Search:

Type: Posts; User: twinniesplus1

Search: Search took 0.00 seconds.

  1. Replies
    8
    Views
    1,935

    Can't sleep!

    I can't take antiinflammatories so i take hydrocodone but it wires me up. If I want to sleep, I stop all caffeine after 7 and no pain meds. That's the hard part, I still hurt during the evening and...
  2. Ok I'm an idiot but what did all that mean? Is...

    Ok I'm an idiot but what did all that mean? Is there another study and if so how can I get my rheumy the info to get in? I was in one study for a while and it was great! Over 2 years and minimal...
  3. Replies
    6
    Views
    1,557

    I too have lupus and last year started cellcept. ...

    I too have lupus and last year started cellcept. Then got this horrible feeling in my mouth. Weeks later the dr said it was probably a bit of sjo. showing up since I was in a flare. he said...
  4. Replies
    6
    Views
    3,179

    When I started Cellcept a year a go I experienced...

    When I started Cellcept a year a go I experienced a similar problem (same except no bleeding). I thought it was yeast infection due to upping the pred. and starting the cellcept. I finally got back...
  5. Replies
    4
    Views
    1,013

    Claire, Unfortunately I didn't manage the...

    Claire,
    Unfortunately I didn't manage the childbirth, my kids are adopted. But thanks for the advice anyway. It seems if I don't have a panic attack I'll be OK so everyone around me better help!! ...
  6. Thread: New Here

    by twinniesplus1
    Replies
    9
    Views
    2,019

    Suzyq- Last year I had a major Flare up and...

    Suzyq-

    Last year I had a major Flare up and started Cellcept and a higher dose of Pred. After a few weeks my mouth got horrible. I've had yeast infections before but this was the worst feeling. ...
  7. It may just be the prednisone. That stuff seems...

    It may just be the prednisone. That stuff seems to add weight by just looking at it! being more serious, I've been on prednisone and my weight fluctuates although I continue eating and eating. ...
  8. Replies
    4
    Views
    1,013

    My 16th SLE anniversary!

    Just wanted to check in and maybe give some hope to my newly dx friends. This week has been my 16 years being diagnosed with Lupus!!! I know I probably had it sooner but my official dx was Sept...
  9. lupus neph.

    I too have lupus neph. and I've seen both doctors. When my LN was very active and I needed the chemo I saw both drs. Now, I just see my rheumy and my PCP. Please don't forget him/her. It might be...
  10. Replies
    6
    Views
    1,216

    scan?

    Strange... I've talked to my doc about this and he's never mentioned a scan, maybe I'll ask next week. I'm about to finish a 24 hr sample and tomorrow go for blood tests. My back is hurting but I...
  11. Replies
    4
    Views
    3,416

    Thanks SaySusie

    I'll have my rheumy check it all out. The radiologist said I now have RA in my hands as well. Calling to get in with a hand surgeon just for advice. Will keep you informed.

    Sheri
  12. Replies
    6
    Views
    1,216

    Sight and perception

    I've noticed my balance is often off and my perception as to distance is also changing. Does anyone have any idea why? My hubby said maybe side effect from meds. Its a little scary and I'll ask my...
  13. Replies
    10
    Views
    2,209

    Pls don't get discouraged

    Just wanted to say I've had SLE since 1989 and it just becomes a way of life, although I do stress a little about the tests. Just recently though, my 5 year old was talking to me and I told her I...
  14. Replies
    6
    Views
    1,398

    How long have you been diagnosed?

    I was diagnosed at age 19 in 1989. As my mother and I looked back I started having serious joint pain at age 14. I had gone to my family doctor and was told I was growing too fast. If only that...
  15. Replies
    4
    Views
    3,416

    SLE hand tendons shrinking

    New here and I'd like to hear from others who have looked into corrective hand surgury or someone who has done it. I'm currently procrastinating the call to a hand surgeon and am using my 3 little...
Results 1 to 15 of 15