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  1. Replies
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    thank u 4 the info. actually i'm not 2 worried...

    thank u 4 the info. actually i'm not 2 worried about the sun. i may be an anomaly but the cold is what makes me flare up. i'm looking 2 move somewhere hot. where the sun shines and there's virtually...
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    anyone from/live in Brunswick, GA?

    i wanted to know if anyone knows anything about Brunswick.

    the weather, people, things to do, etc
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    thanks marla 4 the info. especially nashville...

    thanks marla 4 the info. especially nashville cause i want 2 visit there and memphis
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    thanks marla 4 the info. especially nashville...

    thanks marla 4 the info. especially nashville cause i want 2 visit there and memphis
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    asking someone that's not disabled doesn't always...

    asking someone that's not disabled doesn't always yield the answers u want. that's why i came here 2 ask since most of us suffer from some sort of physical limitation. what better place 2 get a more...
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    Disabled/Wheelchair friendly Cities?

    I wanted 2 know what cities are handicapped friendly?

    I went to Atlanta recently and found it 2 be pretty accessible. If you're in a wheelchair(especially), in the city you have the train/buses...
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    I'm in Detroit. But if u want 2 see if there is a...

    I'm in Detroit. But if u want 2 see if there is a chapter near u, go to www.milupus.org click on the support link 2 see if there's one up there near u
  8. Thread: Dating

    by cnlb2005
    Replies
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    1,000

    i'm in a similar situation. i'm separated. i...

    i'm in a similar situation.

    i'm separated. i was with my husband 4 over 10yrs. he basically gave up because he couldn't deal with my illness anymore.

    i've met someone recently and they don't...
  9. Thread: I'm screwed

    by cnlb2005
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    I'm screwed

    i don't know where 2 begin! I might just need 2 vent.

    i have lupus and polymyositis. i'm using a wheelchair now(i'm 32). i had 2 by a minvan 2 accomodate the chair. but the problem is i can't...
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    nice 2 meet some of you

    nice 2 meet some of you
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    961

    where is ev1 from?

    i was just curious as 2 what we all have and where we all r from

    submit your stats. use this format.
    (age-gender-location-condition)

    32 - female - detroit, mi - lupus&polymositis
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    i am the same way. i've been that way ever since...

    i am the same way. i've been that way ever since i started taking prednisone. sometimes i even have violent thoughts. those however were in the beginning(about 12yrs ago). i used to will go off on...
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    energy drinks, do they work?

    i have lupus and polymyositis. i suffer with chronic fatigue and weakness.

    i wanted to know has anyone tried any of the energy drinks. if so, do they seem to help and what ones do you use?

    let...
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    :) i want to thank you all 4 your words of...

    :) i want to thank you all 4 your words of encouragement. i'm taking it day by day and praying for the mental, emotional, and physical strength to make it through.

    thanks
    nicole :)
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    u sound a little like me. in the summer i fair a...

    u sound a little like me. in the summer i fair a little better. but since 2003 i've increasingly been getting worse even in warm weather.

    i've been using a cane since 1996 anyway but this chair,...
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    I'm now in a wheelchair

    i just needed 2 vent. i've been living with lupus and polymyositis since 1994. i've had ups and downs. but since 2003 i've been more down than up. it has gotten so bad that i don't go anywhere...
  17. i been living(suffering) form lupus since...

    i been living(suffering) form lupus since 1994(12yrs now). seems like for the first 6-7yrs the sun or extreme heat made me sick and the cold worked better. but in the last 3-4yrs i've notice that the...
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    does anyone have polymyositis?

    I have Lupus and Polymyositis. I was diagnosed with Lupus in 8/93 and Polymyositis in 12/94. Since then I've been on Prednisone.

    Currently I take the Prednisone as needed. I feel as though my...
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    thank you for that information. u'd understand...

    thank you for that information. u'd understand better than somene that don't use anything to get around.

    i use a cane but i'm going to have to get a wheelchair because i notice i'm progressively...
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    u have to live your life but i recommend being...

    u have to live your life but i recommend being around people that know and understand your condition that way if something happens they'll be patient and know what to do.

    please make sure you...
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    hi teresa i'm nicole and totally feel u. i've...

    hi teresa

    i'm nicole and totally feel u. i've suffered from lupus & polymyostis since 1994. i too feel alone and i can be in a room of 200.

    try to keep your head up and do what u can and not...
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    anyone live in or near atlanta,ga

    i'm planning on moving ti atlanta in the next couple months and wanted to know how much is the city handicapped accesible. what i mean is how friendly to the disabled is it.

    if anyone can let me...
  23. Thread: HOT and COLD?

    by cnlb2005
    Replies
    7
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    1,525

    i personally can tolerate the heat better than...

    i personally can tolerate the heat better than the cold. i live in MI and i'm planning on moving to GA because of this. in the winter when i step outside if it's below 40degrees my body immediately...
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    i can totally agree. my lupus has affected my...

    i can totally agree. my lupus has affected my marriage so that we have been separated almost 2yrs. he told me that he burned out. i understand but instead of turning to other women he should have...
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    i've been on predinsone since 12/94. the worst...

    i've been on predinsone since 12/94. the worst initial side efeect i had was the uncontrollable urge to eat. if this happens 2 u try 2 fight it. if not try to eat low-fat and low-cal foods. i gained...
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