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Type: Posts; User: racinie

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  1. Replies
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    oh my gosh, I went through that whole fiasco at...

    oh my gosh, I went through that whole fiasco at the start of my freshman year. (i'm a junior now.)
    Don't be afraid. The key is to be flexible with your major. Make sure that if you decide not to be...
  2. Can I safely use oral contraceptives with SLE?

    I need to get birth control, and oral contraceptives seem to be the best choice. I'm concerned becuase i've read that a women with antiphospholipid antibodies should avoid them, given the increased...
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    I have the same problem. I get bruises all the...

    I have the same problem. I get bruises all the time, mostly on my legs, and i'm pretty fair skinned.
    Indiana in July is like 90 degrees, so I wear the shorts anyway.
    I was thinking about trying...
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    I'm also a cellcept success story, that raves...

    I'm also a cellcept success story, that raves about it.
    My journey to controlled symptoms was tough and laden with dose adjustments though.
    I was at the end of my freshman year of college, and I...
  5. I went on cytoxan as a kid once, and did NOT lose...

    I went on cytoxan as a kid once, and did NOT lose all of my hair, although it did thin out.
    I'm now on cellcept for lupus nephritis, and I have ALL of my hair.
    I was scared about going on these...
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    I thought plaquenil was supposed to be one of the...

    I thought plaquenil was supposed to be one of the most benign lupus meds...
    The idea of just going off of something makes me nervous..
    I hope whatever you do works out! :?
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    That sounds rough. You must be very frustrated. I...

    That sounds rough. You must be very frustrated. I have no idea if you have lupus or not, but based on your description, I can see why you might think it's a possibility. I really hope that you get...
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    crushingpretty, if you ever make the trip an hour...

    crushingpretty, if you ever make the trip an hour north to Purdue, give me a shout. jracine@purdue.edu
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    =-=-=- YOU-=-=-=- 1. Name: Jessica 2....

    =-=-=- YOU-=-=-=-
    1. Name: Jessica
    2. Age/D.O.B: 10/21/1988
    3. Boyfriend/Girlfriend's Name: Ben
    -=-=-=- Favorites! -=-=-=-=-
    4.Your favorite colour: green
    5.Your favorite meal to cook: ramen if...
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    I have no idea, he sort of wrote it off as...

    I have no idea, he sort of wrote it off as night-time teeth clenching. If it starts hurting a lot, i think i'll see my GP.
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    What happens if I relapse?

    I had my first bad flare since childhood last summer, and it was pretty extensive. I had nephritis, among other things. I was put on a 2g cellcept, 5mg prednisone, plaquinil, lisinopril regimen. Now...
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    I get jaw pain sometimes, (in a flare), but my...

    I get jaw pain sometimes, (in a flare), but my jaw pops all the time. It's just like someone described it: It's hard to move, then i force it to pop. But i really like it when it pops, it's really...
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    I just wanted to say...

    It always makes me sad when I hear someone with lupus is having a rough time. This being a support group site, one can read a lot about aches, pains, fatigue, frustration.... but i know that when i...
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    fast pulse? heart pounding?

    For a few months i've noticed my heart seems to be pounding a lot when i'm at rest, and it's pretty fast all the time. like 95-105 bpm. it used to be like 75-80 when i was totally healthy. anyone...
  15. Thread: Kidney Trouble

    by racinie
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    2,532

    My rheumatologist seemed really worried that i...

    My rheumatologist seemed really worried that i might have class 4 or 5 nephritis, so he had me see my nephrologist asap. I went in, thinking we were going to finalize plans for a biopsy and probably...
  16. Thread: Kidney Trouble

    by racinie
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    2,532

    i'm so happy for you that your kidneys are doing...

    i'm so happy for you that your kidneys are doing better!!!!!!!!!!!!!!!!!!!!!!!!
    I don't think I am quite as lucky, I'm going to get a kidney biopsy here in the next couple weeks because my kidneys...
  17. Thread: Kidney Trouble

    by racinie
    Replies
    14
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    2,532

    i'm going through the almost the exact same thing...

    i'm going through the almost the exact same thing right now. I feel good, but that's because i'm on 30mg of prednisone. I'm pretty anemic but i don't feel tired. I've had a lot of protien in my urine...
  18. the postal service!!

    the postal service!!
  19. Thread: cellcept

    by racinie
    Replies
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    3,546

    well, i've been on it for 4 weeks now and the...

    well, i've been on it for 4 weeks now and the side effects haven't been bad at all. a little nausea at first but it's gone now. I'm getting labs done in a few days to see if anything's getting...
  20. Thread: cellcept

    by racinie
    Replies
    11
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    3,546

    cellcept

    So, I'm about to be on 2000mg of cellcept. My doctors and I are hoping that this stuff knockes out any kidney involvement I have. i'm RREEAALLLLLLLLLYYYYYY hoping it does, because the next step would...
  21. Thread: Anxiety

    by racinie
    Replies
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    1,393

    It's nice to know I'm not the only one that has...

    It's nice to know I'm not the only one that has to deal with this.
    So, the doctors upped my prednisone to 30mg and started me on cellcept because of possible kidney stuff, but i've been feeling...
  22. Thread: Cytoxan?

    by racinie
    Replies
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    1,137

    I went on IV cytoxin when I was a kid with lupus...

    I went on IV cytoxin when I was a kid with lupus becuase they were worried about the ramifications of high dose prednisone on me and renal stuff. Anyway, 6 months on that, my hair thinned but didn't...
  23. Thread: Anxiety

    by racinie
    Replies
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    1,393

    Anxiety

    At first, i wasn't sure which board to post this on. I am no where near new to lupus, I've had it since I was 6. It was pretty severe and I was on high doses of prednisone and cytoxin. Now I'm on...
  24. Thread: swollen palms?

    by racinie
    Replies
    1
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    654

    swollen palms?

    Aside from joint pain, the center of my palms are swollen and sore, anyone else ever had this? Is this normal?
  25. Thread: Remission

    by racinie
    Replies
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    1,759

    Lupus if different for everyone, but if it gives...

    Lupus if different for everyone, but if it gives anyone here some hope, total remission, I believe, is possible. My lupus was totally absent for 10 years between when i was 8 and 18. I just NOW am...
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