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Type: Posts; User: KTJ

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  1. Replies
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    Big up the PEACH!

    You are so brave!!!
    Im sorry things got so far that you had no choice but I am sooooo impressed with what you did!
    What a role model!
    I hope you celebrated with style!
    No-one deserves to be...
  2. Thread: Breathing Problems

    by KTJ
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    Hi Val, Sorry you are having such a difficult...

    Hi Val,

    Sorry you are having such a difficult time of it! I am a fellow brit living in Oxford.

    The law is changing in Britain so your GP will be able to refer to any hospital in the country....
  3. Thread: teeth too?

    by KTJ
    Replies
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    2,171

    Hi the Dizzy, It is great to see a fellow brit...

    Hi the Dizzy,

    It is great to see a fellow brit on here.

    Which hospital are you under? If you can try and get yourself into Southampton. They have a specialist Lupus Unit and a great team of...
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    A note of thanks

    Morning Overit,

    Sorry to hear you are having the pluresy issue! I was diagnosed with pluresy this time last year and everytime I take a deep breath it still hurts. My Rummy said it is scarring...
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    Sorry you have had such a rough time Kimb. I get...

    Sorry you have had such a rough time Kimb. I get v frustrated at having to go to hospital all the time. I want a life and I dont want to be a pin cushion! Especially the Blood Gases test they do in...
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    You know you have Lupus when... You can...

    You know you have Lupus when...

    You can casually walk back into your office after spending 20 mins in the bathroom not because of any stomach problem but because you fell asleep!

    and

    When...
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    Thanks

    Thank you so much for that Saysusie. You really have put my mind at ease. Where do you find out all this information?

    Thanks for all the hard work you put into this site. As many others have said...
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    Has anyone heard of Shrinking Lung Syndrome?

    Morning All!

    Supposed to be working but my head is full of cotton wool so I thought I would do a little Lupus research instead.

    I went to see a new Rheumie last week. In the UK we get free...
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    Keep on going!

    Sorry you are feeling so low at the moment. It stinks! Those days when you cannot bare to be in your flat because it is such a mess and you havent washed up in days and you have no food in, but at...
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    I guess it is a little vague to just say please...

    I guess it is a little vague to just say please find a way to make me better!!! :wink:

    I know there are loads of genetic trials going on but I was wondering if anyone has looked at the...
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    Slightly embarressing!

    Ok I cant believe I am putting my name to this but does anyone else get green pee?

    I first noticed it when I was having my last really bad pneumonitus infection and I was in hospital. The Dr's had...
  12. Thread: Not Playing

    by KTJ
    Replies
    4
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    1,113

    Thanks so much for your kind replys! It is so...

    Thanks so much for your kind replys! It is so weird to have people out there who understand! I feel all warm and fuzzy!

    Just to let you know I stopped being quite so stubbourn and actually took...
  13. Thread: Not Playing

    by KTJ
    Replies
    4
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    1,113

    Not Playing

    Im not playing this Lupus game today! Its my life and I should have choices! I used to have choices but now everyone else seems to have their say in what I do. If it isnt Dr's telling me what I must...
  14. Thread: Lymphoma!?!

    by KTJ
    Replies
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    1,482

    Hi! I only found this site earlier this week and...

    Hi! I only found this site earlier this week and I have smiled more since reading things on it than I have in a while.
    When I saw someone writing about lymphoma my heart lept!
    I ended up being...
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