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  1. Replies
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    Well I just switched PCP's and today was my first...

    Well I just switched PCP's and today was my first visit with her...I expressed my frustration...I have another dermatological skin disorder which is NOT lupus related and the derm has been less than...
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    thanks Christina

    Thanks I see a derm...he is the one that diganosed me (I was mistakenly treated for thyroid for over a year) the derm gave me drops for my scalp which havent worked. I go back to see him 12/11...
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    I was diagnosed in June....and my hair has...

    I was diagnosed in June....and my hair has continued to fall out...I tried the Nioxin and it did dry my hair out too...and I really dont see that it works. I have been on Paquinil only and my hair...
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    I am really lucky...I have had the same...

    I am really lucky...I have had the same hairdresser for over 20 years ...since i was in Jr. High. She always told me I would never have to worry about going bald! I went last month and she just...
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    Trust me it is totally liberating! I feel fresh...

    Trust me it is totally liberating! I feel fresh and hip! Back combing and the garnier root lift make my hair look so much fuller. I was wearing headscarfs every day. And it looks like so much...
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    Well I did it...went to see my hairdresser and...

    Well I did it...went to see my hairdresser and got it chopped off. It had been down past my shoulders now it is above chin length....She turned me on to Garnier Root lift...a spray you put on your...
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    My hairdresser swears Nioxin cannot work. She...

    My hairdresser swears Nioxin cannot work. She states the chemicals cannot penetrate the scalp (otherwise when you dye you hair you wouldnt have roots) to the folicles I think...it cant hurt. I take...
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    I need all the help I can get! It is very...

    I need all the help I can get! It is very tough...I have done it in the past 3-4 times...but this time I have smoked for 17 years ...I cant afford it and hate it...I just really hope I dont blow up...
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    Hope mine grow :P s back and I am a tall willowy...

    Hope mine grow :P s back and I am a tall willowy blond :P
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    My PCP just called...she is calling in the...

    My PCP just called...she is calling in the prescription for Nicotine patches today.
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    Legalized discrimination....I consume a legal...

    Legalized discrimination....I consume a legal substance....Until they make cigarettes illegal (which they won't because they make too much in taxes) then it is discrimination. I guess what made me...
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    Thanks Sole...that is good news to hear! I...

    Thanks Sole...that is good news to hear! I contiue to use the Nioxin...
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    I know that there are OTC products but I would...

    I know that there are OTC products but I would much rather pay a $15 co-pay for the patches than $60 (still cheaper than smokes I know) ....I have quit before (last time was 17 years ago and I quit...
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    THAT is funny! As for the hair loss...

    THAT is funny!
    As for the hair loss thing....has anyone gotten really really thin....and then had it grow back? I guess if it was Chemo and I KNEW it was temp I wouldnt stress so much about it. ...
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    I went back to the Derm yesterday...he informed...

    I went back to the Derm yesterday...he informed me that smoking diminishes the effect of the Paquinil and he wants me to try the Paquinil without smoking...easier said than done...I know smoking is...
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    Honey I feel your pain! I still have hair but am...

    Honey I feel your pain! I still have hair but am headed your way fast...it just keeps falling out. I got Nioxin so far not much help....I also have drops for my head....I too am tempted to just get...
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    smokers and imunosuppressents

    I have been on Paqunil since July for subcute Lupus. I was covered with Hives on my torso and had the rash on my face. My hair was falling out too. The hives on my chest, back, and arms all but...
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    I am in the same boat...always had thick...

    I am in the same boat...always had thick hair...mine is still past my shoulders but I am very thin on top. I wear a lot of head scargs...because my hair is long it gives the illusion that I have...
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    I continue to battle the hair loss...and after I...

    I continue to battle the hair loss...and after I bought my Nioxin my hairdresser told me to save my money....it doesnt work...if you hair is traumatized (by lupus chemo or whatever) nothing topical...
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    Nioxin

    Well I finally found a place in town that sells Nioxin...and a friend with a license to go with me. I must praise the Lord as I was doubtful I could afford the hair care stuff. Lo and behold the...
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    I have more courage to go gray than bald! I dont...

    I have more courage to go gray than bald! I dont want to cause my hair any more trauma than it already has. Gray hair is better than no hair!
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    You may never get the hives....it is different...

    You may never get the hives....it is different for each and every person. I am the last of 11 children. No one in my family has lupus. But I understand it can run in familys. Its rare that men...
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    Nope mine are covered with hives and lessions so...

    Nope mine are covered with hives and lessions so they dont want those either! :P
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    I know just how you feel...I am a single...

    I know just how you feel...I am a single mom...the sole breadwinner. I have health insurance through my work. Even with heatlth insurance, the co pays and deductables are an added stress. The good...
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    I spent two years with a reg doc being treated...

    I spent two years with a reg doc being treated for everything from thryoid to "its all in your head sickness" finally was refered to a dematologist this summer who diagnosed me....and sent me to a...
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