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  1. I had a liver biopsy and thats were they saw th...

    I had a liver biopsy and thats were they saw th scaring in the biluary tract of my liver. My liver enzymes have been normal for almost a year, Iam slowly being weaned off prendisone. I down to 4 mgs....
  2. thankyou for your imput. i have alot of scaring...

    thankyou for your imput. i have alot of scaring in the biluary tract (cant spell!) of my liver. if my liver emzymes would not come down they were going to put me on a transplant list.
    thanks agian
  3. Thread: new member

    by ethanandrew
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    i feel for you. i cant believe how my life has...

    i feel for you. i cant believe how my life has chaned. i have hope i almost died about a year ago from liver failure. take care i will pray for you

    emuran,predisone,praqinill, tramedol,...
  4. Does anybody have auto immune hepitis?

    over a year ago my liver enzymes were 1900. now i have cirrhosis of the liver. i hear alot of lupus peaple have kidney problems. lupus attacked my lungs, heart and liver
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    Thanks so much for listening

    Iam on praqinal, predisone,and emuran, I just need to get my pain level under control. I dont want to take norcotics, There has to be a way to get my pain level under control
  6. Replies
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    pain meds/ fight to get them

    Hi
    I have systemic lupus, lupoid hep., fibro, and ra. I was on oxycodone for pain because I cant take ibouprofen, or tylenol, because of my liver. I want to try tramidol because its not a narcotic....
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    Iam in a big flare right now to. Ihurt in my...

    Iam in a big flare right now to. Ihurt in my lower back, legs, feet, headache, depression, hands and ribs. Ican never predict when a flare is going to end. when it goes Its such RELEIF. Iwas...
  8. Thread: New Member

    by ethanandrew
    Replies
    7
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    1,236

    I love your self disapline. Good for you Iam very...

    I love your self disapline. Good for you Iam very proud of you and it made me cry. I quit smoking 1.50 weeks ago. Today I going threw some terrible withdraws. your story has given me strenght to keep...
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    Thanks so much for listening

    I want to thank all of you for your feed back on the personality changes that I have been going threw. I have to realize that this last year has been pretty bad.
    I had to quit nursing school with 2...
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    personality changes and mood swings ?

    hi

    In the last few weeks Ihave noticed and so have others that Iam more out spoken and moody. I used to be a very passive person, nothing seemed to bother me. Now Ifeel like if somthing makes me...
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    hi luvwine i have the chest pain to. when i...

    hi luvwine

    i have the chest pain to. when i was in the hospital in july, i had pleuresy. the pain never went away so i asked my doc. about it she told me she could hear no rub and also xrayed my...
  12. hi i know what the nagging rib pain is all...

    hi

    i know what the nagging rib pain is all about. I have had it since i was diagniosed in july and it has never went away. I see a lupus specialist she told me the this is part of lupus. I also...
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    THANKYOU for the support and information. what do...

    THANKYOU for the support and information. what do you feel like when your in remmison? do you still have pain?
  14. Replies
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    saysusie do you know or have info. on what...

    saysusie

    do you know or have info. on what kind of treatment is used for rib pain
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    numb feet and hands

    hi,

    Does anybody have tingling and numbness in there feet and hands? I took a walk the other day and my feet were numb by the time i was done. my hands keep falling asleep and are numb and...
  16. Thread: ER

    by ethanandrew
    Replies
    1
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    547

    Be patient, You wont believe it but all of a...

    Be patient,

    You wont believe it but all of a sudden the praqinal kicks in I noticed it about 6 weeks after starting it. I also take cellcept. Hang in there!
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    Thank you all and God bless Ifeel better and it...

    Thank you all and God bless Ifeel better and it is good to vent and talk about whats going on Thank God for this web site
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    Hi Becky, My name is Becky to. Iuse my...

    Hi Becky,

    My name is Becky to. Iuse my Grandsons name on the forum. I to was just diagnosed in july. I was a college student for 3 years i was 2 semesters from completeing my nursing degree. I was...
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    protien in urine

    hi

    Got a call from doc yesterday, she told me the results of my labs. She said my liver enzymes look good (auto immune hept.) but i have protien in my urine. can ANY BODY FILL ME IN ON WHAT THIS...
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    information on pain patch?

    I was wondering if anybody has information on pain patches. Do they work and I have a problem with pain meds because of my liver. My lupus hit my liver not my kidneys. I have to take meds that dont...
  21. thanks for the info. i want to get married in...

    thanks for the info. i want to get married in july, just a simple wedding NO STRESS ha ha. I have such a wonderful guy. were going to get married in wisc. I have lived in louisiana since aug. My guy...
  22. flying in a plane or traveling effects lupus flare?

    hi,

    this is the second trip i have made on an air plane in the last 4 months. every time i fly i go into a big flare. right now iam in a great deal of pain i just got home 2 days ago. I also...
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    hi tadpole, Iam originally from wisc. lived...

    hi tadpole,

    Iam originally from wisc. lived there all my life. I recently moved to louisiana with my husband to be. I flew home for christmas and the temp was about 10 degrees. below zero at...
  24. thanks faith, i cant take anything but...

    thanks faith,

    i cant take anything but oxycodone for pain because of my liver enzymes. i think ibuprophen would work better than oxy. the oxy really doesnt do much for the pain . it just takes the...
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    When i developed a rash from drinking it was my...

    When i developed a rash from drinking it was my liver. my liver enzymes were sky high and i didnt know it. lupus it seems attacks the kidneys. mine attacked my liver. i dont mean to scare you. your...
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