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Type: Posts; User: redstringsoul

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  1. Replies
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    My husband and I have been together for over a...

    My husband and I have been together for over a decade and lupus has always been a part of our lives, even if we didn't know it at the time. Having a diagnosis, first of UCTD and then having that...
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    Between lupus, homeschooling and a 5 year old...

    Between lupus, homeschooling and a 5 year old daughter, my house is a constant battlefield of clutter. Best way I've found to keep neat is to get rid of stuff we don't need. Like Steve said, if you...
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    Is prednisone worth it?

    I've been on Plaquenil for about a year now. I've not always been great about taking it but have been very good about it for the past 10 months or so. (Having a weekly pill box that I take with me...
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    So sorry to hear that your boyfriend is worried...

    So sorry to hear that your boyfriend is worried that his symptoms may be indicative of lupus. The thing is that everyone's case is different and as steve pointed out, earlier diagnosis is helpful for...
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    It's like London in my head

    My brain fog has been SO badly lately. I've really been struggling to trying to stay cognizant of everything that I'm supposed to be doing. (Those last two sentences took me five minutes because I...
  6. High protein diets for weight loss and lupus?

    I'm about 100 lbs overweight. (I've got prednisone to thank for the last 10 pounds to put me where I am now. *sigh*) I know I need to lose weight so I'm overhauling my diet. I also have pre-diabetes...
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    Blister! That's the word I was looking for --...

    Blister! That's the word I was looking for -- this was pretty much my exact experience. Hmmm, I guess I'll just have to keep an eye out. I hate going to the dentist, too!! :(
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    Lump in mouth

    I had an odd-ish experience a few months back and then again a few weeks ago and was wondering if it may be a symptom of lupus since I know that some people have mouth issues during flares. I had a...
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    Thanks for the information! I will start the...

    Thanks for the information! I will start the process going and see what happens. I know so many people get denied but better to have tried than not, I suppose. I've been putting it off because coming...
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    Wondering about disability (US)

    I left the corporate world about five years ago when my daughter was a baby and was planning on going back to work when she got to be school aged. I worked in IT which involved a lot of time running...
  11. I'm a case where MCTD was an interim diagnossis....

    I'm a case where MCTD was an interim diagnossis. I was originally diagnosed with MCTD when I first went to the rheumatologist; it wasn't until I reported a few more symptoms that I hadn't figured...
  12. Thanks for the replies! I do have one more...

    Thanks for the replies! I do have one more question -- how soon can I expect some relief? I'm on my second day of prednisone and I'm definitely feeling LESS crappy than I was last week. I still ache...
  13. Prednisone 10mg for 4 weeks -- what can I expect?

    I've been flaring for the past week or so pretty badly so the rheumy is suggesting prednisone @ 10mg/day for 4 weeks to "cool down" my joints. This latest flare is the latest in a few weeks of sore...
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    Plaquenil questions

    I've been prescribed Plaquenil for over a year now. I haven't always been great at taking the meds but have been taking it more-or-less steadily from last May through December and then got lazy about...
  15. I've been experiencing symptoms of joint pain and...

    I've been experiencing symptoms of joint pain and fatigue for over a decade. It took 6 years for me to even bring it up to the doctor who dismissed it and then another 4 years and 3 more doctors to...
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    Plaquenil and the flu season?

    This is my first cold/flu season after starting Plaquenil and it's been a doozy. So far I'm going on my fourth week of being sick, having had bad colds/flus that have stacked right on top of each...
  17. Thread: Blisters

    by redstringsoul
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    Blisters

    Does anyone have non-rash skin issues associated with their lupus? I'm in the middle of a mostly-skin based flare right now. I don't get the classic butterfly rash but I do have a pretty good rash...
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    Fatigue and working out

    I'm currently 80+ pounds overweight. One of my biggest fears is the possibility of taking prednisone somewhere down the line and gaining even more weight.
    So I'm trying to lose weight now to sort of...
  19. Feeling uncomfortable with my doctor

    I have an HMO that allows you to email your doctors. I emailed my primary health care provider about some weakness I've been feeling in my arms. Like, I've been having to rest my arms when drying my...
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    Thanks for the replies! I'm definitely gonna get...

    Thanks for the replies! I'm definitely gonna get cover ups but I'm happy to hear that I may not have to sit it out. Thanks!
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    Outdoor sports

    Before the diagnosis (geezus, was this just last week??) my husband and I were planning on getting bicycles so we could ride together with our daughter as a family for exercise. We were just saving...
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    Sun Protection

    Hi everyone! I'm newly diagnosed with lupus and I'm wondering if anyone can give me some good sun protection tips. I've never been an outdoorsy kind of person but I am Filipino and naturally very...
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    Thank you everyone for the welcome and the kick...

    Thank you everyone for the welcome and the kick in the pants! I know that I've been lax with my medications and as I am learning more about lupus -- and scaring the pants off of myself in the process...
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    Hello -- New Here :)

    Hi! Just dropping in to say hi! My name is Michelle :) I've been dealing with joint pain for nearly all of my adult life. Around 20 years old, I would have episodes where some joints would swell up...
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