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  1. Replies
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    That is excellent news! I'm so glad you got a...

    That is excellent news! I'm so glad you got a winner! And I hope she remains your rheumy for a long, long time!
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    But on a more serious note ...

    the atrial fibrillation is bad. I saw my internist today. She said the heart monitor showed it's happening frequently and my heart rate is going over 160 bpm for these episodes. But when it slows...
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    Thanks, Rob! I go through stages. First is roll...

    Thanks, Rob! I go through stages. First is roll into a ball and just want to ignore the health stuff, then sigh and deal with it, and lastly be strong enough to grumble, lol. I was at the grumbling...
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    Thanks, Steve! kim, I'm sorry your husband is...

    Thanks, Steve!

    kim, I'm sorry your husband is going through this, too. It's kind of scary. I have my appointment with my internist in the morning. I trust her implicitly so I'm anxious to hear...
  5. Those do sound like rheumatoid nodules. Way in...

    Those do sound like rheumatoid nodules. Way in the beginning before I was even treated, I got lumps like that on my finger joints, knuckles, and elbows. A doctor biopsied one of them and it came back...
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    Oh, sharpie, I am SO sorry. I hate, hate, hate...

    Oh, sharpie, I am SO sorry. I hate, hate, hate our system. It is the SYSTEM and those who prop it up that are damaged and inferior, not the people like us who need and deserve care! But you know...
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    I totally understand. I get nervous when I have...

    I totally understand. I get nervous when I have to see new docs, too. So many of them want to reinvent the wheel, subject us to more tests, and arrive at their own conclusions despite our diagnoses....
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    Glad you had a good time! I got tired just...

    Glad you had a good time! I got tired just reading about all of your adventures, lol. Good for you!
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    Sorry for the absence -- it's been bad

    Hi all,
    It's been a few months since I posted! I've been having a really bad time with both the Lupus and Crohn's flaring. I was on high doses of pred. for a while and then had to go in to have my...
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    Yep, this seems to be the new reality. I had the...

    Yep, this seems to be the new reality. I had the same thing happen over a neurology referral. My internist had to fill out a slew of forms bundled with records to refer me to the neurologist who, in...
  11. hi leaann, Unfortunately, I know full well how...

    hi leaann,
    Unfortunately, I know full well how you feel. I have BAD reactions to the heat and strong sunshine and it's been HORRIBLE in Texas this summer. So, I've been stuck inside for months and...
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    Back from the ER

    It's been a tough 24 hours. The joint swelling was getting worse and I had a bad Crohn's attack besides. My GI tract is SO unhappy and I have no idea what triggered it. Anyhoo, since my usual bag of...
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    I'd heard that stevia can be bitter and is a...

    I'd heard that stevia can be bitter and is a decent substitute for some things but not for others. I didn't know there are two brands and the taste differs! thanks for the info, Steve!
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    Hi Sally! Welcome to the group!

    Hi Sally! Welcome to the group!
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    I don't know if it's just me (although I have...

    I don't know if it's just me (although I have read that it's been showing up as a common problem among Lupies) but I have BAD reactions to artificial sweeteners. I discovered this totally by accident...
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    Marla, That is just SO awful -- the spasms, the...

    Marla,
    That is just SO awful -- the spasms, the fall, AND the fact that the docs are jerks. I'm so sorry! I hope the spasms stop and you start to feel better soon!

    I'm glad you're moving back to...
  17. Nicole, I can't do chiropractic -- I have...

    Nicole, I can't do chiropractic -- I have spondylitis in my spine and have had to have spinal fusions. Back "adjustments" are a big no-no for me.

    I practice yoga and it's helped my back quite a...
  18. Thanks! Still muddling through, hoping it just...

    Thanks! Still muddling through, hoping it just runs its course. I don't think the constant heat is helping matters. I feel awful after I have to run errands.

    Elo, I have Raynaud's so using...
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    Oh, that's the pits! I'm so sorry and hope you...

    Oh, that's the pits! I'm so sorry and hope you get relief soon! I guess that's why my rheumatologist has always selected my eye doctor and wouldn't let me wing it. We have so many issues that need to...
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    I'm right there with you, in a stupid flare. I'm...

    I'm right there with you, in a stupid flare. I'm so sorry and hope you feel better soon! At least I don't have to drag myself to work anymore and wish you didn't have to do so, either! It's hard to...
  21. Grrr, troublesome flare and I can't reach a doc

    I've been in a lot of pain for the past couple of days. My low back and hips are hurting terribly, fatigue is awful, and now my left knee has swollen up like a balloon for some unknown reason. LOL,...
  22. Thread: tramadol

    by JuliaL
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    Tramadol is good stuff. It manages regular pain...

    Tramadol is good stuff. It manages regular pain effectively with no side effects. It's my go-to pain med unless I'm in severe pain -- for that, I take hydrocodone.

    Note, though, that if you have...
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    Thank you for the encouragement! I'm taking this...

    Thank you for the encouragement! I'm taking this in one day increments. That's all I know I can manage successfully and I tend to be a very practical person. I haven't licked it -- there will always...
  24. Thread: Hi, Everyone!

    by JuliaL
    Replies
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    Welcome, lrs! I'm sorry you were diagnosed with...

    Welcome, lrs! I'm sorry you were diagnosed with Lupus but glad you're looking for help and support! It's a lot to wrap your mind around and most people just don't understand!

    As for your question...
  25. Hi Jabu! Welcome to the group! I'm new, too, and...

    Hi Jabu! Welcome to the group! I'm new, too, and have settled right in so I hope you do the same! Glad you're here!
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