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Type: Posts; User: Larette

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    I've been reading a lot about it (books and...

    I've been reading a lot about it (books and websites). Maybe it won't work but since I am only, at the moment, taking plaq (as opposed to having to stay on the pred) and since I'm not allergic to and...
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    Thinking of trying something new..

    I'm thinking about trying antibiotic therapy. Has anyone tried it or know someone who has?

    Thanks
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    I thought I heard too that yawning is the body's...

    I thought I heard too that yawning is the body's way of saying your brain needs more oxygen (not sure if its true). But maybe your lungs are just barely getting enough and there isn't much left over...
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    Oh, Marla, we posted at the same time and I...

    Oh, Marla, we posted at the same time and I didn't read yours before I posted.

    I think I tend to agree with what you're saying..about the virus possibly being a stressor (I actually mentioned that...
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    Yes, I'm not one of those to say that there is a...

    Yes, I'm not one of those to say that there is a cure for lupus.
    When I was first getting my testing done, they tested for EB and of course it showed that I have had it (practically everybody has)...
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    Epstein Barr/Lupus connection...?

    I'm sure people have brought this up a ton and you veterans out there are probably tired of the rotation of old questions from new comers.
    But have to ask, and this is why....

    My Mom is, I think,...
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    It made me smile! I see you're in PA. I'm in...

    It made me smile!

    I see you're in PA. I'm in the Philadelphia area. If you, by chance, are too and if you know of any support groups, please let me know!

    Thanks!
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    This is how it feels for me too. Why does this...

    This is how it feels for me too. Why does this happen? Is there anyone out there with a REALLY good doctor that listens?
  9. Thread: Skinny

    by Larette
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    Before I started having lupus symptoms I wasn't...

    Before I started having lupus symptoms I wasn't ever really overweight but did tend to plump up easily. One of the (many) things that began to get me thinking something was wrong was when I started...
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    Right before I started the plaq I made an...

    Right before I started the plaq I made an appointment with an ophthalmologist (in a week) just to be dilligent and have a pre-plaq exam.

    I have also made an appointment (sooner than my already...
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    Yes, I wonder the same thing. I feel shuffled...

    Yes, I wonder the same thing. I feel shuffled through the cattle shoot.

    P.S. speaking of plaq, I just went to take my pm pill and accidentally took tomorrow's birth control.
    Damn the lupus brain...
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    Dear Rheumy, WTF!?

    I am about 5 days into my plaq but on the 3rd day i had some issues with focusing my eyes.
    Now, I KNOW that plaq really only affects the eyes after prolonged use BUT in the desire to be a...
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    Will do, Gary. Thanks. And It will get tacked on...

    Will do, Gary. Thanks.
    And It will get tacked on to the (way too long) symptom list to discuss with my Rheum.

    In your experience with Sjogrens did you feel the burning/itching around the edges of...
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    Thanks, gkf, I wonder if I have Sjogrens as...

    Thanks, gkf, I wonder if I have Sjogrens as well....
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    The 'eyes' have it

    Hey all,

    So, It often feels like I have something in my eye(s)...like sand or something. Is this a symptom?
    Does anyone else have this?

    I also have burning or itching on the inside and outside...
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    Oh, I really feel for you, Shelby. I'm so sorry....

    Oh, I really feel for you, Shelby. I'm so sorry. The does sound freaky.
    Everything about all of this is so freaky (I'm newly diagnosed).
    I probably don't have anything constructive or helpful to...
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    It's so validating to read everyone's stories....

    It's so validating to read everyone's stories. And the support and encouragement is so comforting.
    Thank you all, VERY much. I'm so glad I found this forum!
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    Wow...so sorry. I'm not there (yet)...only 2 atm....

    Wow...so sorry. I'm not there (yet)...only 2 atm. Yes, ha, clearly that wouldn't work for you!
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    Quite true. It doesn't seem bother me (already...

    Quite true. It doesn't seem bother me (already used to it) however, I can REALLY see how it could bother some.
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    Philadelphia area?

    Looking for a support group in my area. Anyone know of anything?
    (maybe I should just start one!)

    Thanks,
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    Hi, I'm in the Philadelphia area. Have you...

    Hi,

    I'm in the Philadelphia area. Have you found any groups by chance?
    This is the only thing I've found so far...
    ...
  22. Thread: Yoga

    by Larette
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    Yoga

    So, I went to a Restorative Yoga class the other night. This is the first time I have exercised in quite a few months besides some infrequent, short walking trips. This is mostly due to the fact that...
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    Pain is the new normal

    Hi all,

    I'm 35, single mother, payroll administrator near Philadelphia.

    I'm not sure how long I have had SLE but in retrospect I could say at least 2 years. If I look back farther than that I...
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    So basically it looks like this... 45164517

    So basically it looks like this...

    45164517
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    Des', This is what I did, I got the "regular"...

    Des',
    This is what I did, I got the "regular" style bracelet with my name, my condition and that I didn't have any allergies, then I wrote "see charms for current medications" since they will...
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