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  1. Thread: Blood Pressure

    by Bama
    Replies
    3
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    863

    Blood Pressure

    I know lupus with kidney involvement can cause high blood pressure, but has anyone had low blood pressure with their flares? I get extremely nauseated and my blood pressure drops really low – 90/60....
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    4,336

    I'm having those episodes too right now. I get...

    I'm having those episodes too right now. I get nausated and feel like I'm going to pass out if I don't lay down. If I don't lay down, I have passed out before. I've been telling my doctors about...
  3. Thread: breaking hair

    by Bama
    Replies
    1
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    504

    breaking hair

    Do you guys know of anything to help with the broken hairs caused by Lupus? My hair dresser suggested Nioxin shampoo, but I'm not sure it is doing anything.
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    592

    Flare after head cold

    Does anyone else have troubles with flares right after a head cold? It seems like head colds always leave me in a bad flare. Righ now I'm really nauseated and sometimes I will feel faint and even...
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    I just read a neat saying on a friends web site:...

    I just read a neat saying on a friends web site:

    "Don't tell God how big your storm is, tell your storm how big your God is."
  6. Hi Heather, Sorry to hear about your frustrating...

    Hi Heather,
    Sorry to hear about your frustrating symptoms and lack of doctor support. Autoimmune diseases are very frustrating to both patients and doctors. It may take years for enough specific...
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    I think a lot of the problem with treating...

    I think a lot of the problem with treating autoimmune patients like hypochondriacs is because most of us don't look sick. I don't know about other people, but I also didn't have the typical markers...
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    879

    Sorry to hear that your liver problems have...

    Sorry to hear that your liver problems have progressed so far. What medications do they have you on? Have you had a liver biopsy?
  9. Replies
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    879

    I have Lupus and (AIH) Autoimmune Hepatitis. ...

    I have Lupus and (AIH) Autoimmune Hepatitis. Luckily my AIH is very mild and is controlled well with the drugs I take to keep Lupus under control (100 mg Imuran 7.5 mg of Prednisone and 400 mg of...
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    The hardest thing for me to overcome was the...

    The hardest thing for me to overcome was the feeling that you shouldnít question your doctor. Now that seems like thatís all I do! Doctors have to balance keeping the insurance companies happy and...
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    I completely understand how you feel. I just...

    I completely understand how you feel. I just finally got an official diagnosis after 13 years of visiting doctors. Doctors can be very hurtful when they don't understand what is wrong with a...
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    Thanks Lori. It sounds like we have lots in...

    Thanks Lori. It sounds like we have lots in common illness wise. That does give me hope that it can be done after so many years. I think my doctor tried way too fast. I was at 10 mg after my son...
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    Thanks for the warm welcome everyone. Hi Lori,...

    Thanks for the warm welcome everyone.

    Hi Lori, do you have APS as well or just Lupus? Luckily I went into labor before the HELLP syndrome got serious enough to show life threatening symptoms. ...
  14. Thread: MCTD

    by Bama
    Replies
    9
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    1,169

    Spoon Theory

    I so understand the pain when people ask you how you are doing. Usually I just smile on the outside, but it make me want to cry on the inside. It really stinks when doctors don't seem to understand...
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    adrenal insufficiency and prednisone

    I have been on some dose of prednisone for over 4 years. Most recently I have been on 10 mg while I was pregnant. After my baby was born I flared again so imuran was added back. Before I was...
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    Newly Diagnosed After 13 Years!!!

    Hi everyone. Iíve been a quiet member who has been reading posts for quite some time. Doctors had always told me I didnít meet enough of the criteria to be diagnosed with Lupus. So like many of...
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    The conference went well and I thought it was...

    The conference went well and I thought it was worth the drive. They had two Rheumatologists, a Nephrologist, and a Dermatologist. One of the Rheumatologists was from University of North Carolina...
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    I can be in a room with uncovered florescent...

    I can be in a room with uncovered florescent light bulbs for 30 minutes and feel the effects of the UV. One office I work in has nothing but uncovered florescent lights so I have to wear sunscreen...
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    Lupus Now Conference In Alabama

    Is anyone else going to the Lupus Now conference in Birmingham? It is this Saturday and it is free. Has anyone been to one of these in another city?

    www.acteva.com/go/LupusEducation
  20. Thread: foot sores

    by Bama
    Replies
    10
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    2,580

    Sorry I haven't written back until now. I tried...

    Sorry I haven't written back until now. I tried getting off Imuran and ended up not feeling well for awhile - it takes about 6 weeks to start working again. They gave me steroid creams for my hands...
  21. Thread: foot sores

    by Bama
    Replies
    10
    Views
    2,580

    My Chilblains Lupus sores healed up with 20 mg of...

    My Chilblains Lupus sores healed up with 20 mg of prednisone. Later on they put me on 100 mg of imuran and decreased the prednisone. I felt much better on imuran than prednisone - wasn't so...
  22. Thread: foot sores

    by Bama
    Replies
    10
    Views
    2,580

    There are lots of different types of sores...

    There are lots of different types of sores associated with Lupus. I get something called Chilblains Lupus. Apparently it is kind of rare, but it really hurts. I went all over the country looking...
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    Thanks for the info Mary. I've been on...

    Thanks for the info Mary. I've been on Prednisone for awhile and I don't feel any worse than usual so I think I'll try to hang on till my appointment at the end of Jan. I see my dermatologist in...
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    Does anyone else have petechiae?

    I was wondering if anyone else has problems with petechiae - tiny pin sized red dots from broken capillaries? Recently I've developed lots of them all over my body - face, trunk, and arms. Are...
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    I felt my best when taking 100 mg of imuran and 5...

    I felt my best when taking 100 mg of imuran and 5 mg of prednisone. I was supposed to try imuran only, but my husband and I wanted to try and have a family so I've gone back to 10 mg of prednisone...
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