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    Welcome, Concerned Mother. I'm so sorry your...

    Welcome, Concerned Mother. I'm so sorry your daughter has been sick for so long. Her symptoms do sound a lot like lupus or a similar autoimmune disease. Has any of her other bloodwork come back...
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    I agree that diet can help. I try really hard to...

    I agree that diet can help. I try really hard to eat mostly whole foods and not those that are refined or over processed. I'm also a vegetarian. I'm glad the issue of artificial sweetners came up...
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    Welcome Kelli. I'm glad you were finally able to...

    Welcome Kelli. I'm glad you were finally able to get a diagnosis and you are finally starting to feel better. I can completely relate to the frustration of docs not being able to figure out what is...
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    I have heard about certain states where medical...

    I have heard about certain states where medical marijuana is legal.. I'm just curious which states are legal. I had never heard of medical marijuan for lupus, but since it can be used for pain for...
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    Welcome kathy. I'm not sure how much I can help....

    Welcome kathy. I'm not sure how much I can help. THe only thing I can think of is the possibility that you have developed neuropathy. I just recently developed burning in my hands and feet and the...
  6. Thread: Frustrated

    by hippimom2
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    942

    Hi Danielle, Tracy gave you great advice. She...

    Hi Danielle, Tracy gave you great advice. She is right about a rheumatologist being the doctor who specializes in diseases such as lupus, fibromyalgia, Rhuematoid Arthritis, etc. One initial blood...
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    Welcome Brent. You have certainly been through a...

    Welcome Brent. You have certainly been through a lot and I'm impressed with how active you have been. You'll have to let us know how the natural therapy works. I've always been interested in...
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    I've been a vegetarian for 18 years. I do eat...

    I've been a vegetarian for 18 years. I do eat some cheese and dairy once in a while, but not very often. I don't know about my diet having an effect on my lupus symptoms or not. I'm glad you are...
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    Congrats on the CD SoleSinger. I really hope...

    Congrats on the CD SoleSinger. I really hope that once the diva is gone you are well enough to resume lead singing.

    I've wondered about you a lot since this site went down and wished I could have...
  10. Thread: Back Online

    by hippimom2
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    :D YAY. I wondered what had happened. I kept...

    :D YAY. I wondered what had happened. I kept checking back every so often, but I gave up after a while. Hatlady was able to get in touch with me and let me know the site was back up. I've missed...
  11. Catlady gave you really great advice. I agree...

    Catlady gave you really great advice. I agree completely with her that you should call your rheumatologist. They may have someone who can see you soon and at least help you with your pain. Looking...
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    I haven't gone myself, but I have heard they are...

    I haven't gone myself, but I have heard they are very knowledgeable and good at what they do there. I had an aunt who was really sick for a long time and docs couldn't figure out waht was wrong. ...
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    SoleSinger, I just went to your band's website...

    SoleSinger, I just went to your band's website and you guys are REALLY good. I hope so much that someday you are able to do what you love again. Take care
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    I have noticed that I sometimes get really heavy...

    I have noticed that I sometimes get really heavy periods. Mostly I have noticed that I flare really bad the week before I get my period. It happens to me almost every month.
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    Meds are what help me the most. I take tramadol...

    Meds are what help me the most. I take tramadol regularly and when that is not enough I do have some low dose hydrocodne to take for days when the pain is unbearable. It doesn't totally get rid of...
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    I think I'm the one who asked the same question a...

    I think I'm the one who asked the same question a while ago. My understanding is that a lot of soy can cause a lupus flare. I am a vegetarian and used to use a lot of soy. After reading about soy...
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    Sorry about your doctor. They are the ones who...

    Sorry about your doctor. They are the ones who are supposed to be there and help us when we are feeling our worst. I think they sometimes don't want to deal with us if they aren't sure what to do. ...
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    Micha, I am so glad you got some help from your...

    Micha, I am so glad you got some help from your friends and your mom last night. I have small kids too, although they are a little older than yours, but it can be so hard to take care of them when...
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    Solesinger, I can't tell you how sorry I am that...

    Solesinger, I can't tell you how sorry I am that this happened. I don't blame you for feeling the way you do. It sounds like singing is not only your passion, but it's a huge part of who you are...
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    I love these. One day a friend asked me how I...

    I love these. One day a friend asked me how I was and even though I felt rotten I could honestly answer "I'm happy that I'm able to walk today" :P
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    I have come to the conclusion that for whatever...

    I have come to the conclusion that for whatever reason, my body and brain do not react well to the SSRI anti depressants. I have tried Cymbalta since I last posted about antidepressants and I again...
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    Winnie, sorry you are going through such a rough...

    Winnie, sorry you are going through such a rough time. Dealing with lupus can be so difficult and hard for others to understand. I go through what I call intense grief spurts every so often when I...
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    Welcome. You have found a great place where you...

    Welcome. You have found a great place where you will get a lot of support and information. I can relate to living in a small town. I live in southern Iowa and have to travel over an hour to see...
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    Shann, I'm so sorry you are going through this...

    Shann, I'm so sorry you are going through this run around with the doctors. A lot of us, including myself have had to go through several before we get the help we really need. How terrible for you...
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    Welcome eefell, I'm glad you officially decided...

    Welcome eefell, I'm glad you officially decided to join us. I agree that it is nice to find out that you are not crazy and that everything is not in your head. Your comment about Coke is...
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