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Type: Posts; User: lupyme

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    Lupus, fibro and sjogrens here. I didn't want to...

    Lupus, fibro and sjogrens here. I didn't want to take anti depressants either, but was talked into it. My rhuemy tried a few. None helped. They just made me sick. Muscle relaxers don't give me...
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    Mine isn't bad. I take gabapentin.

    Mine isn't bad. I take gabapentin.
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    I take mobic (meloxicam) daily. I get stomach...

    I take mobic (meloxicam) daily. I get stomach issues easily and have reflux, so I take omeprazole daily as well. That combo works well for me.
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    Thanks for your reply. It is very helpful. My eye...

    Thanks for your reply. It is very helpful. My eye doc did check color vision.
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    I took it briefly, but had no side effects. I had...

    I took it briefly, but had no side effects. I had no benefits either, so the doc took me off.
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    Macular spots from plaquenil

    Went to the eye doc today. My macular pictures had a bunch of spots. The doc then dilated my eyes and looked closer at them. She gave me a card with a spot in the middle of a grid to look at weekly....
  7. I take neurontin/gapapentin for peripheral...

    I take neurontin/gapapentin for peripheral neuropathy. I feel like ants are biting me when I don't take it, so I like it.
  8. I hope you get those lumps figured out. As far as...

    I hope you get those lumps figured out. As far as rheumy's go, they are the weirdest group of docs there is. If you mention a symptom to them, they make an automatic judgement as to whether it's AI...
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    Thanks all! Really good advice. It never even...

    Thanks all! Really good advice. It never even crossed my mind to see if my daughter would like to join me in the kitchen! She's really crafty so she might enjoy that. Lots of great ideas from a group...
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    It took about 15 years to for me to be diagnosed....

    It took about 15 years to for me to be diagnosed. For some time the docs thought I had "unusually bad arthritis for such a young woman". It took getting pleurisy to push them into motion.
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    ditto to the above post. Why are rheumy's so...

    ditto to the above post. Why are rheumy's so aggravating? They do like to diagnose Fibro for some reason. The problem with that is it doesn't cause as many symptoms as they like to blame on it....
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    To Tired to Help on Daughter's wedding

    I work a full 40 hour week. I go home cook dinner and maybe stay awake an hour after that. I wake up tired. I don't have the time or energy for wedding nonsense. I've agreed to make the wedding cake...
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    Get checked by someone else immediately!...

    Get checked by someone else immediately! Shortness of breath is dangerous. I had symptoms you're describing and it turned out to be pleurisy (inflammation of the lining of the lungs). I was on oxygen...
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    Could be sjogren's syndrome or fibromyalgia or...

    Could be sjogren's syndrome or fibromyalgia or both. People with sjogrens tend to have fibromyalgia and acid reflux. Possibly your stomach issue.
  15. Thread: Today...

    by lupyme
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    Hang in there. Waiting on a diagnosis sucks!...

    Hang in there. Waiting on a diagnosis sucks! Especially if it's lupus. That can be a long wait and not pleasant to hear you have. Still you may have symptoms caused by something easily treated. I...
  16. Rhuemy always blames fibro before SLE or sjogrens

    My rhuemy always blames everything on fibro. Apparently, SLE and sjogrens don't cause me any problems at all. He diagnosed me with them. You'd think some symptoms would be caused by them. He didn't...
  17. It's a waste of time trying to get a doc to...

    It's a waste of time trying to get a doc to believe you that already believes you're a liar. Check your insurance or whatever medical coverage you're under for the docs in that field. Do an online...
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    Methotrexate that easily?

    I thought rhuemy's held methotrexate until there was kidney damage. I have days like described often. I've only been taking tramadol, meloxicam and gabapenton for pain. Maybe us folks holding on to...
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    Thanks! I need the laugh!

    Thanks! I need the laugh!
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    Marla, What you're going through is...

    Marla,
    What you're going through is unacceptable! Please, please, please get a new PCP. Since they are the hub of all the specialists and the person that can give you recommendations, it is vital to...
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    I'm so sorry you're feeling bad. ERs SUCK!! But...

    I'm so sorry you're feeling bad. ERs SUCK!! But I'm glad that they are there! Take care of yourself. Pamper yourself a while. I'm in Dallas, TX and I asked my rhuemy's PA why the summer seemed to...
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    Interesting that NY helps. I'm in Texas as well....

    Interesting that NY helps. I'm in Texas as well. Yep, the heat is bad. I agree with Tgal. A good cry now and again can be helpful. If worst comes to worse, you can move back down here. If that's not...
  23. Marla, that's a trip! Your students wanting to...

    Marla, that's a trip! Your students wanting to borrow your cane is hilarious! I like the term walking stick. I think that's what I'll call it from now on.

    Elo, I know how you feel. I really hated...
  24. Thread: tramadol

    by lupyme
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    No side effects after being on tramadol for...

    No side effects after being on tramadol for years.

    Kcat, My doc told me to skip doses of tramadol at night, to give your brain a rest from it, and then it will respond to it again. I've tried it...
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    Yep, there's no shortage of lousy advisers. I got...

    Yep, there's no shortage of lousy advisers. I got the aspartame email and "My__________ had that and took____and it went away." and "This all natural juice will relieve all your pain." and "It's all...
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