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    Now they want to boost my immune system

    I went to the blood Dr. late last week and he wants to start me on this infusion of platlets (sp?) to boost the immunity in my blood. Apparently my immune system is very compromised at this moment...
  2. Thread: tests results

    by serand4
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    I'm so sorry about your illness. I've had...

    I'm so sorry about your illness. I've had several flares since changing meds and I know that if I were in a constant flare, I can't imagine how I would react. I have found a little help in changing...
  3. Thread: Outrage!

    by serand4
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    I think I might have threatened a bit of legal...

    I think I might have threatened a bit of legal action on that occasion!!

    I did more research and found that narcolepsy is a bit more involved that simply falling asleep inappropriately. It is...
  4. Thread: Outrage!

    by serand4
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    Thank you for your support. I really prayed on...

    Thank you for your support. I really prayed on it and I plan to go with my intense gut feeling -- cancel out! It's that feeling of dread that can stop you from doing something really stupid. This...
  5. Thread: Outrage!

    by serand4
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    Outrage!

    Today I went into see a neurologist at my Rheum. Dr.'s request. He wants a lumbar punture (spinal tap) and apparently neuros are the only ones who do this. I chose this neuro based on the fact that...
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    Neutragena has 100spf face cream that seems to...

    Neutragena has 100spf face cream that seems to have stopped my face rashes (and boy did I get them!). I also do a complete spray down with 100spf out of the shower. I hate smelling like sunscreen...
  7. Thread: Memory Loss

    by serand4
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    549

    I just started in this support group and this...

    I just started in this support group and this "gentleman" tried to tell me my mind would eventually turn to mush. I had spent the past two or so weeks in this group and had decided to exercise my...
  8. Thread: Memory Loss

    by serand4
    Replies
    16
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    549

    Memory Loss

    I'll keep this brief (for a change). For about a year now, my short term memory is horrific! People tell me things or make arrangements with me and then in a week or so, they'll remind me and I...
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    Sticky: Thanks to the Super Moderator, I went out and...

    Thanks to the Super Moderator, I went out and bought 100SPF face lotion after my first brush with the Maylar rash. Now I get out of the shower and spray my body down with 90 SPF, too (TMI, sorry). ...
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    Hi Jmail, no, it was very specific on my release...

    Hi Jmail, no, it was very specific on my release form. And apparently I can't get any transfusions? It's worth looking up out of interest alone! And yes, my friend, I get sick all the time. I get...
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    Old topic, same song

    Honestly, what is the matter with doctors who deal with Lupus? Why do we have to visit up to five or more RA Dr.s to get any type of real assistance? What is it that a team of doctors have to wait...
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    I truly understand. I have Lupus and lgA...

    I truly understand. I have Lupus and lgA deficincy which means if I take Lupus meds, I can get sick much more easily. And...since I have igA (blood disorder), I won't get well for weeks or months. ...
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    Thank you all so much for the support. What you...

    Thank you all so much for the support. What you said is exactly what I told my mom when my bladder first failed. The liver and neurological stuff is just icing on the cake. I also have something...
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    Liver biopsy. bladder failure

    I'm really confused about these new developments. Out of the blue my bladder failed about three weeks ago. I need a catheder to deal with that problem now. In addition, I went from no ANA scores...
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    Wow, this is hauntingly familiar. Right down to...

    Wow, this is hauntingly familiar. Right down to the sleep, then do a quick chore, then sleep...then not sleep... I see my RA Dr. on Monday and after two years of fighting a downward spiral, I am...
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    I just saw the posting on mental illness and saw...

    I just saw the posting on mental illness and saw many of my old posts. My memory is SO poor that I forgot all of those hallucinations. Psychosis doesn't seem like such a far reach now.
  17. Thread: Not sure

    by serand4
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    The dizzy's hit me frequently, too. Usually my...

    The dizzy's hit me frequently, too. Usually my BP is low but sometimes a bit of milk or orange juice will help. I don't know if blood sugar is a symptom but it does seem to help. At least I run...
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    Believe in yourself

    For years I have suffered with the on again/off again diagnosis of Lupus. I have every symptom but the ANA score. My pain was/is enormous due to my additional condition of fibro so they gave me...
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    Thank you for your positive thoughts! We still...

    Thank you for your positive thoughts! We still need to figure out what started the seizures several months back, but hey, it's always something! Like I've said to many friends, all this illness and...
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    Thank you for your positive thoughts! They truly...

    Thank you for your positive thoughts! They truly are appreciated. I did see the doctor today. Unlike so many specialists, he didn't rush or make me feel stupid for asking questions. What he went...
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    I see the Hemotologist tomorrow

    This is when I find out what the protein in my blood means. I had received a packet of info that I didn't even open until yesterday. I have SO MUCH paperwork everywhere that I don't bother with...
  22. I have really, really sever fibro to the extent...

    I have really, really sever fibro to the extent that even having one of my small cats laying on my lap can cause agony after about five minutes. And, honestly, I don't even want to be in a romantic...
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    I have to say that there have been many times I...

    I have to say that there have been many times I have felt just like ritzbit2. I would at least have something tangible to fight. I call my disease the black rose because it's petals continue to...
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    In the "can you believe he said this!" catagory,...

    In the "can you believe he said this!" catagory, my new dentist was grilling me like I was a convict (I take pain meds so I am often treated like a junkie) when I mentioned the protein in the blood....
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    Wow, no one has any answers. This should be an...

    Wow, no one has any answers. This should be an interesting appt. with the blood Dr. later this month. I'll share the info when I get it.

    Take care to all.
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