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    Well now I can say that I truly understand the...

    Well now I can say that I truly understand the importance of cortisol and how important it is in order for our bodies to cope with stress. I am not just talking one kind of stress, I am talking...
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    Well yesterday I found out why I felt so crook...

    Well yesterday I found out why I felt so crook during and after the test. It appears I have adrenal insufficiency and will need 'emergency' doses of steroids in times of stress - whatever that means...
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    ACTH Stim test - how was it for you?

    Hi everyone, long time no speak - hope you are all doing OK :)

    At my last but one appointment, my consultant discovered that reducing my preds from a 5mg dose, by 1mg a month is too quick and I...
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    Yes I have, I was diagnosed last year but it's...

    Yes I have, I was diagnosed last year but it's not severe, but my fingers go blue, then white and the only way i get comfort is by having a bath and my feet get really cold as well. But I am lucky...
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    Since first posting this I am now on Cellcept as...

    Since first posting this I am now on Cellcept as well as MTX and preds. I managed to get the preds down to 2 mgs (from 5mgs) and my joints all flared up but as I cant go above 5mgs, I had to get...
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    Im not very tolerant of MTX so I am going on a...

    Im not very tolerant of MTX so I am going on a low dose and reducing the Cellcept to 1000mg a day. I had all these questions to ask the specialist but I forgot. I go back in March so my husband...
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    Well the results of the mole removal came in,...

    Well the results of the mole removal came in, initially I was advised by the doctors wife that 'all was good' but just as I was enjoying some pizza and wine last night (as you say Steve, we just have...
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    Consultant called me and said everything has gone...

    Consultant called me and said everything has gone back to normal ranges - he doesnt know why it went up, said it is not the Cellcept. He thought maybe dehydration as our temps have been in the 40's...
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    Well no call from the doctor as yet - it is...

    Well no call from the doctor as yet - it is 10.40am, I am assuming all must be back to normal and think if it was that urgent, I would have been called by now surely?

    Feeling confident it was just...
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    Yep, I think they did all the kidney tests on...

    Yep, I think they did all the kidney tests on Wednesday plus I had to fill two urine pots - I get all results tomorrow - I am wondering if dehydration stuffed up my results, or am I just wishful...
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    I have had breathlessness, which I put down to...

    I have had breathlessness, which I put down to the Sjogrens but my weight loss has been quite noticeable and the nausea makes it very hard for me to eat.

    I wonder how someone can just develop...
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    Its a strange feeling when you feel 'wrong'. ...

    Its a strange feeling when you feel 'wrong'. Some days I dont have any or little nausea - this morning whilst I dont feel sick, I have zero appetite either and I am a bit itchy.

    I can tell when...
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    Thanks Steve for the chat earlier, you have no...

    Thanks Steve for the chat earlier, you have no idea how much it meant.

    Looking forward to catching up at the end of the month xx
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    Thanks guys. I think it is funny how it has all...

    Thanks guys. I think it is funny how it has all turned out. Do you remember when I first joined in 2011 and I had mild symptoms to what I have now and the first specialist didnt believe me, the...
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    My consultant telephoned me today to see how...

    My consultant telephoned me today to see how things were and said not to start the MTX and he will call me with the blood results and take it from there. I am peeing such a lot and feel nauseous...
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    Oh dear, MTX has been delayed as for the past...

    Oh dear, MTX has been delayed as for the past couple of weeks my nausea has been awful, feeling dizzy and headachey as well and it isnt gastro.

    Specialist said hold off MTX for the moment and...
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    Saw the specialist and he does not believe it is...

    Saw the specialist and he does not believe it is medication related. He confirmed that the results are not normal but has said not to be concerned, he has run more tests and urine today and will...
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    Kidney function - deterioration

    I had a phone call the other day in the evening, from my GP telling me that my kidney function has reduced (significantly for my age) so I have to have more tests done. I am at the hospital next...
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    Might take you up on that - Ive decided to try...

    Might take you up on that - Ive decided to try and not think/worry till I see the Rheumy but its going to be hard.

    If my risk of cancer is increased with taking these, I would rather take my...
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    Cellcept and skin cancer

    HI everyone

    My specialist stopped the MTX and started me on Cellcept and I have been taking 1,500mg for a while (1 tab am and 2 tabs pm). It has been a miracle treatment although I walk a fine...
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    I reduced from 5mg to 4mg and for two weeks was...

    I reduced from 5mg to 4mg and for two weeks was not too bad and then the pain became so bad that it was increased back to 5mg.

    Rheumy is going to try again on the next visit in January and if...
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    I have been on Cellcept for a few months, started...

    I have been on Cellcept for a few months, started on 500mg twice daily alongside MTX injections, now I am on 500mg three times daily and have weaned off MTX. Sadly the two worked well together but I...
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    You know I have been incredibly lucky with my...

    You know I have been incredibly lucky with my employers who have bent over backwards for me, even moving me to an office and removing the flouro lights, allowing me time off for appointments and I...
  24. I had a good read of the printout that the...

    I had a good read of the printout that the hospital gave me about Cellcept, on the section on 'how to take your Cellcept', it states 'Cellcept can be taken with or without food'.

    So I am going to...
  25. Im so confused over this, I checked my label and...

    Im so confused over this, I checked my label and it just has a warning about the dairy consumption but nothing about food. I double checked with the hospital pharmacist and then the consultant and...
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