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  1. Replies
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    Yes, I agree with Nonna, the massages can really...

    Yes, I agree with Nonna, the massages can really hurt. I think pulsing is more what I'm looking for! Thanks Steve B.
    The ultrasound sounds a bit scary with the risk of burning! Thanks for the advice!
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    Soaks make me feel worse. It probably takes the...

    Soaks make me feel worse. It probably takes the pain away, but then brings it back and it feels ten times worse.
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    Don't want to waste my money...

    Has anyone tried a hand massaging machine? I found something called an iPalm that you put your hand in and it uses acupressure techniques combined with heat to massage one hand.

    If you haven't...
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    What should I ask/look for in my doc?

    I have a second opinion appointment set up with a new rheumatologist.

    I'd like to know what I should ask and what I should be looking for to know this is the right doctor for me. Can you provide...
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    I have 2 issues that happen irregularly that...

    I have 2 issues that happen irregularly that cause one or both of my eyelids to swell. The first is allergies. They can get that severe. The over the counter Zyrtec D seems to help me the best and...
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    Hi tomcatsgirl - my lupus was diagnosed because...

    Hi tomcatsgirl - my lupus was diagnosed because of my hands. My thumbs stopped working so I took it upon myself to go to a neurologist. They did horrible painful tests with needles, ect, turns out, I...
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    I get them. Any exertion can bring them on....

    I get them. Any exertion can bring them on. Walking in the grocery store, scooping kitty litter, riding in the passenger seat with the sun coming through the window. I've been tested and tested and...
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    I'd like the answer to this too. Does anyone...

    I'd like the answer to this too. Does anyone know? Can a Lupie not in a flair be advised by their doc no Lupus meds are needed?
    I was also advised I did not have the indicator and that my SLE...
  9. Thread: Celcept

    by Abbyrition
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    I never had nightmares on cellcept. In fact, the...

    I never had nightmares on cellcept. In fact, the cellcept is one that I don't notice any side effects from... Except feeling better.
    I did have horrible problems with amitriptyline & sleep. I...
  10. Thread: Celcept

    by Abbyrition
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    1,099

    Hi Jaynie. I had slight anemia before I was...

    Hi Jaynie. I had slight anemia before I was diagnosed with Lupus. The docs always want me to take iron pills, but that messes up my intestines so I'd rather be tired from the anemia than in that kind...
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    I know your pain, I'm there... Fighting against...

    I know your pain, I'm there... Fighting against my own pride and expectations. I fought to stay working and ended up having to take periods of Short Term Disability during the flairs. Then they...
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    I've always had dry skin. I could write or draw...

    I've always had dry skin. I could write or draw in my ashie-ness as a parlor trick when I was young. I detest the greasy feeling of lotions & even sunscreen... It's just not natural for me. I use...
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    Medrol or Hydrocodone?

    My question is: It appears I get similar relief regarding joint pain from the Medrol as I do from hydrocodone. I get negative side effects from the Medrol, and none from hydrocodone. Which is the...
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    Thinking of you & hoping the stuggles get easier....

    Thinking of you & hoping the stuggles get easier.

    I often find the struggles are always the same, it's the way we deal with them that puts us in a better position to cope with struggling. Talk...
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    I'm glad Steve.b is passing out hugs! I know I...

    I'm glad Steve.b is passing out hugs! I know I could often use a few when trying to figure out the medicine questions myself...
    I have SLE Lupus and Sjogrens. Right now I'm only on Cellcept and...
  16. Like colorsue I also flush. Mine happens when...

    Like colorsue I also flush. Mine happens when I've exerted myself, or am in the heat or sun for any amount of time. It gets quite embarrassing at times.
    As for temperature regulation while at work:...
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    Oh goodness, I'm sorry you've had this type of...

    Oh goodness, I'm sorry you've had this type of reaction to a medicine that has worked so well for me. I knew the risks, and was hesitant on taking an Amphetamine.
    I stopped it when I was cleared to...
  18. Thread: Lupus meds

    by Abbyrition
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    I've recently been advised by my doc to stop MTX...

    I've recently been advised by my doc to stop MTX due to hair loss (we tried just lowering the dose). My hair is colored and dyed, and I haven't noticed any differences on MTX as far as color or...
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    I had an allergic reaction to Plaquinil (the...

    I had an allergic reaction to Plaquinil (the generic) exactly 3 weeks after I started taking it. It was beginning to work and I was seeing improvements. I broke out from armpits to groin with red...
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    I'm so there with you about uninformed doctors....

    I'm so there with you about uninformed doctors. My primary told me I just need to lose weight before my diagnosis. I wanted to scream back at him, " Yea because all fat people have these problems!" I...
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    I'm a constant over-thinker... It makes multiple...

    I'm a constant over-thinker... It makes multiple choice tests a nightmare...
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    Funny enough there is additional strain on your...

    Funny enough there is additional strain on your heart when you gain weight as well... I think you have to be careful to make sure you know the risks of every medicine we are considering taking. But...
  23. Hi Debbie, I know we've posted a couple times...

    Hi Debbie,

    I know we've posted a couple times back amd forth. Recentley I was told to stop my MTX as well, as well as the steroids. The MTX was because my hair was falling out by the handful...
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    Sticky: HI Rob, Is there an update on this? I see your...

    HI Rob,

    Is there an update on this? I see your notice is from a year ago. Has this issue been tabled as unattainable? Is there some sort of ETA? As a newer member I'd like to feel a part of the...
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    Two of the best parts of my experience with my...

    Two of the best parts of my experience with my support system was that I waited to tell people about Lupus until I had more of a handle on my diagnosis, and what that meant to me. I needed to do my...
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