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  1. Thread: Pain and bumps

    by K.Grams
    Replies
    8
    Views
    991

    No problem at all...yes the fever is "normal" for...

    No problem at all...yes the fever is "normal" for alot of people with Lupus I personally
    am always between 96.3-98 but many others will constantly have a low-grade fever.
    The doctors do have a hard...
  2. Thread: Pain and bumps

    by K.Grams
    Replies
    8
    Views
    991

    Sounds like Lupus...

    I am not a doctor obviously but that does sound like Lupus to me. I do not get brown clusters but I do get red little dots or bumps from my hands to my
    legs and I also get them on my face. I wake up...
  3. Replies
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    1,030

    Yeah whenever I'm in the sun I get "pimples" and...

    Yeah whenever I'm in the sun I get "pimples" and bad butterfly rash.
    I get them on my hands and arms and most of my legs but it does go
    away after awhile.

    We aren't supposed to be in the sun...
  4. Thread: Good Days

    by K.Grams
    Replies
    8
    Views
    783

    That sounds like an AMAZING day! Keep going and...

    That sounds like an AMAZING day! Keep going and stay positive that's the
    way to go especially when youre feeling that good! I hope you continue to do
    good and that your ankles keep on keepin on!
  5. Thread: Neurologist...

    by K.Grams
    Replies
    10
    Views
    1,220

    That's awesome about your numbers I hope they...

    That's awesome about your numbers I hope they continue to stay good!!!!

    Yeah..my Lupus Fog is pretty bad I will be talking and then can't think of an
    easy word for the life of me. I also will...
  6. Replies
    6
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    903

    I hope you have lots and lots of fun and you...

    I hope you have lots and lots of fun and you enjoy seeing your daughter &
    that safety and health follow along with you! I got back from Colorado on
    monday but on wednesday I was admitted to the...
  7. Replies
    6
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    763

    Hang in there..just don't give up or feel like...

    Hang in there..just don't give up or feel like it'll never happen because you WILL get a
    straight answer!

    My Rheumy had told me for 4 years that I was "lupusie" and that I didn't have enough...
  8. Replies
    2
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    1,703

    Hi mom! I'm 19yrs old..I first got sick in...

    Hi mom!

    I'm 19yrs old..I first got sick in 2004 when I was diagnosed with Kidney disease which later I found out was from the Lupus. I took predisone and I was also given a few treatments of...
  9. Oh honey..you totally deserve to have a new...

    Oh honey..you totally deserve to have a new friend! I completely understand the anxiety
    and everything but you shouldn't. Just try to relax alittle and enjoy that you found someone who has some...
  10. Replies
    2
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    462

    I'm going on vacation to Colorado Springs we...

    I'm going on vacation to Colorado Springs we leave Friday and come back to Chicago
    Monday but if I was still there on the 14th I would totally join the walk there I bet it's beautiful! But I will be...
  11. Replies
    15
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    2,242

    I'm so sorry you had a migraine like this..its...

    I'm so sorry you had a migraine like this..its awful and I wouldn't wish it on anyone.
    And I definately dislike that doctors can tell us what can be causing it but don't say
    anything else about...
  12. Replies
    15
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    2,242

    Angioedema

    Thank you for responding and it still helps even if none of us
    has a clue how to help it.

    My right eye is also swollen and has been for the last 3 weeks
    and I can feel the eye strain when i look...
  13. Replies
    15
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    2,242

    Wow..you just completely blew my mind. No I...

    Wow..you just completely blew my mind.

    No I have not been test for angioedema but I just read some things on a few websites
    and it sounds like that definately might be it. I have before told my...
  14. Replies
    15
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    2,242

    Tounge Swelling & Painful Swallowing

    I don't remember when these symptoms started but it happens pretty often and mostly later in the night.

    My tounge only gets a little swollen on the right side..not too swollen and it is painful to...
  15. Replies
    5
    Views
    801

    I know exactly what you mean..you have a good day...

    I know exactly what you mean..you have a good day you aren't feeling bad then as
    the day goes on you start to get pains EVERYWHERE. I usually take a hot bath if I feel bad
    before bed. And like...
  16. Thread: Love & Lupus

    by K.Grams
    Replies
    24
    Views
    2,541

    Dreamer..thank you so much for your impute. I do...

    Dreamer..thank you so much for your impute. I do believe that there are people out there that love others unconditionally and I know it wouldn't be different for me but it's hard to
    stay positive...
  17. Replies
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    1,506

    Thank you so much Pearl & Dreamer it feels really...

    Thank you so much Pearl & Dreamer it feels really good to know you guys care and I too will pray for both of your health. I look forward to getting to know you both better & to get to play some games!
  18. Replies
    10
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    1,506

    Hi Rob.. Thank you so much for the warm welcome....

    Hi Rob..
    Thank you so much for the warm welcome. I try to stay as positive as possible and as you know thats hard with all of SLE's ups and downs but as time goes on
    and flares subside I remember...
  19. Thread: Sweating?

    by K.Grams
    Replies
    21
    Views
    2,783

    Wow...I thought I was the only person who could...

    Wow...I thought I was the only person who could sweat while outside in the snow!
    Any time I go into my bank I KNOW I am going to sweat...I walk in dreading it and I just
    want to get my money and...
  20. Replies
    19
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    10,155

    Hi DayDreams... I totally understand. My illness...

    Hi DayDreams... I totally understand. My illness started at the age of 13..I am now 19. I have been on so many different meds and had soo many test that cost my parents an insane amount of money that...
  21. Thread: Love & Lupus

    by K.Grams
    Replies
    24
    Views
    2,541

    Thank you so much for your reply! I am sorry to...

    Thank you so much for your reply! I am sorry to hear about him leaving you but obviously it's his loss..how could any man leave a beautiful woman with a beautiful smile who truly needed them..you...
  22. Thread: Love & Lupus

    by K.Grams
    Replies
    24
    Views
    2,541

    Love & Lupus

    ..Love & Lupus..
    This is something that comes across my mind pretty often. I know I am very young being only 19 but I wonder if I will ever be able to find true love having Lupus.

    It could just...
  23. Replies
    10
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    1,506

    Thank you so much..you have absolutely no idea...

    Thank you so much..you have absolutely no idea how much that means to me!
  24. Replies
    22
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    2,499

    I was crying the entire time I read that...being...

    I was crying the entire time I read that...being 19years old and only suffering from this for 5 years i totally understand. I have many times given into depression and thought about giving up. You...
  25. Replies
    6
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    986

    Hey Sassy..I personally have been on prednisone a...

    Hey Sassy..I personally have been on prednisone a total of 3 times since 2004..partly because I refuse to take it...I was put on a very high dose for about 9months for my kidneys and it caused some...
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