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  1. Replies
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    Positive attitude; and great family support; as...

    Positive attitude; and great family support; as well as blessings from above had a lot to do with it too! :)
  2. Thread: ~New Member~

    by LindaJ
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    thank-you once again for the clarification. I was...

    thank-you once again for the clarification. I was concerned over the holiday because my ANA was 116!!! yet my dsDNA was negative. After inquiring at my doctor's office....I finally got a call from my...
  3. Thread: Kidney Biopsy?

    by LindaJ
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    Wow! Thank-you for the clarification of the ANA...

    Wow! Thank-you for the clarification of the ANA vs dsDNA! I recently got test results showing both! The ANA was 116 which I thought was really high since my last one was 11, and my dsDNA was negative...
  4. Thread: Kidney Biopsy?

    by LindaJ
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    I had one or two done in my lifetime. They numb...

    I had one or two done in my lifetime. They numb you and you don't feel anything but pressure. They did not put me under as I still remember this (I was only 16 and 19 and I am not 62). After they do...
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    Do you have fever, feel exhausted, have any joint...

    Do you have fever, feel exhausted, have any joint aches??? These are other signs too that you could point out.
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    Don't EVER give up!! I am a Lupus veteran of 48...

    Don't EVER give up!! I am a Lupus veteran of 48 years and I have had many flares. They are not easy, but you can and will overcome. The many flares eventually (after 28 years) ruined my kidney. But...
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    I don't know if you are still following on this...

    I don't know if you are still following on this site but yes, I have taken Imuran for quite some time now (20 years.) It immediately made my gums puffy. My dentist noticed it right away. On the...
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    Welcome, I have had Lupus for 48 years and I do...

    Welcome, I have had Lupus for 48 years and I do know some of the blood work but not all. They look for a positive ANA (anti-nuclear antibodies). I don't know the range that is different but it shows...
  9. Thread: ~New Member~

    by LindaJ
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    Hi! I haven't been on this site since this...

    Hi! I haven't been on this site since this summer. Looks like you both were near neighbors to me before you moved (I live in Glen Ellyn). I too have had Lupus for many years.....say 48 years...and...
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    I am no longer on prednisone (weaned off for...

    I am no longer on prednisone (weaned off for Plaquinel). I did small steps from 2mg to 1 mg to none. I was probably very fortunate, but I did not feel any difference. It could be that I was not in a...
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    Hello! So sorry you are both going through all...

    Hello! So sorry you are both going through all this unknown torture. I cannot comment on all of what you have said however, I think I would be correct in saying that the c3 and c4 should not bounce...
  12. I am curious. Does this rush of heat ever happen...

    I am curious. Does this rush of heat ever happen while you are sleeping? I find I become very warm and need to take of my nightgown quite often lately. I have also discovered that my ANA has shot up...
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    Sticky: Hello. I can imagine that gong without a...

    Hello. I can imagine that gong without a diagnosis can be so frustrating. You said youhave livido retcularis.... I have never heard of that. (actually, on this site I am hearing about so many...
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    Good evening Sallie, Thanks for the...

    Good evening Sallie,
    Thanks for the congrats :). I am glad that at least they are starting to get the symptoms under control. Perhaps this will be the start of recooperating.
    Don't worry that...
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    HI! I took prednisone for a long time and I am...

    HI! I took prednisone for a long time and I am wondering if it is the cause of me having 'drusin' which are precursers to macular degeneration. I also have cataracts which are not bothering my vision...
  16. Thread: Hello Everyone

    by LindaJ
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    Hello, First I would like to welcome you...

    Hello,
    First I would like to welcome you to this site. You are young. I too was first diagnosed when I was young...14. Everything was a big blur for me back then. I think that one of the...
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    Hi Sallie! Your story sounds similar to mine. I...

    Hi Sallie! Your story sounds similar to mine. I have had lupus for 47 years and I too never sought out any site. I found this one by accident trying to find out about a drug called Plaquenil. On...
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    I just read about your painful/itchy skin...

    I just read about your painful/itchy skin problem. I am so sorry you went through that. It sounds so aweful. I pray that you are better now. Hopefully they have found a way to take you out of all...
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    Sticky: Can't say I have a rhuemy that I would...

    Can't say I have a rhuemy that I would recommend......the doctor I counted on died a few years back. However, if any of you get to the point where you would need a nephrologist and you live in the...
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    Your reply is really cute! Brought a smile to my...

    Your reply is really cute! Brought a smile to my face on a long tiring day!
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    Hi Debbie, Perhaps you are not an odd-ball...

    Hi Debbie,
    Perhaps you are not an odd-ball with the Plaquenil but it's just not the right time for it. My new 'rheumy' decided to put me on it when my Lupus seemed pretty much in control. I was...
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    Hi again! I am responding to the 'my face is...

    Hi again! I am responding to the 'my face is puffy" from prednisone being bumped up. Hopefully you are down on a more manageable dosage since this post was July 6th, but in case this ever happens...
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    Thankyou for the explaination Derrie! I'm...

    Thankyou for the explaination Derrie! I'm beginning to get the idea that most of the meds mentioned on this site are pain related except for Plaquenil, prednisone, Celcept, Imaran and another one...
  24. Hi Lena! Sorry took so long to reply back. I am a...

    Hi Lena! Sorry took so long to reply back. I am a teacher and just started back...very time consuming! So Doc put you back on Plaquenil? In April you said he took you off....my doctor just did the...
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    Hi! School started and I haven't had time to come...

    Hi! School started and I haven't had time to come to this site much. How do I get in touch with Linda from Australia? It would be fun to talk to another teacher and compare experiences! That...
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