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Type: Posts; User: Kayla's Mom

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  1. Thread: Great news

    by Kayla's Mom
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    Yay!! Good job :)

    Yay!! Good job :)
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    I appreciate your post. I have done all of the...

    I appreciate your post. I have done all of the research I could possibly do for hypermobility. I was surprised to read that it was linked to Lupus. Her symptoms are: joint pain in the hips, knees,...
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    Yes, it was a rheumatologist at a Children's...

    Yes, it was a rheumatologist at a Children's Hospital. No, they did not give her any medication. Yes, she did see a psychical therapist. Oct. 3rd is the next appt. I just can't believe with all her...
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    Hypermobility?!

    Does anyone on here have hypermobility as well as Lupus?
    My daughter finally had her appt. and the Dr. thinks she is hypermobile and doubts she has Lupus. It might explain some of the joint pain,...
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    I haven't had any suggestions from any Dr. I...

    I haven't had any suggestions from any Dr. I guess that's why I am doing the research on my own. We have exactly 4 weeks until she's seen and it can't come soon enough! I am on the cancellation list...
  6. Thread: Brain Fog

    by Kayla's Mom
    Replies
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    Brain Fog

    Is there anything to help with the Brain Fog? She isn't on any medications yet... we see the specialist in June.
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    All is good. When it comes to my daughter,...

    All is good. When it comes to my daughter, nothing means more! I would do anything to help her and this disease for everyone that is suffering. So, to clarify...Kayla will be seeing the specialist in...
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    NEVER did I say I wasn't going to give her meds....

    NEVER did I say I wasn't going to give her meds. Please re-read what I said. I said we are going to "try" a healthy diet until we see the specialist in June. I would NEVER jeopardize my daughters...
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    Yes, she is going to a Children's Hospital, it's...

    Yes, she is going to a Children's Hospital, it's about a 3 hour drive away, but I hear it's phenomenal! June can't come quick enough.
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    Well, we have decided to try a gluten free diet...

    Well, we have decided to try a gluten free diet for a while to see if that helps at all. We have to wait until June to see the specialist anyway, so we may as well try something! Thanks for all the...
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    Are there Natural ways?

    Has anyone found a natural way to treat lupus? I just dislike the thought of giving my daughter different medications... I am new to all of this and trying to inform myself of all possible options....
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    Thanks ritzbit. I will let her know that if she...

    Thanks ritzbit. I will let her know that if she needs to talk to other teens that can relate she can come on here.
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    Thanks for the advice. I did ask that the Dr. to...

    Thanks for the advice. I did ask that the Dr. to put us on the waiting list. I just wanted to know that that was a normal waiting period, it seems like such an awfully long time. It's so weird how...
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    My daughter... :(

    Starting in Feb. my daughter, Kayla started experiencing pain in both hips, extreme fatigue... We took her to the Dr. & they ran some tests and the Dr said she thinks Kayla has arthritis or lupus and...
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