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  1. Thread: New Here

    by Saysusie
    Replies
    2
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    41

    Hello Ibjfish; Welcome to our family. I've...

    Hello Ibjfish;
    Welcome to our family. I've been dealing with Lupus since 1985, so like you, I am an old-timer with this disease. I'm glad that you found us and that you decided to join our...
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    I know that the feeling of being overwhelmed is...

    I know that the feeling of being overwhelmed is frightening. Sometimes, we just have to allow ourselves to cry and to scream and wail if we must. We are here for you. Warmest hugs filled with...
  3. Thread: Bruising

    by Saysusie
    Replies
    3
    Views
    159

    You are most welcome. I am glad that the pain...

    You are most welcome. I am glad that the pain has subsided and that you did get some type of answer. Best of Luck

    Peace and Blessings
    Namaste
    Saysusie
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    Thank you Nonna :-) Peace and Blessings...

    Thank you Nonna :-)

    Peace and Blessings
    Namaste
    Saysusie
  5. Replies
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    64

    Lauri Amber Diggs

    On this day, December 10th, in 1999, I lost my cherished Daughter Lauri to this disease called Systemic Lupus Eurythematosis. It is to her that this site is dedicated and in her memory it is...
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    Hello Sandy; Welcome to our family. As Steve...

    Hello Sandy;
    Welcome to our family. As Steve mentioned, there are several members here who are dealing with CNS involvement with their Lupus. So, you are not alone.
    Please know that we are...
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    Hi Carolyn; I am sorry to hear that you are...

    Hi Carolyn;
    I am sorry to hear that you are suffering from so many symptoms. I cannot say if you do or do not have Lupus, but it does sound like you have some type of auto-immune disorder. Many...
  8. Thread: Bruising

    by Saysusie
    Replies
    3
    Views
    159

    Bruising easily is not a symptom of Lupus. But...

    Bruising easily is not a symptom of Lupus. But it does occur quite regularly. There are a lot of reasons for bruising and bruising with pain. Some are simple and some are a bit more complicated. ...
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    So very true Steve. This is such a heinous...

    So very true Steve. This is such a heinous disease and sometimes it does cause some of us to lose our battle with it. This is very sad, as is every loss of life due to this disease.

    Peace and...
  10. Replies
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    548

    Yes, I can understand completely being tired of...

    Yes, I can understand completely being tired of hearing bad news. None of us here are lucky enough to just suffer from Lupus alone. We all have overlapping diseases that afflict us and it seems as...
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    Happy holidays

    Hello WHL family;
    I do hope that everyone had a loving and warm Thanksgiving. We are approaching the season of giving and I just wanted to take a moment to give each and every one of you my...
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    Unfortunately, I am pretty much the same as you. ...

    Unfortunately, I am pretty much the same as you. Except that my flare ups always occur during the summer months..between July and September. Without fail, I always have horrible flare ups during...
  13. Thread: :(

    by Saysusie
    Replies
    1
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    322

    Hello and Welcome; I am sorry to hear that you...

    Hello and Welcome;
    I am sorry to hear that you are "miserable". There are so many of us who can certainly identify with that feeling.
    Your picture is very familiar, so I think that we are...
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    Many, Many Congratulations to you!!! Here's a...

    Many, Many Congratulations to you!!! Here's a big {{{hug}}}

    Peace and Blessings
    Namaste
    Saysusie
  15. Replies
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    Hi Ang; I would say that, at this point,...

    Hi Ang;
    I would say that, at this point, seeing a new doctor would be quite prudent. From the symptoms that you've described, I would suggest that you see a rheumatologist (if you have not...
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    Hi Brenda; Well, as you can see, many of us...

    Hi Brenda;
    Well, as you can see, many of us also suffer from the debilitating fatigue that you described. I wanted you to know that you are also not alone with the liver and thyroid issues...
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    Hi There!! It is so good to hear from you and,...

    Hi There!! It is so good to hear from you and, as you know, I ALWAYS love getting good news. I am so happy that Karma is working out for you and that he is such a sweet dog. That makes me smile...
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    Also, it is a well known fact that diabetes can...

    Also, it is a well known fact that diabetes can cause loss of vision for some. Have you asked your doctors about that?
    For patients with Lupus, the most common cause for eye damage is the use of...
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    Hello and welcome Justine; I am so sorry to...

    Hello and welcome Justine;
    I am so sorry to hear that you are going through so much and that this heinous disease has caused so many health problems for you. I know that it must be very difficult...
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    Tgal; I think that what you've done is...

    Tgal;
    I think that what you've done is wonderful. I wanted you to know that I've done the EXACT SAME THING for my cats. I love them like they were my children. But, I just could not care for...
  21. Thread: new to lupus

    by Saysusie
    Replies
    3
    Views
    292

    Hi Angie; Welcome to our family. I am glad...

    Hi Angie;
    Welcome to our family. I am glad that you found us and decided to join us. Please make yourself at home. We are here to help you in any way that we can and as much as we can for as...
  22. Thread: Hi to all

    by Saysusie
    Replies
    1
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    75

    Hello Julie; Welcome to our family. I do hope...

    Hello Julie;
    Welcome to our family. I do hope that we get to know you. Please tell us a little bit about yourself.
    This is a great place to be if you want to be amongst people who understand,...
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    Oh yes, I remember that horrible rash that you...

    Oh yes, I remember that horrible rash that you had and I remember someone suggesting that you use your own urine on it (lol).
    I, too, hope that it disappears as quickly as it appeared. Is there...
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    I am so happy that your doctor is a caring one...

    I am so happy that your doctor is a caring one who is interested in finding answers for you and treating your symptoms accordingly. Please let us know when you get all of your test results back. I...
  25. Thread: new member

    by Saysusie
    Replies
    2
    Views
    78

    Hi Kate; Welcome to our family! As Steve...

    Hi Kate;
    Welcome to our family! As Steve mentioned, negative ANA Lupus is becoming more and more common. As such, it behooves doctors to consider other signs and symptoms in making their...
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