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  1. Replies
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    Oluwa; It is amazing to me how you can still...

    Oluwa;
    It is amazing to me how you can still find ways to express humor amidst all of your tribulations. Only you can gauge the mitigating factors against those factors that aggravate (especially...
  2. OK.. it appears that she is treating your...

    OK.. it appears that she is treating your symptoms WITHOUT regard for you auto-immune disorder and you are correct, that is not good! Here, again, is an example of the patient educating the doctor. ...
  3. I would have never considered it to be a nervous...

    I would have never considered it to be a nervous disorder. But now that you mentioned it, I will pass it along to my son as his wife drinks about 2-3 gallons of water per day and she has been...
  4. Uggh...Let me read your other post and respond...

    Uggh...Let me read your other post and respond there :-(

    Peace and Blessings
    Namaste
    Saysusie
  5. Hi Heron; Is the new GP that you discussed the...

    Hi Heron;
    Is the new GP that you discussed the one that you saw Friday?? If so, again I am glad that you feel that she will work out for you!!

    Peace and Blessings
    Namaste
    Saysusie
  6. Heron; I have to honestly say that you are the...

    Heron;
    I have to honestly say that you are the only person I've ever heard of who suffers from drinking TOO MUCH water!! That just blows my mind (lol). Most of us have to work hard to drink...
  7. Hi Heron..yes it is your favorite moderator again...

    Hi Heron..yes it is your favorite moderator again who does indeed care and who does indeed read everything. I've noticed that we can have 60-70 people lurking around and reading posts, they are just...
  8. Thread: New Member

    by Saysusie
    Replies
    3
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    40

    Hello and welcome to WHL. I've never taken...

    Hello and welcome to WHL. I've never taken Methotrexate, so I am unable to respond to your question about side effects. But, it is not unusual at all, with this disease, to have to change meds,...
  9. Ugh! I know how frustrating this can be. ...

    Ugh! I know how frustrating this can be. Especially with doctors saying two completely different things and then having one who ignores several issues to focus on one that you know the reason for!!...
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    Hi Heron; Like Steve, I have a FB account that...

    Hi Heron;
    Like Steve, I have a FB account that I use mainly to promote my perfomances. The Wehavelupus FB account, as Steve mentioned, has absolutely nothing to do with this WeHaveLupus forum and...
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    WHL is also on FACEBOOK!!

    Hello WHL family. Did you know that WeHaveLupus is also on FACEBOOK???? Many of the members here are also friends on our Facebook page. Please come and join us there also, we are over 1000 members...
  12. Hi N Mac; Glucosidase inhibitors are drugs...

    Hi N Mac;

    Glucosidase inhibitors are drugs that work by reducing the amount of glucose that the intestines absorb from food. This prevents the sharp rise in blood sugar levels that people with...
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    Hi There! welcome!! I'm not a man, but I am...

    Hi There! welcome!! I'm not a man, but I am also from California - actually SoCal. What area are you in?

    Saysusie
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    Hello Stardust; Welcome to WHL. Your daughter...

    Hello Stardust;
    Welcome to WHL. Your daughter has Lupus and you feel that you also have a connective tissue disease? Are they running tests to see if you do, indeed have this type of disease? ...
  15. You are absolutely right, it is a waiting game. ...

    You are absolutely right, it is a waiting game. That is one of the things that makes this disease (and all other auto-immune diseases) so heinous! I hope that you do not get any of the scarring due...
  16. Thread: New here

    by Saysusie
    Replies
    6
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    106

    Hello Organicman25; Welcome to WHL. I'm sorry...

    Hello Organicman25;
    Welcome to WHL. I'm sorry that you are having issues that have not yet been diagnosed. However, I'm glad to hear that your doctor is at least treating your symptoms. Many...
  17. Thread: New here

    by Saysusie
    Replies
    6
    Views
    106

    Hello Britt; Welcome to WHL - I am glad that...

    Hello Britt;
    Welcome to WHL - I am glad that you joined us. I do hope that you are able to find the support, information, and understanding that you need here. We are here to help you in any way...
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    Hi SageHen; Welcome to WHL. I am one of those...

    Hi SageHen;
    Welcome to WHL. I am one of those people, like you, who suffers from both Lupus and Fibromyalgia. It is sometimes difficult to know which disease is causing what pain (lol).
    I'm...
  19. Actually, Plaquenil is the first line of defense...

    Actually, Plaquenil is the first line of defense in treatment for Lupus of the skin. Plaquenil is a cumulative drug and can take weeks to a month before you see any noticeable results. However,...
  20. Thread: Sooo confused

    by Saysusie
    Replies
    2
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    52

    Hi Sheryl; I cannot add anything better than...

    Hi Sheryl;
    I cannot add anything better than what Steve has already suggested. I agree with him 100%, it might be time for you to see a rheumatologist - a specialist for auto-immune/connective...
  21. You are most welcome. Here is a bit of...

    You are most welcome. Here is a bit of information about skin issues with Lupus: "Skin problems are a common feature of lupus. Some people with lupus have a red rash over their cheeks and the bridge...
  22. Good for you Heron. Remember, we are here for...

    Good for you Heron. Remember, we are here for you! Keep up the good work of standing up for yourself. This disease is so heinous that those who do not understand it want to label us as...
  23. Just as there are many different types of SLE,...

    Just as there are many different types of SLE, there are many different types of Lupus of the skin; discoid lupus being only one of them. The rashes in Lupus are equally varied and not two persons...
  24. "A key finding of the study involved the...

    "A key finding of the study involved the researchers characterizing the way specialized white blood cells known as CD4 T-cells use nutrients. In lupus, these cells used mostly glucose, a type of...
  25. I know that it is very difficult for us to get to...

    I know that it is very difficult for us to get to the point where we no longer allow our doctors to intimidate us and where we make demands of them in the interest of our health. But, we MUST get to...
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