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Type: Posts; User: preshad

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    Courage

    After living with lupus for 40 years, my definition of courage, = Courage is "self pity turned inside out."
    Not much more to say today, except I wish you all the very best.
    Preshad
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    raised toilet seat

    After being married for 44 years got used to it. Been there, done that , many times. Look first before you sit.-Best advise.
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    tired of it all, and discouraged.

    I have been drealing with Systemic Lupus for 39 plus years now, and I am weary of it all. -- The years of pain. disappointments, altering my life style over and over, The loss of my nursing career(I...
  4. Darlin, Sometimes, we find ourselves in a...

    Darlin, Sometimes, we find ourselves in a position where we have to take responsibility for our own health improvements. When doctors don't seem to be helping,it is time to become an active partner...
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    Need the Lord to help us fight Lupus

    I am 67 yeas old, and have been fighting the lupus battle ever since I was 28 years old. This disease has attacked my body in many different ways, nearly ending my life several times, but I am here...
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    lupus has forced me over the years to see more...

    lupus has forced me over the years to see more doctors than I ever dreamed I would have to. I have met all kinds of doctors. Some were very nice, and willing to listen, but there were a few like the...
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    Sticky: I have found through experience that Sulfa drugs...

    I have found through experience that Sulfa drugs triggered a flare up for me. I now say that I am allergic to Sulfa
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    Sticky: I have been living with SLE for 39 years. I...

    I have been living with SLE for 39 years. I recently was told that I have an auto-immune irritation in both of my eyes. The doctor has me taking cortisone drops in both eyes. --one drop, four times a...
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    peeing problems. I have lived with lupus for 39...

    peeing problems. I have lived with lupus for 39 years. One of the problems I have lived with in connection to lupus is a type of bladder problem called, Interstitual cystitis. It differs from...
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    pain control I have lived with lupus for 39...

    pain control
    I have lived with lupus for 39 years. Along the way I have consulted many doctor. Some of who were osteopathic doctors. They taught me that acid foods in excess,such as grapefruits,...
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    Never stop taking prednisone suddenly cold...

    Never stop taking prednisone suddenly cold turkey, because it will throw your lupus into a tail spin.My lupus is so active, that when I taper, I can only come down one miligram a month, because I...
  12. Thread: rituxan

    by preshad
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    Rituxan all most killed me. I found out through...

    Rituxan all most killed me. I found out through experience something that was confirmed by my Rheumatologist.--Many lupus people have something called Antiphospho lipid syndrome, which simply means...
  13. Thread: Mouth Sores

    by preshad
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    I had cancer, and between the chemotherapy and...

    I had cancer, and between the chemotherapy and lupus, I had many mouth sores. Ask your doctor to order you the pink mouth rinse for chenotherapy patients. Itnumbs your sore mouth, and heals the mouth...
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    lupus women

    I have been living with SLE for close to 30 years. After reading your posts on this site, it reminded me, that over the years, I have met many lupus women from around the world,via the internet. I...
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    FAith and Lupus

    I have been diagnosed for 39 years. Lke everyone else, there has been much pain along the way, many necassary lifestyle changes, dissappointments, and tyrumphs, failures, and accomplishments. I never...
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    Re: Faith non Christian

    I have been diagnosed with SLE for 28 years although much more likely had first flare at 19 so more like 40 years. I am in awe when I read stories of people on this and other boards. Both in awe of...
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    Thank you Kathy for your welcome. We have to help...

    Thank you Kathy for your welcome. We have to help each other with this disease. It can cause so many problems. I have only touched on a few of the medical things that have happened to me over the...
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    introduce myself

    Hello,
    I am a 67 year old female diagnosed with SLE 39 years ago. Lupus forced me to retire my profession(Registered Nurse). I have studied lupus extensively over the years mainly fory own...
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