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  1. My son was born with Discoid Lupus. He is 5...

    My son was born with Discoid Lupus. He is 5 years old now. I know if he goes in the sun for 10 minutes without a hat and sunscreen, he will break out. If you took your daughter to a Dermatologist...
  2. Thread: discoid lupus

    by akcdoas
    Replies
    11
    Views
    1,989

    E-mail me anytime akcdoas@peoplepc.com I'm glad...

    E-mail me anytime akcdoas@peoplepc.com
    I'm glad I could help.
    Enjoy the nice cloudy day today.

    Kelly
  3. Thread: discoid lupus

    by akcdoas
    Replies
    11
    Views
    1,989

    Ever since Colton was born and we took him...

    Ever since Colton was born and we took him outside he would get red spots on his face (primarily on his nose and cheeks) from being out in the sun. The spots look kind of like chicken pox. We took...
  4. Thread: discoid lupus

    by akcdoas
    Replies
    11
    Views
    1,989

    When we take breaks in the shade, I have my son...

    When we take breaks in the shade, I have my son take off his hat to air out his sweaty head and that doesn't seem to give him any problems. He also wears shorts and t-shirts with lots of sunscreen...
  5. Thread: discoid lupus

    by akcdoas
    Replies
    11
    Views
    1,989

    Janet, My 5 year old son had Discoid lupus. ...

    Janet,
    My 5 year old son had Discoid lupus. When he goes outside he makes sure he's wearing sunscreen and a hat. If he wants to eat a snack outside or just have a water break, we look for a shady...
  6. Thread: Florida

    by akcdoas
    Replies
    2
    Views
    653

    Florida

    Does anyone out their live in Florida? I was wondering what the carseat laws are? Does a 5 year old need to sit in a car seat?

    Thanks,
    Kelly
  7. Thread: Kindergarten

    by akcdoas
    Replies
    3
    Views
    644

    Kindergarten

    Happy Friday,
    I'm registering my son (who has discoid lupus) for kindergarten. I have mixed feelings about letting the school know about his lupus. I don't want him to be labeled and looked at...
  8. Replies
    14
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    2,628

    Hi, I love gift ideas from my parents and...

    Hi,
    I love gift ideas from my parents and in-laws. I rather get them something that they'll use, then something I'll never see when I visit there home. Makes me feel a little bad that they didn't...
  9. Thread: Poor Vision

    by akcdoas
    Replies
    3
    Views
    787

    Poor Vision

    Hi,
    I was wondering if Lupus could effect eye sight?

    Thanks,
    Kelly
  10. Thread: Wisconsin?????

    by akcdoas
    Replies
    13
    Views
    1,867

    I live just out of Madison. Most of my family...

    I live just out of Madison. Most of my family lives in Eau Claire.
    The nearest support group is Milwaukee.

    Kelly
  11. Replies
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    2,886

    Happy belated birthday Lauri! You have an...

    Happy belated birthday Lauri!
    You have an incredible Mom, extremely caring, helpful, informative, knowledgeable, thoughtful, genuinely a nice person.

    Take care Susie. Happy thoughts and prayers...
  12. Thread: Vaccinations

    by akcdoas
    Replies
    3
    Views
    994

    Vaccinations

    Hi,
    My son has Discoid Lupus and is scheduled for his 5 year old shots.
    I'm scared this will trigger a Lupus flare.
    Does anyone have an opinion on this?
  13. Replies
    2
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    941

    Amoxicillin causing flares?

    Hi,
    My son (has discoid lupus) started Amoxicillin last Saturday for an ear infection. 1 1/2-2 days later he started getting lupus spots on his face, now he has a total of 10 spots. I can't get...
  14. Replies
    5
    Views
    4,335

    Hi, If my Son gets a scratch or a bump/bruise on...

    Hi,
    If my Son gets a scratch or a bump/bruise on his face, 99% of the time he gets a Lupus spot where that mark was. I don't know why.
  15. Replies
    9
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    2,285

    Glad to hear something worked so well for you!...

    Glad to hear something worked so well for you!
    Thanks for the info. I will look at Walgreens today for Miracell.
    My little guy has some spots on his face, that I would love to have cleared up...
  16. Thread: Chlorine

    by akcdoas
    Replies
    7
    Views
    1,038

    Thanks for everyone's thoughts and suggestions. ...

    Thanks for everyone's thoughts and suggestions. I will look for something to protect his head.
    It helps alot! I'm new at this, so any advice is greatly appreciated.

    I thought I was doing ok...
  17. Thread: Chlorine

    by akcdoas
    Replies
    7
    Views
    1,038

    Chlorine

    Hi,
    Has anyone ever had an outbreak from chlorine?
    My son swam in chlorinated water for 3 days in a row. Now he has a light brown, scaly rash on the top of his head and his hair is falling out.
    I...
  18. Thread: Lab Results

    by akcdoas
    Replies
    1
    Views
    817

    Lab Results

    I picked up my sons lab results.
    I figured out what most of the things meant, except a few.
    MONO, BASO, Lymph-Man, Mono-man, Baso-man, if anyone knows what these mean please let me know.
    THANK YOU!
  19. Thread: I'm Confused!

    by akcdoas
    Replies
    3
    Views
    668

    I'm Confused!

    Hi,
    My 4 year old son went to a Dermatologist; he had a biopsy done on one of his spots on his face. He also had some blood work done. The Dermatitis called with the results stating that he tested...
  20. Replies
    0
    Views
    805

    4 year old son with Discoid Lupus

    Hi,
    My son has had spots on his face most of his life. He has been misdiagnosed for 4 1/2 years, until now.
    I want to do anything I can to help. I can't go shopping without buying him a new hat,...
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