACHE!!!

    by Deana
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    4,399

    HEADACHE!!!

    Hi guys!
    I am brand new to this forum, although I have been lurking for a while... :oops: I am waiting to get into see a rheumatologist. I have an appointment in about 3 weeks. My neurologist...
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