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  1. Thread: Lupron?

    by kukukajoo
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    1,806

    Thanks Saysuzie, I am aware of the medicine...

    Thanks Saysuzie, I am aware of the medicine itself, just not the applications regarding Lupus such as how commonly it is used, etc.

    I have found nothing about how well it allegedly protects the...
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    have they done an ultrasound to rule out...

    have they done an ultrasound to rule out fibroids? I think that is a huge reason for heavy, long periods and messed up cycles.

    I had one the other day where they inject your uterus with fluid to...
  3. Thread: Lupron?

    by kukukajoo
    Replies
    6
    Views
    1,806

    Lupron?

    Anyone been given lupron to induce temp. medicinal menopause during treatment? I have never heard of this but it was given to a friend's daughter yesterday without any explanation of the major side...
  4. I don't even know the mom. I grew up with her dad...

    I don't even know the mom. I grew up with her dad and recently reconnected and sort of dating, getting to know each other again. I almost feel we met again by chance just so I could help them through...
  5. If it gets worse I would call immediately....

    If it gets worse I would call immediately. Sometimes the first sign of a PE can be what you describe, as well as a general uneasy feeling overall. Best to be safe when it comes to that as the...
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    IDK, but seems like maybe it can still be a clot...

    IDK, but seems like maybe it can still be a clot but sounds unlikely, many clots are asymptomatic actually and people may never know they had them. Interesting that many are not picked up by...
  7. I think I am most upset that the doc is a poor...

    I think I am most upset that the doc is a poor communicator and did not explain all the choices and consequences to her, especially since she is only 18 and still has so many years and so much...
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    I am a Lyme patient as well as APA...

    I am a Lyme patient as well as APA (antiphospholipid syndrome) as well as a 'lupus suspect' as described above....

    I am not certain what that test is either but I too am being followed very...
  9. friend's daughter age 18 with stage IV Lupus Nephritis

    OMG! An old friend has had his daughter diagnosed with the above, had her kidney bx, and not doing good. their doc sucks to say the least!

    Without giving her any info on Cytoxan, they want to...
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    Lori- I would urge you to get tested for lyme!...

    Lori- I would urge you to get tested for lyme! Bug your doc until he/she relents and does it "just to humor you" as my primary did! When I began having the neuro symptoms I knew enough to look at...
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    yes, you can be ANA positive, then ANA negative....

    yes, you can be ANA positive, then ANA negative. I would assume the first doc who dx you is correct.

    Find a doc near you who has good experience. Bring ALL your records to her/him.

    Lupus is...
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    I really do feel I lucked out with the MD after...

    I really do feel I lucked out with the MD after my own bad experiences in past and reading about others on here.

    I feel okay not knowing about lupus, as I guess I either have it or not, and time...
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    I could not even remember my aunt's name in a...

    I could not even remember my aunt's name in a conversation the other day! I knew names were hard for me, but I was horrified!

    Ditto on the spelling as well, it is terrible lately....
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    Market America is a MLM and gimmicky if you ask...

    Market America is a MLM and gimmicky if you ask me. There are other vitamins out there cheaper and better if you ask me. I used to take this stuff and saw no difference than taking a multivitamin...
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    I'm a suspect- a Lupus suspect

    Went to the specialist yesterday- excellent doc and great personality and MAJOR knowledge. He is well versed in Lupus and APS and very thorough.

    I have been officially classified as a 'lupus...
  16. Can the photo of me be one flipping her the...

    Can the photo of me be one flipping her the bird?!?! LOL
  17. Go to the rheumy your aunt had! Have they tested...

    Go to the rheumy your aunt had! Have they tested your anticardiolipin as well? I am not versed in all the alternate names that tests have but I would be concerned about antiphospholipid syndrome...
  18. Just wanted to share a small experience...

    Just wanted to share a small experience yesterday...

    had to go to gyn for a uterine biopsy and met with the NP/midwife who helped deliver my twins nearly 22 yrs ago. Glad she moved up here.
    ...
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    I know this pain very well and this now makes me...

    I know this pain very well and this now makes me wonder if I should get my Vit D levels checked or be on a supplement. If taking Vit D is a the solution to this awful pain, I would be very happy!
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    Lori, THANK YOU! I glad you wrote the 'book'...

    Lori,

    THANK YOU! I glad you wrote the 'book' as it contains some great information. I am going out today and getting some of the gum and the lozenges as well. One has to work for me! I didnt...
  21. Thread: New Comer

    by kukukajoo
    Replies
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    912

    Welcome! I am a relative newcomer who isn't dx...

    Welcome! I am a relative newcomer who isn't dx yet, but I do have the APS for certain.

    Your denial sounds so familiar to me, as well as many others on here I am sure. I too, have blown off MDs...
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    Here I am!

    http://i583.photobucket.com/albums/ss275/kukukajoo/mom.jpg
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    Sharing the diagnosis

    Having a hard time explaining the antiphospholipid syndrome and autoimmune disease stuff to friends. Nobody has ever heard of lupus really, nevermind APS!

    How have you all begun to share?

    I...
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    Quitting smoking

    Something I HAVE to do ASAP.

    Any tips, victories, setbacks? Anyone!
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    I hope you had a great Valentine's day!!!!!

    I hope you had a great Valentine's day!!!!!
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